Tegan's Spina Bifida - Revamped - Page 14
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Thread: Tegan's Spina Bifida - Revamped

  1. #131
    Posting Addict MrsRiggert's Avatar
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    I cannot believe how big Tegs is getting!!! I love her two front teeth! You and Hayley have been on a truely amazing journey and although it has been rocky at times you two have been nothing but strong.
    MEGAN



  2. #132
    Prolific Poster LucyBear's Avatar
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    Oh, thanks for an update! My goodness, she is just so beautiful. How blessed you are. Luke sends more hugs for Tegan!


  3. #133
    Posting Addict SID081108's Avatar
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    YAY I finally got to see the pictures! She is absolutely GORGEOUS! I am so jealous of those beautiful blue eyes
    CARRIE and DH 7/14/07
    SOPHIA 8/11/08
    LAYLA 3/24/11


  4. #134
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    she is such a sweetie!! Thanks for the update and pics!!
    DS 8/08
    M/C 10/10



    Make a pregnancy ticker

  5. #135
    Super Poster zoelynn's Avatar
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    These pictures are so amazing. She is absolutely beautifiul

  6. #136
    Mega Poster hr.lr.07's Avatar
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    Thankyou

    I am in the process of writing an update.. It may take a while but I am going to be awake for a while so why not
    Lea-Mama to Tegan, born 17/08/08 with Spina Bifida and Hydrocephalus

  7. #137
    Mega Poster hr.lr.07's Avatar
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    So here is a round about list of Tegan's hospital admissions to date - including surgeries etc. I'll add it to the first post when I am done.

    Aug. 17 08

    Tegan is born.
    Admitted into SCH at 1 hour old.

    Aug 18 08

    Defect in back is closed. (7 hour op.)

    Aug 27 08

    VP Shunt fitted

    Sept. 3 08

    More stitches added to Shunt

    Sept. 6 08

    Stitches added to shunt again

    Sept. 14

    Shunt revision (new parts added)

    Sept. 20

    More stitches added

    Sept 23

    Shunt taken out
    EVD inserted

    Sept 29

    EVD removed

    Oct 5

    Shunt #2 Inserted

    Oct 13

    Discharged from hospital

    2009

    April ??

    One night spent in SCH - told nothing was wrong

    April 16

    In hospital for 8 nights.
    MRI done under GA.


    So to date, Tegan has had 3 CT scans, 2 MRI scans, 9 operations and 10 General Anaesthetics.
    Lea-Mama to Tegan, born 17/08/08 with Spina Bifida and Hydrocephalus

  8. #138
    Mega Poster hr.lr.07's Avatar
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    So.. Most of you know that Tigs has something called Chiari Malformation (Type 2)

    Arnold-Chiari malformation is a malformation of the brain. It consists of a downward displacement of the cerebellar tonsils and the medulla through the foramen magnum, sometimes causing hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow being caused by phase difference in outflow and influx of blood in the vasculature of the brain.

    hiari is often associated with major headaches, sometimes mistaken for migraines. Chiari headaches usually include intense pressure in the back of the head, aggravated by Valsalva maneuvers, such as yawning, laughing, crying, coughing, sneezing or straining. Chiari also includes muscle weakness, facial pain, hearing problems, and extreme fatigue.
    We found out quite recently (about a month or so ago) that she needs an op to decompress the CMII. We are not looking forward to this as it is a very, very big operation and her having it will mean a long hospital stay and it will take a long time to rehabilitate her. I haven't come across anyone whose LO had the surgery so young (well I hadn't, I did just now) because they don't really do it unless they are having trouble breathing (Tegan has no problems with her breathing as of now) but I think the doctors think she will get worse. She has bad headaches - which she has meds for - but that is her only symptom so far. On doing more research I am starting to think that so long as her only symptom is the headaches we might try to put the surgery off as long as possible.
    Lea-Mama to Tegan, born 17/08/08 with Spina Bifida and Hydrocephalus

  9. #139
    Posting Addict SparkleMomma's Avatar
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    Hey stranger Just wanted to let you know that on the BD/SN board there is another Mom who's babe is about to undergo the same procedure. Sorry I didn't grab the link, but her screenname is Gillian_and_Bean.

    Now I am going to go check out the rest of your posts for my T fix

    Diane

  10. #140
    Mega Poster hr.lr.07's Avatar
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    Hey Diane

    I will pop over to the board right now.
    Lea-Mama to Tegan, born 17/08/08 with Spina Bifida and Hydrocephalus

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