Update on Wyatt: the good news is that his tests have come back, and they see an improvement in the prevalence of the neuroblastoma. The not-so-good news is that they have found some abnormal cells that they couldn't identify. So his marrow samples are being sent off to possibly figure out what the abnormality is.
Thanks so much for the prayers and good wishes. They are needed and oh-so-appreciated!
Hope things are going okay, haven't seen an update on the CB site lately.
She just updated!
Some good Wyatt news: the scans have shown an improvement in almost all areas. Unfortunately, the neuroblastoma cells are still in all of his bones, but there is still an improvement. He started round 3 of chemotherapy last night. This is a bad round. The two drugs that they are using are very strong--one can cause leukemia, and the other can cause hearing loss and kidney damage. His kidney function numbers are already on the low side, so please keep him in your thoughts and prayers.
Wyatt is now on a new anti-nausea med (he was on Zofran before), and it seems to be helping him out a lot. He's pretty much lost his appetite again though and is now saying his mouth hurts. They haven't seen any sores yet, but they are common among chemo patients, so they're keeping an eye out for them. He's really enjoying his music therapy and got to play with a harp, which was a new instrument for him. They sang about Batman since he was wearing Batman pajamas
Well, they were allowed to go home, but he had been throwing up so much, they had to go to urgent care to get some Zofran by IV on Sunday. Poor guy
He's still throwing up a lot and has no appetite Angie's DH is in the military, and they have applied to move where the best neuroblastoma specialist in the country is. This is also where Wyatt's stem cells are being kept. Please pray/send good thoughts that they are transferred there.
Sweet Wyatt is not doing well. He has been admitted to the hospital again. He's extremely lethargic, and his potassium and CO2 levels are low. His breathing is rapid, and metabolic acidosis was mentioned.
Please pray hard for them.
still praying for wyatt and his family. I really thought about them this week as my daughter had to be sedated at the hospital for some dental surgery. I thought how stressful this was for us and how hard it must be for little wyatt and his family. I cannot begin to imagine what they are going through and how hard it must be to watch your little baby go through this and know that you cannot take it away and you cant step in and take the pain or treatments for him. I will continue to pray for a recovery and for their transfer to be where they want to be. thank you for the updates
Thank you all for your prayers! two loves, my Luke had to have a small procedure to remove his tongue-tie when he was six months old. It was just a 10 minute procedure, and I got so scared. To have to live with that fear day in and day out, I really don't know how they do it.
They did a CT scan and found that his intestines are all swollen, and they think it is due to dehydration and the chemo. His CO2 and potassium levels are still low, so he's on IV potassium. The low CO2 was causing an irregular heartbeat, but it's under control now (thank goodness!). His tummy hurts, and he still throws up a lot. He also has a small fissure in his bum, so he's hurting there too. The good news is that he's not as lethargic as he has been, and they're keeping a very watchful eye on him in the hospital.
still thinking of him and the family! i'm glad he's not as lethargic and i'm glad they continue to keep an eye on things. thank you for the updates!
Wyatt is losing weight, but he's gotten a break from the throwing up. His energy is up a bit, and he's been more in the mood to play, so I think the weekend was pretty good to him
Wyatt's nose has been bleeding a lot, so they had to give him some platelets yesterday. His appetite is completely gone, and he's throwing up again. Poor baby, these chemo effects are absolutely gruesome
Wyatt has a FB page! Go over and like it, and if you can, send them a fire patch. https://www.facebook.com/PatchesandPrayersforWyatt
I just came here and tried 3 times to log in (seriously p.org??? and they say we're not "really" logging in twice - yeah right!) to say the same thing. Just read the latest of the caring bridge updates in tears after seeing the facebook page, poor little guy and his family. Rhys has been sick the last couple of weeks, just a throat infection but that helpless feeling is so awful, I can't even imagine what Wyatt's family are going through. SURELY we can help get him some badges, I'm going to try really hard to find some Australian ones for him, hope everyone here will try too
My hubby works for a local sewer/fire dept so maybe I can get him to get one for Wyatt. That's a GREAT idea!
Thanks, girls! Anything we can do to keep his spirits up.
His white blood cell count is up, but his platelet count and magnesium are low. He's now on magnesium supplements. His spirits were up for Easter, and his appetite is returning!
His appetite is way, way up! Round 4 of chemotherapy began yesterday, and they're expecting many more dangerous side effects. Please let this stuff get rid of that horrible, horrible cancer!
He's having trouble moving his bowels They are giving him stool softeners, so, hopefully, they will help. He's also starting physical and occupational therapy to help relieve his stiff joints (PT) and give him things to do (OT). They are back where they were for his round 2 treatments (this time with his older brother and sister), and they just got a spot at the Ronald McDonald house. Angie is sick with a cold or something, so she's happy that she doesn't have to be quarantined in their room at the hospital anymore.
He's finishing up round 4 and is being released today. The test results from the unknown cells are finally back, and it turns out that those cells are still neuroblastoma. Those tests are from a while ago, though, so maybe these last couple of rounds has finally knocked them out.
He's going to have a surgery on June 15th. It is going to be long and complicated.
He has had a wonderful weekend. They went to the aquarium and got to go to a Washington Huskies spring scrimmage. The sickies are returning, however, and he has already had to get an IV dose of Zofran. He's going to a doctor's appointment and clinic today.
He's really feeling the effects of the chemo now, poor dude He's very lethargic. He is loving all the fire patches that have come in though.
He has infections and sores all through his tract, from mouth to bottom Angie, Wyatt, and all the family need prayers right now.
Poor babe. Im still reading all the updates you post. Hows he doing now?
He is battling 3 infections and has a swollen tummy. They did a CT scan yesterday, but I don't know the results yet.
Some good news: his dad is getting approved to move out to the base that's close to the hospital where the neuroblastoma specialist is. The final approval isn't in yet, but it will be in soon (well, as soon as the Air Force red tape is worked through).
A fellow pg.org member who shares a board with Angie and me (kmkmom) has started a support site for Wyatt's family to cover expenses not covered by insurance (travelling, groceries, whatever they may need). It's a Give Forward site and is approved by the BBB. If you can't give or don't feel comfortable giving, your prayers are always appreciated :giveflower:
Angie just updated....his white blood cell count is up, and they're getting negatives on his bacterial cultures He's supposed to start round 5 of chemo on Tuesday, but they may hold off if he's not strong enough for it.
He's also in good spirits He's getting a little bit of energy back and was able to play for a good 5 minutes yesterday. Oh, how we take for granted how wonderful it is that our babes can play all day...
I'm sorry to have not seen this until now. I have two local friends with young children diagnosed with neuroblastoma in the last year...and I just looked at Wyatt's caringbridge site, and he is being treated at the same hospital as both of them...I wonder if they have met each other...
I will add Angie and Wyatt to my prayers.
Brittany, they might have met If you want, you can drop them a note on CaringBridge to tell them to look out for those families. It seems to me that Angie loves the connections she makes at the hospital. It's always nice to be with people who are going through what you're going through.
So, he's going to start his fifth round of chemo tomorrow (May 18 ). It will be the same stuff he had in round 3, so really strong stuff. He'll also have his surgery after this round, along with another scan. Please continue to send prayers and good thoughts their way. Angie said she's very nervous right now, so send some soothing vibes for her too. Thanks, girls
Wyatt is trooping on through Round 5 of his treatments. He's throwing up from time to time, but he's in good spirits. Go Wyatt, go!
Wyatt is having a rough time. He's not tolerating his oral meds, so he's now on IV drips. He had a bowel obstruction yesterday, but they finally were able to clear it. They don't know when they're going to leave the hospital this time Let's send lots of prayers and good thoughts their way....
poor little man, I hope he's feeling better soon. Thinking of him xx
Today (May 27), he had a platelet transfusion. He's still throwing up from the chemo, but they are hoping they'll get to go home to the Ronald McDonald House today.
A little story was done on a boy who is collecting patches for Wyatt in the Pittsburgh news (http://www.wtae.com/video/28043377/detail.html). It's wonderful that he's loved so much!
Poor Wyatt hasn't been able to leave the hospital He's been throwing up his feeding tube constantly. They tried him on a heavier weighted one, but he still kept throwing it up. Finally, they decided to make the switch to just IV feeds. Hopefully, he'll finally be able to bulk up that way. He needs to be strong for his surgery mid-month!
That poor baby...I hope his luck turns for the better soon-he needs to be able to leave and be a boy for awhile. Hope he gets feeling better
I am so sorry to hear about Wyatt. My heart breaks for him and his family. :openarms: I hope things get better for him soon!
I'm sorry I haven't been by to update! On Monday, they did a scan in preparation for his tumor operation on the 15th. Angie hasn't updated since then, so I'm not sure how it went. I'm hoping that they are all enjoying some good family time, and she's just too busy to say anything.
hope all is well for them. makes me nervous that she has not updated in a while. I follow them on caringbridge. just so sad. poor little man should not have to go through all of that, he should be out running around and playing and enjoying summer
Wonderfully fantastic news about Wyatt--the CT scan they did on Monday revealed that his tumor is shrinking!!!!!!!!! His surgery is still on for Wednesday.
oh wonderful news! I hope it keeps getting better for them and the surgery all goes smoothly
They're waiting to go back into surgery right now. Please pray for a safe operation and easy removal of tumor.
I'll be praying!
Thanks for all your prayers! The surgery is over, and the tumor was removed! It was golf-ball sized. Two calcified lymph nodes that were revealed during his scan were removed, and they even found two more that didn't show on the scan. All of his organs were preserved, and he didn't lose much blood.
Thats good news! Yay
Wyatt is still in a lot of pain from his surgery. The morphine just wasn't cutting it, so they they are using another drug called Dilaudid, which seems to be helping. Although they got that tumor out, he still has cancer in his bones, bone marrow, and lymph nodes. Poor bubby has a long, long road ahead of him. Angie is so thankful that the tumor is out, and she loves that everyone is praying so hard for him.
You all are wonderful to help them out by praying and thinking of him. Positive energy is helping him pull through, I think.
Wyatt has a fantastic appetite now!!! This makes me very happy, as for the longest time all he could eat was, say, one french fry. He does well during the day but is still having pain issues at night. They took him off his IV meds and are now giving him oral--hydrocodone at first and now oxycodone. They were talking about releasing him soon. He may have been released today (I'm not sure since there hasn't been an update yet, but with the pain issues if he hasn't been released, I think it's a good thing). I hope he heals quickly. Because of the chicken pox exposure, when he's released they cannot go back to the Ronald McDonald house, so they are going to have to stay in a hotel until July 6th. Thank you all so much for caring :giveflower:
Sweet Wyatt is still in the hospital, which is a good thing. He had been getting sick over and over again, and that was the reason for keeping him. It looks like they are getting that under control, so he's feeling better. His appetite has increased by leaps and bounds--last night he ate 4 pieces of toast minus the crust, 1/2 a piece of pizza, a few bites of bananas, a few bites of chocolate ice cream, and sour cream and onion chips. And he was able to walk all the way down the hall, his first walk since he sprained his ankle before the tumor surgery. So things are looking up
They got to go to the hotel on Sunday. Today, Tuesday, he's becoming inpatient again for his sixth round of chemo. He also has scans, tests, and a transplant in his future. They're hoping for 5 or fewer spots of cancer in his MIBG scan, and they think it's possible since his tumor had shrunk so much. Sending prayers for the chemo to get the cancer out of his bones!
Sweet man has now had another round of chemo. He was released but ended up back in the hospital with another round of infections. They're using some very strong antibiotics, and right now that's all that's fighting the bacteria (his white blood cell count is 0).
Angie has agreed to become part of a study of her hometown. There are quite a number of people her age from there whose children have cancer Hopefully, they'll be able to figure out what went down in the 80s and 90s where she grew up and prevent whatever it was from happening again.
Thank you all for continuing to think of Wyatt and send out prayers for them.
Wyatt is finally starting to make some white blood cells again. They believe his high fever (it went up to 104 F/ 40 C) has been caused by a fungal infection, so they have him on antifungal meds. Because of the infection, his transplant and restaging have been moved back a week or so. Poor baby
Huge, huge Wyatt news----the scan he had recently shows no uptake. If his marrow results come back clear, he will be NED (No Evidence of Disease). The possibility is so uplifting
Of course, there's still lots to do, many treatments and a transplant to undergo, but the possibility that that neuroblastoma is gone is very, very real!
They've moved into a house on base, and Wyatt is out of the hospital, so they don't have to worry about Ronald McDonald Houses or hotels or anything. Wyatt will be sharing a room with his big brother Bryson, and the kids are all happy to see their toys come out of hiding.