An overdue update on Stella

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jonibug's picture
Joined: 11/27/06
Posts: 781
An overdue update on Stella

Some of you may know somewhat what is going on but I figured I'd update on here.

DD has been having severe allergic reactions since mid-February. The first one was on her face. It started on a Sunday with just very bright red skin under her eyes, by Wednesday it was getting so bad her eyes were swelling shut so I took her in to the dr. They gave her a steroid rx. That made it go away but about a week later it came back, faded and came back again, but this time all over her body. Mostly behind her knees and on her stomach and chest. It never really faded all the way after that so we went back to the dr. She also had a cold in March followed by a sinus infection and ear infection. After that cleared up I took her in for bloodwork to see if they could find the cause to the reaction. I haven't gotten a response back, but I talked to a doctor friend and she suggested we go ahead and see an allergist since dd is such an abnormal case (allergies like this normally show up in the first year). This week has gotten a lot worse, the tv is almost always on b/c dd has almost no energy, she gets bursts but they are very short and then she gets really lethargic and cranky, so she watches a lot of tv to keep her calm (b/c she's also been throwing up when she cries). The reaction is also covering almost her entire body, now on her arms and back as well. Today I finally scheduled the allergist appt for the 21st, I was surprised they could see her so soon as I've always heard how busy they are. I'm hoping and praying for quick answers, this has my nerves shot and I'm having a very hard time leaving her with anyone other than dh b/c I'm afraid the reaction will suddenly get worse.

AFM, I'm feeling better finally. The baby looks good, hb is good. It has been kicking a few weeks now. I go for my next appt which will be a group appt with a bunch of other pregnant ladies on the 5th.

Sorry this was so long!

mommamary's picture
Joined: 06/29/08
Posts: 8

Oh Joni, I am so sorry that Stella is going through this! I hope that the allergist can find the cause of the reactions. I can't imagine having to deal with all of this! I am glad to hear that your pregnancy is going well otherwise but that is a lot of pressure, particularly when your pregnant.
Big hugs to you and please keep us updated. I'll be thinking of you guys.

yipeeladybug's picture
Joined: 01/18/06
Posts: 1214

I'm sorry I had no idea that Stella had such severe allergy problems. Poor girl!! I feel so heartbroken for her to have to deal with this and feel so uncomfortable too! Sad

I also hope that they can get to the bottom of this and help Stella feel better quickly by identifying the allergens.

I'm glad to hear that your pg is going well, I agree with Mary, that is a lot of pressure needing to deal with Stella's issues and being pg at the same time. Hopefully Stella's problems can get resolved.

Joined: 11/23/07
Posts: 870

because i watch way too much TV- check your house for mold! its a hidden cause of severe allergic reactions like that!

i hope you find out a solution, that must be very difficult!

chelle.'s picture
Joined: 06/22/08
Posts: 33

I hope the allergist finds quick answers for you. Poor Stella. Sad

I'm glad your pregnancy is going well.

ELF331's picture
Joined: 06/22/08
Posts: 199

"gypsy86" wrote:

because i watch way too much TV- check your house for mold! its a hidden cause of severe allergic reactions like that!

i hope you find out a solution, that must be very difficult!

That's a good point, Jenni...
This just happened to one of my friends...his children were chronically ill, but they kind of chalked it up to "the age" - ya know, daycare germs and the like. Then he started getting sick and requiring asthma medications. He had his house checked and it turned out most of the issues stemed from mold. He showed me pics of it in his basement, YUCK! It's worth exploring if you're still searching for an answer.
I'm so sorry you're going through this! I hope she feels better soon!

Muddee's picture
Joined: 03/13/08
Posts: 2119

Sorry to hear what Stella is going through, hope you find out what is going on soon.

jonibug's picture
Joined: 11/27/06
Posts: 781

I'm sorry it has taken so long to get back to this, I'm still dealing with the emotions. We went to the allergist and Stella got her back pricked 70 times (very traumatizing for her). She ended up with severe allergies to egg and rice. The allergist said at this point it isn't life threatening so she doesn't need an epipen but it is important those two stay out of her diet for at least 3 years b/c at any time the allergy could change.

Doing day to day is difficult. Every day I think of something else she can't have and it depresses me. Trying to find recipes that she can eat and we all would enjoy depresses me. Almost all of our favorite places to eat aren't safe, not to mention a lot of them don't want to disclose their "secret" ingredients. Grocery shopping is a huge ordeal as I have to check every label, every time b/c manufacturers frequently change their ingredients. I have to watch her like a hawk until she knows better, she ate a bite of cake at a friend's place Thursday and had a reaction.

ELF331's picture
Joined: 06/22/08
Posts: 199

Oh my goodness, Joni. I really feel for you. My friend puts stickers on her child's clothing at gatherings that say - "I am allergic to such and such." She said she was a little embarrassed doing it at first, she felt like "that mom" but hey - you have to do what you have to do to keep your kid safe until they can understand everything.
Are there any support groups on the internet where you can hook up with other mothers going through this - ya know, share recipes and tips? I have a hard enough time thinking of what to make for dinner with no diet restrictions, so I imagine it's super challenging.
Big :bigarmhug: hugs!