Tegan's Spina Bifida - Revamped

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hr.lr.07's picture
Joined: 11/24/07
Posts: 178
Tegan's Spina Bifida - Revamped

I really hope you all don't mind that I've done this. I was thinking tonight, for various reasons, and decided I would like to get this thread going again. For one reason - it would be nice for it to be there, for other people who have LO's with SB to read. Reading it back, it makes me quite proud because I think I handled the situation well.

From now on I'll try my best to post updates on here again. We have 5 appointments within the next two months and I would be a board hog if I made separate threads Lol

To any of the new ladies, if you are reading this for the first time, it may make you cry. It may even confuse you. ROFL

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

First of all, baby is a girl. Smile We also found out she has Spina Bifida and we've been referred to a specialist hospital so they can see in more detail. We don't know HOW severe it is but we do know it isn't as severe as it can get. Sad
However this u/s turns out, it doesn't change the way we feel. SB babies have an 80% survival rate at the most severe the condition can get, so we have to feel good about that.

Not sure what else to say.. but.. other than the spinal defect baby looks fine and is growing at the correct rate. Will find out more at our u/s on thursday and will keep you all posted Smile

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

We found out today Tegan has lumbar-sacral spina bifida. I've been reffered for an MRI scan on Tuesday and will be seeing a neurosurgeon. The doctor said she'll more than likely be paralyzed from the waist down, have no bladder function and won't be able to open her bowels but, we can't know the full details until she's born.

Nothing will change the way we feel; she's our baby and she means the world to us Smile

She'll be operated on before she's 48 hours old and we have to go to a specialist hospital all the time now (an hours drive). I'll also give birth there.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

So, as today is Tuesday (haha gained two days.. not thursday :ROFL:), its time for another update! First things first, the MRI scan today was a very strange experience. I know if my partner wasn't in the room I could very easily have gotten really scared. I hate small spaces and only my head was poking out of that big machine! I don't know if you have Polo mints there (round with a little hole in the middle) but it was kinda like a giant one of those.

So we arrived at the hospital for 7.45am and followed the 'black line' (the hospital we're now using is one of the biggest in the north of the uk) to the MRI suite. And waited for ten minutes. A nurse came and told us that we had to remove all metallic objects from our bodies and I had to change out of my jeans into a very TIGHT pair of hospital trousers.

We talked a little, she gave us a little bit of advice an then we went into the room, I got on the bed thingy and they did the scan which lasted about 20-30 mins.

After this, we went into the little room where the images come up on the screen. The Dr. showed us every image of our little Tegan (who is still looking beautiful by the way) and went through them, in detail. She has fluid on her brain already, which means an early delivery - latest 34 weeks - and her spinal cord comes to the surface about level with her hips. She has a lovely liver, heart, face, her eyes are perfect, and she has chubby, gorgeous little baby legs Smile She is looking so big now!!

We know she'll probably have to be shunted at a very early age (they put a piece of plastic into the brain of baby - tube shaped - that goes down into the abdomen which then re-absorbs the cerebro-spinal fluid (fluid that is normally around the brain which cannot drain as Tegan's spinal cord is malformed). She'll also have surgery for the closure and a lot of other surgeries aswell, and will probably be born by c-sec.

So... I now have a maximum of 14 and a bit weeks before I am going to be meeting my little girl. I am really, really excited to meet her. I'll be having U/S's every two weeks which will watch the fluid on her brain and if it gets a lot worse, she'll be delivered before then. If she is a good girl and manages to be relatively OK until 30 weeks I have to have another MRI to give the paediatric neuro-surgeons a better image and so they have more idea what they will be operating on.

I cannot give that doctor enough credit, by the way. She was fantastic, and told us she saw a boy with worse SB than Tegan's running around the children's hospital when he was 2 and a half Biggrin

Aaaaand on a little less serious note... I was placed on my left side for the MRI, pillow between my legs, the works. Well, I went for a pee before hand but after about 20 mins or so in the machine, I kept feeling little pokes and jabs everywhere including my bladder. I felt like unless Tegan sat still and behaved, my bladder would spontaneously empty itself right there Lol So, the scan was finished. I didn't breath a word, but Tegan was moving so much and so fast all the pictures were blurry Biggrin She is such a character already, her way of saying.. "Ma!!!!!!! I know I'm gorgeous, but come onnn we need to get up and walk a little."

We also went shopping.. we know she'll be early, so we bought some early baby clothes which are cute and snuggly and I cannot wait to meet my baby. She means the world to me already.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Soo.. This isn't that much of an update but I had an appointment with the midwife today so I thought I might as well update here Smile

I think I have a UTI. Ive been having a few BH's every night but the other night after DTD I had one big contraction that was painful and really stopped me in my tracks. Also having trouble with needing to pee every 20 mins Sad

So we did the normal appointment thing, blood pressure (120/70 - normal for me), listened to babys heartbeat (which was normal) had my uterus measures - normal if not a little big, talked about what we need to do in case of an emergency (get an ambulance to the local hospital and be checked and then a transfer) and that was about it. Didn't get weighed, Or anything. So basically just a normal appointment Smile I have another one in three weeks time and I have to reschedule my the U/S because my lovely OH is taking me and my ever growing bump on holiday (vacation) for a week Biggrin

Hope you are all well Smile

New update to follow - will be in a separate post.

Added June 26 09

So here is a round about list of Tegan's hospital admissions to date - including surgeries etc. I'll add it to the first post when I am done.

Aug. 17 08

Tegan is born.
Admitted into SCH at 1 hour old.

Aug 18 08

Defect in back is closed. (7 hour op.)

Aug 27 08

VP Shunt fitted

Sept. 3 08

More stitches added to Shunt

Sept. 6 08

Stitches added to shunt again

Sept. 14

Shunt revision (new parts added)

Sept. 20

More stitches added

Sept 23

Shunt taken out
EVD inserted

Sept 29

EVD removed

Oct 5

Shunt #2 Inserted

Oct 13

Discharged from hospital

2009

April ??

One night spent in SCH - told nothing was wrong

April 16

In hospital for 8 nights.
MRI done under GA.

So to date, Tegan has had 3 CT scans, 2 MRI scans, 9 operations and 10 General Anaesthetics.

Joined: 12/25/07
Posts: 190

I'm sure she'll be precious and you'll have a fabulous family - I had my AFP screen a couple of weeks ago and another u/s tomorrow. I started my career in early childhood (many years ago) and worked with young children in all shapes and sizes, and they were all joys. You'll make it work!!

Joined: 12/18/07
Posts: 1

Oh my goodness, I'm sorry to hear about that diagnosis. I honestly don't know very much about SB but I hope it isn't too bad. (((HUGS)))

CONGRATS ON THE GIRL!! And I am glad she looks healthy in all other areas!!

lemonlemon's picture
Joined: 12/30/07
Posts: 1904

Congrats on your baby girl!!
I'm sorry to hear about the spinabifida, but glad your keeping a positive outlook! I have several family members who have it, and they are all quite normal (as much as can be considering they're my family and families are never normal! haha!!) Hope your next apt goes well!

liberty_rose's picture
Joined: 01/17/08
Posts: 64

Congrats on your girl!! Keep breathing, and know you'll get through whatever comes your way. :bighug:

k&jplus5's picture
Joined: 10/03/06
Posts: 345

Congrats on your baby girl!! I'm sorry to hear about the Spina Bifida diagnosis. Medicine has come a long, long way, and I'm sure everything will work out like it should! :bighug:

violetgrl's picture
Joined: 02/04/08
Posts: 181

great news about the baby girl and i think you still have room for lots of hope and good news!!

AmyJo86268's picture
Joined: 12/08/07
Posts: 1406

Congrats on a girl! I'm sorry to hear about Spina Bifida, however, good things can still happen for her. First off, she has a loving mother, right?!?! You'll get through it.

Joined: 03/16/15
Posts: 53852

I'm so sorry to hear about the SB! Sad This must have been quite a mix of emotions for you. I'm really happy to hear the baby is doing well, though! If I remember correctly, SB is one of those things that can either be very very mild or very very bad. Since you know it's not the worst, then WOOHOO! I've SEEN kids w/SB (my high school was the center for all handicapped kids in our county) who got along just fine aside from looking differently - they were completely normal otehrwise. Anyway, I hope I'm not just making it worse. I just wanted to say I'm thrilled you're having a girl and I'm really happy your baby girl is healthy for the most part and growing on schedule! Biggrin please KUP on how the next u/s goes!

LucyBear's picture
Joined: 09/29/07
Posts: 133

Congratulations on your girl! I love your positive attitude.
Please KUP and if you need to vent or get scared, we're here for you!

:bighug:

Joined: 01/02/07
Posts: 6

Lea - I know this news is a bit of a shock. I'm sorry the results weren't as great as we had all hoped. I'm not sure of your religious/spiritual position, but I'm one to hold very tightly to my faith....sometimes its all that gets me through...so that being said - I'll be praying for you, LO, and your SO. I have also asked some of my closest friends, who are also in ministry and spiritual leadership, to include you guys in their prayers as well. :bighug: anytime you need to talk, I'm here.

Joined: 10/22/06
Posts: 1033

Congrats on your beautiful baby girl, Lea. I am so sorry that you got the news she has SB. My DD has Down Syndrome. We didn't have a prenatal diagnosis and the news was a shock at birth, so I can relate to how you are feeling. Fortunately, the more you get to know your daughter, the more you will see your daughter and not her diagnosis. My daughter is perfection and yours is too. Please feel free to PM me if you ever need to talk and the ladies over on the birth defects and special needs board are wonderfully supportive (and helpful with all the ranges of emotions you go through). You, your SO and your perfect DD are in my thoughts and I hope you hear good news about the severity of the SB soon.

:bigarmhug:

smh
smh's picture
Joined: 08/14/03
Posts: 20

Congrats on your baby girl.

I'm sorry to hear about the diagnosis, but I hope the specialist will make you feel better.

Joined: 09/29/05
Posts: 826

Yay Smile You're having a little girl!!!

The SB diagnosis had to have been a shock. Sad I have strong faith--trust me, God can heal her without a single surgery, and it's what I'm praying for! ((BIG HUG)) If you need anything, I'm a PM away (since we're a continent away, I can't call).

Panonim's picture
Joined: 11/11/05
Posts: 439

Yay for a little girl!!! Biggrin Now you can go all out on dresses and girly clothes!

I'm sorry to hear of the SB diagnosis, wow, that must have been such a shock to hear. Sad I hope the next u/s is able to reveal as much info as you and the doctors need at this point. I hope your specialist(s) are compassionate, skilled, knowledgeable and helpful. I hope you and your SO are able to find as much support as you need/want. Best wishes to you and your family, we're thinking of you, and KUP of course!:bigarmhug:

Prudence's picture
Joined: 05/02/05
Posts: 256

Oh, sweetie- what a mixture of emotions! Congrats on your baby girl and we're here to listen to you whatever you need!!!!

aimee05's picture
Joined: 10/17/05
Posts: 111

CONGRATS on your baby girl!! im jealous! lol...i wanted a girl... oh well maybe next time! lol...

i hope everything turns out ok! KUP!

BrookeElise's picture
Joined: 12/20/07
Posts: 3

I envy your positive attitude Lea, much to be commended! Congrats on your baby girl- I am sure her US pics were just beautiful.
Hugs,

Joined: 03/16/15
Posts: 53852

Congrats on your baby girl!!! Smile I'm sure she will be perfect and precious and a complete joy to your life every single day. Smile

HawkIgirl's picture
Joined: 08/17/06
Posts: 109

I'm sorry about your news of spina bifida. My nephew has spina bifida....he's 15 years old now and he does just great. He even played on the basketball team in high school...he just can't play in high contact sports like football. PM me if you have any questions.

Joined: 03/16/15
Posts: 53852

"KarlysKBug" wrote:

Congrats on your beautiful baby girl, Lea. I am so sorry that you got the news she has SB. My DD has Down Syndrome. We didn't have a prenatal diagnosis and the news was a shock at birth, so I can relate to how you are feeling. Fortunately, the more you get to know your daughter, the more you will see your daughter and not her diagnosis. My daughter is perfection and yours is too. Please feel free to PM me if you ever need to talk and the ladies over on the birth defects and special needs board are wonderfully supportive (and helpful with all the ranges of emotions you go through). You, your SO and your perfect DD are in my thoughts and I hope you hear good news about the severity of the SB soon.

:bigarmhug:

What a lovely attitude Karly! I can only imagine how wonderful your daughter is. And yours will be too Lea! My dh's cousin has SB as well, and he is one of the most wonderful people you'll ever meet.

Joined: 03/16/15
Posts: 53852

I'm sorry to hear about the spina bifida. COngratulations on having a little girl!

OneLuckyLady's picture
Joined: 04/12/07
Posts: 129

Congrats on your baby girl!!!!! My DD was born with a birth defect that was undetected until birth. It's minor and doesn't affect her quality of life andI pray your DD has the same outcome. Just an FYI - the ladies on the birth defects board are wonderful. I'm not sure if any of their LO's have SB but it wouldn't hurt to ask. (((hugs)))

hr.lr.07's picture
Joined: 11/24/07
Posts: 178

I want so much to say thankyou to all of you personally but don't have time right now - I'll be back in the morning Smile

JackDogg's picture
Joined: 01/26/03
Posts: 272

First of all, congrats on your baby girl!

I'm very sorry to hear about your diagnosis. I don't know any children with spina bifida, but I do go to school with a woman who has it, and she is such a wonderful person. It's great that you have such a positive outlook about it, and if there's ever any days when you're feeling not so positive, we're always here to listen. :bighug:

Joined: 03/16/15
Posts: 53852

Congrats on your baby girl! I knew someone in graduate school who had SB, but don't know a whole lot about the condition. I hope that you are able to get support and knowledge that you need for her and your family!

sethsmommy05's picture
Joined: 07/10/06
Posts: 3

Im sure everything will turn out fine. Welcome to the pink team!!!

Joined: 03/16/15
Posts: 53852

Welcome to team PINK! will be thinking of you and baby. KUP

Joined: 03/16/15
Posts: 53852

Congrats on your little :sleepygirl: This must have been a day of mixture of emotions for you, Please KUP.

Joined: 08/28/07
Posts: 4

Congrats on your little girl! You have such a great additude! I am in Awe!
Sending lots of P&PTs.

Joined: 09/15/07
Posts: 16

Congrats on your baby girl. I'm sure you are dealing with quite a mix of emotions. I have a friend with spina bifida who is a successful lawyer in town and does very well. I hope everything works out okay. You will be in my thoughts and prayers.

Joined: 11/01/07
Posts: 650

Congrats on your baby girl. KUP on your visit with the specilaist.

Joined: 01/14/08
Posts: 1

Congratulations on the little girl. I had blue vibes for a while, but with as sick as I have been... I am starting to wonder. Girls are so adorable!

I am sorry to hear about the SB as well. My brother in law was born with it (so it runs in our family). He had a surgery right after birth and he is doing great. It is a relief to hear that it isn't the worst kind! Please let us know if there is anything we can do to help.

hr.lr.07's picture
Joined: 11/24/07
Posts: 178

PWammy - sorry I don't know your real name Lol You are so right, children do come in all shapes and sizes. Our little girl is different, but never so different that she isn't our little girl. Thankyou

Tracy - I didn't know much about it, and I can honeslty say I don't know a great deal now either, but I will educate myself so I can supply my daughters needs Smile :bighug:

lemonlemon - I'm glad to hear there are people in the world who have spina bifida and can live a normal life.

Liberty - I know, I will get through this and it doesn't change how I hold my little girl in my heart. Nothing ever will :bighug:

Kara - I was thinking that. In ten years, there could be a definite forever cure. Not to say there definately will be, but there COULD be. Smile

violetgrl - We do have room for hope adn good news - tomorrow will bring us an answer as to how severe her spina bifida is, and almost any news will be good news Smile

Amy - she does have a loving mother. She has a loving family, two loving parents and she will recieve everything we can give her.

Kristy - you didn't make it worse. My partner and I read all the replies last night and I will honestly say, every one made us smile. The doctor told us that apart from being physically disabled, there is a very high chance she will be mentally able and a normal girl in all other respects.

Andrea - it is scary and hard because at the end of the day we don't have a clue whats coming next. But staying positive is the only way to stay sane I think. That and trying to learn the most about SB that we can.

Stephanie - thankyou for your thoughts and prayers. Although I'm not really religious myself, my family is and I know how much it means to people. I can't thank you enough for having the time to spare for us.

Karly - your reply really meant something. I'm sorry about your little girl, I had no idea to be honest but I already believe our daughter is the most beautiful child we will ever see. She means so much to us already, I can't ever see that changing Smile :bighug:

smh - Thankyou for the congratulations. The specialist tomorrow is something I am dreading (we get to find out more, have an hour+ drive to get there) but very anxious to get here (we get to hear more, lol)

Rachael - thankyou. Yeah, we are having a little girl, and her name is Tegan Smile It was a shock, yes but as soon as we saw the u/s screen it was obvious there was something. Thankyou for your prayers, I appreciate it Smile

Nicole - The specialist we're going to are specialists in babies before they're born (not sure what the proper name for that is, lol) and just after - she's in the best hands now Smile Not sure how early she'll be born but we do know it'll be by c-sec.

Prudence - thankyou, because this board will be updated after every appointment Lol My partner has even started checking it when I'm not here :confused: lol

Aimee - Firstly, I love your little boys name, and he is a total stunner! Draven was a name we considered lol. And thankyou, lol, I knew she was a girl Smile

Brooke - I need to stay positive to stay sane Smile But I really do feel positive, I know we can do this because Tegan is really a big part of our lives already and always will be

Becky - She brings us joy already! Even though we knew there was something wrong on the u/s, she is beautiful, she was waving at the camera and kicking her little legs Smile

Kim - about your nephew, thankyou very much for telling us that Smile One of our biggest hopes is that Tegan will be able to lead a normal and healthy life after all the surgeries she may need when she is born.

Stacie - I actually have a cousin who has SB, on my dads side so I didn't know until I told my mum about Tegan. Thankyou

Nichole - Thankyou for the congratulations, and SB or not, Tegan will have the best life we are capable of giving her Smile

OneLuckyLady - I don't know your name, sorry.. But your daughter is beautiful Smile And I'm sure Tegan will be happy, if not completely healthy all the time. I posted on the Birth Defects board about an hour ago Smile

Jackie - Right now I'm going from positive to having a little cry with my partner and then back to positive again. I'm glad to hear about yor friend. Its great to hear about anyone with SB to be honest Smile

Larissa - again, thankyou for mentioning your friend with SB, because its so good to hear that people with SB can and do go on to graduate and do things in their lives. I love that. I'm sure we will get the support we need, and we are learning more every minute about SB.

Rebekah - firstly, congrats on your little girl! I know you wanted a little girl, to go with your two boys. I am happy for you! Biggrin Thankyou for your well wishes.

Jenny - thankyou for welcoming me to team Pink! I always thought I'd have a girl first lol. Thankyou for your thoughts Smile

Amber - it was a huge shock to the system. My partner had no idea what it was but when I started crying, that was it. Sad

RRDT - I don't actually know where this attitude came from, because when we first found out I started crying ad honestl y thought that was it, I'll cry forever now! Thankyou for the thoughts.

Sue - a lawyer? wow. I always wanted to be a lawyer Smile Thankyou for the thoughts and the mention of your friend, I appreciate it

Robin - congratulations on your boy!! I will KUP all the way Smile

kjt0011 - Thanks for the mention of your BIL. Glad he is doing well Smile and yes, girls are adorable! I've never been around a baby boy. Lol

And to end this very long post!! my partner has asked me to say thankyou to you all for the well wishes too, we have been reading all the replies together and we really appreciate it. I'll still try to be as active a participant on this board as I can because we are still having a baby, even if she is disabled. Thankyou all so much Smile :bighug:

Joined: 09/29/05
Posts: 826

Lea, just make sure you keep us updated on what's going on with the specialist (I'm sure you and dh will do that), because I know we all really DO care about you and Tegan (ohhh, I love her name!)

hr.lr.07's picture
Joined: 11/24/07
Posts: 178

Lol we picked the name out from the start! Ewan for a boy, Tegan for a girl Smile We will KUP as much as we can, by the time both me and my OH have been on you'll know as much as we do Lol

k&jplus5's picture
Joined: 10/03/06
Posts: 345

Lea, I seriously admire your strength and amazing positive attitude. And for you to take the time to personally thank all of us means so much! I look forward to hearing from you, and being here for you and your OH as your journey for Tegan continues. :bighug:

Joined: 10/22/06
Posts: 1033

Lea - I love your DD's name! I am glad you are getting some more information tomorrow, but advice that I wish I had, I will pass along to you...for what it's worth...

  • Doctors will talk about your DD's prognosis and it is easy to lose prospective that she is a person and not just a set of medical issues. Try to keep Tegan in the front of your mind and dealing with the SB will come naturally.
  • It all seems overwhelming at first...but honestly parenting is overwhelming period. Many people looking in on other's lives think it seems hard, but honestly when it is your child, it's not hard at all to do whatever you need to do to ensure they are happy and healthy...whether it is to make sure they get allergy treatments, chemotherapy, or the right baby bottle. No parenting is "easy" and people have looked at me and been sad that my DD has Down Syndrome, while I have looked at them and been sad that their child doesn't sleep through the night, etc...it's all a matter of perspective, KWIM?
  • It helps me not to routinely use the word disabled in regards to DD...first, she is a baby and has been very close to target on her milestones and second, like with your DD (or really any child), you never *really* know what her strengths will be. Beethoven was *technically* disabled, as he was deaf, but composed some beautiful symphonies. I know they are just words, but IMO, it helps to keep your mind open to the many possibilities your DD will show you for her life.

I hope your don't mind some of the rambling advice. Just a few things that were important for me to keep in mind, especially in the beginning. And please know that it does get so much easier. There is so much unknown in the beginning (and especially for you now, being pregnant and having so much time to wonder), but once your DD is here with her moms, the diagnosis really will become secondary to your wonderful life with her. I can't even tell you the difference the first year has made and how fast time flies. Much love to you guys.

hr.lr.07's picture
Joined: 11/24/07
Posts: 178

Thanks everyone Smile karly, I know it will be hard, especially if Tegan's SB is severe. Doctors will tell us its best to terminate... We have made up our minds completely and I will not be going to any appointments without my mother and partner for support. We have had offers from people, close family as well as friends who have said 'Once Tegan is born, if you want to go somewhere during the day, give us a call and we'll come to your house and look after her for a few hours' which really helps, because we know that if she is a severe case she'll need special care, which only the people who we educate about it will be able to provide.

I can't thank you girls enough, I really can't. My partner and I didn't expect nearly the number of responses, and we didn't think everyone would be as caring as they are.

As Tegan was conceived through AI, we used a sperm donor, and it is only possible to know the history of the donors family to a certain extent..

But anyway.. almost dinner time, no doubt either me or my partner will be back on here later. Love to you all, you are such a big support to us right now. xx

hr.lr.07's picture
Joined: 11/24/07
Posts: 178

Updated post at top

Joined: 11/29/04
Posts: 4

What a lucky little girl to have a mom who has such a postivie attitude. I am sorry you are having to deal with any complications, and I hope things turn out well for all of you.

Congratulations on a precious baby girl!

Joined: 10/22/06
Posts: 1033

Love your attitude about your lovely DD. She is lucky to have you and SO. And who knows...she might surprise everyone, since they do so much growing at this point. You guys will make it work and you won't remember what life was like before you met her.

:bigarmhug:

JackDogg's picture
Joined: 01/26/03
Posts: 272

:bighug:

I agree, you have such a wonderful attitude about this, and your daughter is very, very lucky to be born to you.

k&jplus5's picture
Joined: 10/03/06
Posts: 345

I have to say again how much I admire your strength. Tegan already knows how much you love her, and will take care of her. :bighug:

HawkIgirl's picture
Joined: 08/17/06
Posts: 109

Tegan is one lucky little girl to be coming into such a wonderful family! My prayers are with you during this time.

hr.lr.07's picture
Joined: 11/24/07
Posts: 178

Thanks everyone Smile We're doing our best to stay positive but as Karly said its hard with the doctors saying all they say.. Bleh lol

Joined: 12/19/07
Posts: 77

Your strength is so amazing and encouraging! Please know you'll be in our prayers.

Joined: 09/29/05
Posts: 826

"hr.lr.07" wrote:

We found out today Tegan has lumbar-sacral spina bifida. I've been reffered for an MRI scan on Tuesday and will be seeing a neurosurgeon. The doctor said she'll more than likely be paralyzed from the waist down, have no bladder function and won't be able to open her bowels but, we can't know the full details until she's born.

Nothing will change the way we feel; she's our baby and she means the world to us Smile

She'll be operated on before she's 48 hours old and we have to go to a specialist hospital all the time now (an hours drive). I'll also give birth there.

I hope what they're giving you is the worst case scenario. Nothing is stronger than a mother's love for her little one. Tegan is already blessed to have parents such as you. You're incredible, Lea, and I'm so proud of you for how you're handling all this--with a smile Smile

whitn23's picture
Joined: 12/24/06
Posts: 5

Congrats sweetie on your little girl!! :D:D:D:D

((HUGS)) I'm sorry about everything but keep your head up! I'm here if you need anything at all!

BrookeElise's picture
Joined: 12/20/07
Posts: 3

Tegan is a very lucky girl to have such great parents! I applaud your positive nature.

Joined: 03/16/15
Posts: 53852

:bigarmhug:

I believe that in a way children choose their parents before they are born -- Tegan is so lucky b/c she chose the best.

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