update on us!

4 posts / 0 new
Last post
Offline
Last seen: 1 year 6 months ago
Joined: 03/16/15
Posts: 53852
update on us!

I haven't updated in forever...btw I changed my username for privacy reasons but its me A*** red****ch**k. LOL

Sissy is doing good we just had a a break in her chemo and are ramping up for the second half of the cycle. This is where it could get harder, or not depending on how her body handles it. As of right now her neutrophil counts are starting to be low but not low enough to be worried just means her bone marrow is now starting to be affected. We had to take her to the ER last night for fevers...such is our life atm. Even a little cold with a fever could potentially put her in the hospital. But all is well this time she has a cold and her counts are fine atm. So we pretty much have to stick at home and I am not letting her play with my friends or their kids because I cannot trust anyone to keep their sick kids away from my sick kid (long story don't get me started...:rolleyes:)

I am doing okay I am just emotionally and mentally drained but we are getting on with it. Day by day and hopefully soon this will all be over...:confused:

I also shaved my head..yup you heard me right! I have NOOO hair! Some of you know all this from my facebook page, but some of you don't so I thought I would share. I did it for sissy and seeing all the hardships she faces but also to raise money for children cancer research. It has been one of the most rewarding things I have EVER done in my life. I will definitely do it again. I raised over 1,500 dollars with the help of my friends and family. It was awesome! I am not sad about my hair I do not miss it. It only validates my reasons for doing it when we go out together more people smile and try to interact with sissy instead of staring at her. It is a wonderful thing to see that we touch people lives and maybe raise awareness...

Anyway I am TRYING really hard to try to post more on here so forgive me if I miss important posts or have in the past...I"m gonna try harder ya'll!!!

I do not post our pictures over the internet, but if anyone wants to friend me on facebook send me a pm!

mwilliamson006's picture
Offline
Last seen: 3 years 3 weeks ago
Joined: 09/10/08
Posts: 928

Thank you for sharing! I do hope things start improving soon for you guys and especially your little one!:bigarmhug: I've been thinking about you guys alot from your last update. Prayers are with you all!

Muddee's picture
Offline
Last seen: 1 year 9 months ago
Joined: 03/13/08
Posts: 2119

Wow you are one strong mommy with one strong little girl. Your family is in my thoughts.

I love the fact that you shaved your head for a cause, DD1 (who is 12) and I are growing our hair to donate to charity.

Muddee's picture
Offline
Last seen: 1 year 9 months ago
Joined: 03/13/08
Posts: 2119

I did a cleaning of my facebook recently so I may have removed some people I hadn't heard from on here in a while I'd like to see some updates from you.

Here is my account info, just make sure you let me know you are from preg.org and your user name.
http://www.facebook.com/Muddee