Daniel finally evaluated!

6 posts / 0 new
Last post
Nell4Him's picture
Joined: 10/25/06
Posts: 2455
Daniel finally evaluated!

Last Thursday (7/11), I took Daniel up to Eugene for an evaluation at the Childhood Developmental and Rehabilitation Center in Eugene, OR for his evaluation appointment due to his developmental delays. The following is from the report the doctor sent home with us. There will be more detail when his final report comes in about 4-6 weeks.


Diagnosis: Severe Global Developmental Delays, Borderline Metal Disability.


--------------------------------


Assessment Summary: Pedicatrics
Referred for concerns/questions regarding Developmental Delay.


Findings and Recommendations:
1. Typical Growth, minor issues with choking with solids and coughing with liquids, on dairy free diet... refer for medically-based Occupational Therapy for feeding support and to address sensory issues.
2. Sleep problems, delayed sleep onset but now sleeping through the night... consider trial of melatonin.
3. Not toilet trained, BM consistency issues.... Keep symptom diary, address toilet training in conjuction with school staff.
4. Fine motor delay and sensory issues... Refer to OT as above. (#1)
5. Ligamentous laxity with flexible flat feet... Wear shoes with stiff soles, medical arch which are lace up.
6. Stereotypic movement, no intervention needed.
7. Cognitive skills, estimated skills in borderline range, compuslive behavior/rigidities.... Continue in classroom services, would benefit from 4 day per week program, use picture schedules, also see report of CDRC pyschologist, PCP to obtain blood for CGH microarray and Fragile X DNA study.
8. Mixed receptive and espressive language disorder by history... Refer to private Speech/Language services.


Clinic follow-up: CD Clinic re-evaluation in 1 year. Devel Pediatric chart review over phone in 3 months.


------------------------------


Assessment Summary: Physical Therapy
For Concerns/Questions regarding possible autism vs. developmental delay.


Findings:
Daniel is a 4 y.o. male who does not meet criteria for a diagnosis of autism. He has appropriate social interactions and uses a variety of communication strategies to indicate wants and needs. That said, he does appear to have global delays, and functions as a child younger than his age. He also appears to have some possible sensory concern, poor registration of his internal environment (ie. Pain, needing to urinate, etc.) and some visual processing issues. He also has a strong need for consistency and routine. He may benifit from increased services to help him with school readiness.


Recommendations:


1. Refer for outpatient occupational therapy to work on fine motor and sensory concerns.


2. Suggest the family discuss services levels with IFSP team, as it does seem that the consistency of attending a program may help Daniel with learning.


---------------------------- End report copy ------------------------------


Basically, Daniel is being reccomended (and the doc wrote a "prescription" out for it) for 1x weekly OT during summer and 1x weekly Speech Therapy during the summer. They are reccomending 4 days of classroom setting preschool per week during the school year to prepare him for Kindergarten in Fall 2014.


They have ordered blood work for Daniel to rule out a genteitc mutation being the cause of his delays. They are anticipating a normal blood result (no mutation) but are ordering it just in case.


I am going to call the Dr. we saw and ask him that if he was evaluated 2 years ago (when we first started services with ECI) if it would have been an Autstim diagnosis because we have worked REALLY hard with him to get him where he is today. Brad and I agree that it wouldn't change anything for him now, but I'm curious.

StormSong's picture
Joined: 12/04/12
Posts: 54

Wow, how do you feel about all this? I have been away for a loooong time, so please forgive my not knowing anything. I'm glad you have a plan though. I'm completely out of my depth reading all that but it sounds like you have the support you need. x

Nell4Him's picture
Joined: 10/25/06
Posts: 2455

My gut says it's autism, but due to all our hard work the last 2 years, he no longer qualifies under that diagnosis. My stress levels have definitely decreased (or my stress response) since he was diagnosed with global delay by several docs. He saw 4 different specialists that morning. I'm living the life of a mom with a 6 year old (in character-my 9 year old with ADHD and ODD), an almost 3 year old (Daniel) and a 2 year old (my daughter who is 2 on Aug 29).

Anyone would be stressed. Smile

StormSong's picture
Joined: 12/04/12
Posts: 54

Absolutely right that anyone would be stressed! It's stressful enough being a parent at the best of times, never mind when you have added worry of battling for diagnosis. xxx

Joined: 11/23/07
Posts: 870

wow,you get to go to kindergarten in the fall? Ellie is 2.5 months too young, but i have her in a 2nd yr of head start based preschool this year. I hope therapy is working out for you!

Nell4Him's picture
Joined: 10/25/06
Posts: 2455

Today was week two of therapy, still trying to determine the best method of OT for him.

He won't be going to kindergarten til fall 2014.

At the end of this last school year they told me he'd be getting at least 3 days of school for this upcoming school year. The specialists recommend he gets at least 4... I registered him on Mon and they have him down for 2 half days and said they "can't" give him more cause they are so "full". This is the local division of the state program. Our system here sucks so bad!!! I'm so upset. I have highlighted every location on the reports that says what kind of therapy he should have and how often he should be in a school setting and took it in. I'm calling his teacher to find out who's balls I need to bust to get my son the help he needs!

I think it's bull crap that they say the state only gives them money for two days per child when I know they have more if you push.

Gah. I have to get off the computer, the topic is making me angry.