Has anybody had this done?

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Starflyr's picture
Joined: 10/20/07
Posts: 428
Has anybody had this done?

Cassandra has a posterior tongue tie that is interfering majorly with her latch. She had a slight anterior one, too, and I had it clipped by one of my partners to see if that would fix everything. It helped some, but she still cant latch right because she cant elevate the back of her tongue to compress the nipple. So, she latches on shallow and uses the front of her tongue to strip the milk (OW!)

We have an appointment tomorrow with a specially trained dentist who uses a laser to release posterior tongue ties. I have NO idea what to expect and Im nervous.

I know we need this to get done, Im just hoping that maybe someone else here has some experience with posterior tongue tie release?

rebgrace's picture
Joined: 03/28/08
Posts: 596

My DD2 had a posterior tongue tie as well. She destroyed my poor nipples before we figured it out!!
We had it clipped by a doctor who specializes in BFing when she was 2 weeks old. She didn't use a laser though, that sounds interesting. I would guess it would be a little different, DD's mouth bled quite a bit. Or at least it looked like a lot!! But, she stopped crying and latched on instantly after it was done. Her latch took a few weeks to improve (and my nips took a few weeks to heal). It is still not perfect, I use nipple shields for the start of most feedings. But she is exclusively BFed, and I don't hurt anymore!!
Really, it was harder on me then her. I really think that she was more mad about being restrained then in any pain.
Good luck!!

Starflyr's picture
Joined: 10/20/07
Posts: 428

Ugh...

we had it done yesterday. It was so sad when she came back - she has BURNED places at the top inside of her upper lip and under her tongue from the laser.

She was PISSED and I kept her on tylenol for about 24 hours. She's only needed 1 dose today, though.

She is eating somewhat better though now she is gagging/choking on my milk. My IBCLC said that that's normal in newly released tongue tied babies though, and that it should improve as her tongue gets stronger over the next couple of days.

My poor baby Sad

Star

mommycarrie's picture
Joined: 09/07/06
Posts: 358

:bigarmhug: So sorry you two had to go through this! I hope that baby girl is feeling better very soon. Sad

rebgrace's picture
Joined: 03/28/08
Posts: 596

:bigarmhug:
Ugh, I can't believe she had burned spots! Poor baby:( Hopefully her latch will improve quickly!

Amber_daisy's picture
Joined: 10/17/06
Posts: 567

I know how hard it is to go through all this. We went through it with Quinn back in June. We actually had to travel from NL, Canada to Albany, NY to have it corrected. No one here could even give us a diagnosis. Quinn was also treated by a pediatric dentist. (Dr. Lawrence Kotlow). Quinn had both his posterior tongue tie as well as his lip tie revised with laser. He was pretty bewildered that first day, and required tylenol every 4 hours. The next day he was back to himself though, and was nursing quite well. His weight gain hasn't been fabulous (he was FTT before the surgery) but it's been adequate. He was already 3 months old when he had the surgery though, so I think he'd already formed a negative association with breastfeeding, as he aspirated every time he nursed.

Anyways, I wanted to tell you, in case no one has mentioned it yet, that getting the baby in to see someone trained in craniosacral therapy is really important after tongue tie release. The movement of the tongue helps to shape the baby's oral cavity in utero and helps them to develop their facial muscles. If they're tongue tied, this doesn't happen properly. You can see evidence of this in many tongue tied babies by the "bubble palate." Quinn has a real bubble palate. CS therapy can help with all of this. We've had Quinn to the chiro several times for CS therapy and it's been wonderful.

If you have any questions or want to talk, please PM me. Smile

Starflyr's picture
Joined: 10/20/07
Posts: 428

Amber - wow, thats quite a story! he aspirated every time before the release??? did he have a type 4? Cassandra's was a type 3. Oh, and the 2 dentists in our area that do it were trained by Dr Kotlow.

she's been going to a good chiro since she was born, I'll be sure to keep taking her. Luckily her palate was only slightly affected.

The worst part now is the 4 times a day "stretching" of the treated areas to prevent adhesions. I REALLY hate doing it to her, and we have to do it 4x a day for 2-4 weeks. It makes her scream, and makes me feel terrible.

Im going to make it a priority in my practice to eval and treat tongue tie - Im a pediatrician, and we were NEVER taught about it. I know some of my partners were, but they were in training 20-30 years before I was. More and more info is coming to light about it through research though, so we really need to get on top of it!

Star

Amber_daisy's picture
Joined: 10/17/06
Posts: 567

The stretching was the worst! I felt like I was abusing the poor child every time I did it.

Anyways, he did have a type 4 tie. We saw 10 care providers here (4 GPs, 4 LCs, a dentist and a plastic surgeon - the family doc sent us to plastics instead of ENT for whatever reason) and none of them thought there was a tongue tie or a problem with his very obvious tight maxillary frenulum. But I KNEW there was something wrong. At 3 months he was back down to what he weighed at 2 months. At that point he was refusing to nurse at all in the day time. The only time I could get him to nurse was at night when he was sleepy and we were lying down....that way a lot of the milk would just pour out the side of his mouth and he could handle it better. He couldn't coordinate sucking and swallowing at all. So he aspirated and he was gurgly the whole time. He had so many of the signs and symptoms of tongue tie. In fact, it was a list of s/sx on the Analytical Armadillo blog that lead me on my search for a diagnosis. No one could figure out what was wrong, and everyone's solution was to supplement. Of course, I had so much milk I could feed triplets, so it was obviously not an issue of supply. We even tried to supplement with my milk in a bottle and he couldn't manage a bottle either. And oh, did we try. We were likely on the road to having an NG tube placed. Through the gigs and the reels, I ended up getting in touch with a fantastic LC in France (she's from the US though), named Jennifer Tow, and she diagnosed Quinn on line. She pushed for us to see Kotlow. (For anyone reading this looking for TT or LT info, go to kiddsteeth.com and click on articles....Dr. K has a bunch of published articles on TT and LT).

Anyways, I'm now trying to get some training for care providers here. There are so many women and babies I've come across since I've been back that are clearly having TT issues but they aren't being diagnosed or treated. I've also decided to go down the IBCLC path myself....it'll take me 3 years, but we need people here qualified to diagnose this! Clearly the IBCLCs aren't getting the education/training in it that they need. They can diagnose a TT if the baby is tied to the tip of their tongue, but other wise, you're SOOL.