Better news today

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Stormy Weather's picture
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Better news today

We had our follow up today after the worrying scan last week. A lot of our fears have been put away, thank goodness. Our little girl does have talipes on her right foot, but no other abnormalities. Her growth has caught up quite a bit, although she is still small she is into the 18th % now so not anything that would raise an eyebrow. And the consultant said her skull shape is normal, just that there is variation in these things. She is head down, moving a lot and looking very strong.

We will see a specialist to talk about the treatment for Talipes soon. From what I understand so far it can be quite a long process, and can be arduous, but it's not invasive surgery and shouldn't be painful for her. A great relief. It's also generally a successful treatment that means she'll end up able to do everything a normal child can.

No photo unfortunately. She was peeking out from behind a fibroid and all we could see was her eye! LOL!

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Glad everything looked so much better today! A mom on my 20 month old's birth board also had one foot affected and had surgery and wore corrective shoes all the time for a short while, then only at night--I believe until he is 4ish?? I have heard it is very correctable! Good luck with it!

Chris_85's picture
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so glad you got good news. Growth can also be hard to determine, i am sure she will catch up quickly. keep up the good work! Smile

stbernardlover's picture
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Sounds like a lot of relieving news. So glad for you. And they may not even be able to assess the growth that accurately with the presence of the fibroids...... Just a thought.

Lil Momma 1991's picture
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Whoot!!! I am super happy to read this! Glad that you got some relief!

pico83 (not verified)

:lurk:
I'm so glad you got good news!
I'm sorry I didn't see this early enough to comment on your first post. My sons have all had very oval heads (like Daddy) and I wish i could have told you not to worry about that. I hope the surgery for her foot goes well. I'm glad you can plan it out now.

Stormy Weather's picture
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Thanks Pico Smile

I've been looking at my son's head a lot lately and I'm sure his, and mine, is the same! For the foot we're hoping surgery won't be needed. The hospital here have a Ponseti trained practitioner, so the foot can be corrected non surgically over time with casts and corrective shoes. It can take a long time but is supposed to be much better in the long run for the health of the foot. We're feeling okay about it all, hoping we are lucky and she will tolerate the annoyances of it. They say it's not a painful treatment, so that's a huge plus.

"pico83" wrote:

:lurk:
I'm so glad you got good news!
I'm sorry I didn't see this early enough to comment on your first post. My sons have all had very oval heads (like Daddy) and I wish i could have told you not to worry about that. I hope the surgery for her foot goes well. I'm glad you can plan it out now.
pico83 (not verified)

That's great news!

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Sorry I'm late to respond, our household is all battling a cold. I'm glad you got some more answers since your first anatomy scan. The treatment for talipes is very promising for success without needing to resort to surgery. So many children come out of the progressive bracing and therapy able to participate in normal physical activities without any hinderances. Glad you will be able to work with someone trained in Ponseti method and have such a positive outlook Smile