Ben's hospital stay

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ClairesMommy's picture
Joined: 08/15/06
Posts: 2299
Ben's hospital stay

Hi everyone. I'm finally able to log back in after being blocked for quite a while!

For the gals not on fb who don't know, Ben was admitted into the Children's Hospital last Wednesday night. He had been sick since the Sunday before - fever, cough, runny nose, ear infection. With his asthma we noticed he was working kind of hard at breathing - drawing in around his ribs and collar bones, etc. I took him to urgent care on Wed morning and they kept him for 7 hours on oxygen, ventolin, atrovent, dex. His oxygen sats were very low - mid 80s or so and even with all the meds he never got up over 90, which is the criteria for discharge. They said if he didn't improve they'd transfer him to the hospital, but he didn't improve and they discharged him anyway. He was okay for a few hours it seemed, but at 8pm we had to call 911 because he was really struggling to breathe. Sats in the ambulance were only 85. They put him on a nebulizer of ventolin and steroid which did help but he crashed when they removed it, so they put it back on. As soon as we got to the hospital he was worked up and the pedi said he would be admitted. We stayed in emerg for 20 hours until a bed became available on the unit. He was on oxygen continuously, Alvesco daily, 5 puffs of ventolin every 4 hours round the clock, dex daily, etc.

He was so sick that he couldn't even move his eyes to follow us - he just stared into space and if it wasn't for the monitors I would have probably thought he was...gulp...gone. They tried to wean him down of O2 on Friday, but he crashed again so they bumped him back up to a litre of O2. The head pedi came around with her team and she said "We'll take him off oxygen this afternoon and if he's okay we'll send him home today." :eek: I just looked at her and said "There's no way in you are discharging him from this hospital." She said "Well, we have a bed crisis" and I'm like "And just what does that have to do with MY son?????" A resident came back later and said "He needs the O2 and he's not ready to leave and I just wanted to reassure you he's not going anywhere for a few more days." Phew....

Saturday morning he was sitting up in bed and goes "Hi mommy". From that point it was all uphill! He was slowly weaned off oxygen and was completely off by noon on Saturday and kept his sats up way over 90. His lab tests came back positive for RSV, which can be very serious for preemies and kids with asthma or other lung issues. He is doing great now, but gets tired really easily, and he has a bunch of dr appts this week, plus a trip to the asthma clinic. He will be on Alvesco once daily for the foreseeable future, and the asthma nurse feels that since his trigger is viruses that he'll need to take the Alvesco daily from the start of school through til about May, every year. He still has ventolin for rescue, of course, plus the Singulair at bedtime.

Thanks to the fb-ers for all your thoughts and prayers over this very scary time.

beachbabe22's picture
Joined: 02/15/09
Posts: 19

Oh my goodness... I am so sorry you had to go thru this.. I am glad he is ok! RSV can be very scary... I work on a Pedi med/surg floor at a hospital and I work with alot of young children that have RSV...

I hope he continues to get better...

That doctor that told you he was going to be discharged because of a bed crisis should be written up.... im so sorry you had to deal with such an @$$ when you were going thru a rough time...

xoxo {{HUGS}}

tink9702's picture
Joined: 09/28/08
Posts: 2977

Holy moly! I'm so glad he is okay and is doing much better! How scary! What a terrible doctor, can't believe that's the head Pedi!!!! You don't discharge a toddler who can't breathe!!!!!!!

harmonybear's picture
Joined: 06/06/07
Posts: 639

Oh, how scary! I'm so glad he's doing better.

That better have been a severe "bed crisis"... It took you 20 hours to get into the pedi unit and then they were trying to push you out the door before he could breathe?! I'm speechless. :annoyed:

Joined: 07/30/06
Posts: 835

Oh wow, Lisa how did I miss this on facebook. Poor Ben! Poor you. I can't even begin to imagine. So glad he is better now and they have a plan for the future. As for the head pedi, I'd be putting in a complaint!!!

Mandie565's picture
Joined: 03/01/08
Posts: 693

I'm so glad he is doing better!!! How scary!!! As a person that works in a hospital I have to say that I had heads of departments and managment!!! All they see is the bottom line of how to get more Pt's in and out so they can bill more insurance's and don't deal with the Pt! They SUCK!!! I'm sorry they treated you like that. THere is no excuse in the world!!! Glad he was able to stay and finish getting the treatment he needed!!! :bigarmhugs:

ClairesMommy's picture
Joined: 08/15/06
Posts: 2299

"robgem" wrote:

Oh wow, Lisa how did I miss this on facebook. Poor Ben! Poor you. I can't even begin to imagine. So glad he is better now and they have a plan for the future. As for the head pedi, I'd be putting in a complaint!!!

I put in a complaint about the dr at the urgent care clinic who discharged him with the low oxygen saturations. There's a formal procedure being done right now regarding this whole thing about why he got sent home being so sick. The pedi in the hospital I'm not too concerned about. I did tell the patient concerns officer on the phone, but the bigger issue is the discharge on Wednesday.

bassicmama's picture
Joined: 06/05/06
Posts: 230

"robgem" wrote:

Oh wow, Lisa how did I miss this on facebook. Poor Ben! Poor you. I can't even begin to imagine. So glad he is better now and they have a plan for the future. As for the head pedi, I'd be putting in a complaint!!!

I have no idea how but I missed this on FB too, I'm so sorry Lis!!! Oh. Em. Gee. To have him *crashing* and then try to discharge him the same day before he's completely on the mend??? She's a whack job!! Its so sad that the pedi was worried about the bottom line, while the resident was concerned about patient care. Something very wrong with that picture. Good for you for standing up for him! I'm so glad he's doing better and that you have a detailed plan to prevent a recurrence. Ben is blessed to have you as his mama Smile Huge, huge hugs!!!

ClairesMommy's picture
Joined: 08/15/06
Posts: 2299

Get this: So DH was talking to his sis on the phone after Ben got released from the hospital, and she basically said that I've always been, in her mind, over paranoid about the kids' health. I love her, but I could've b!tch slapped her for that. DH says "She has never once been wrong about the kids needing medical attention and I'll stand behind her 100%". :clappy: for DH!!!!

Joined: 07/30/06
Posts: 835

Oh Lisa. I'd be FUMING!!!

bassicmama's picture
Joined: 06/05/06
Posts: 230

Good for him!!

Joined: 05/03/06
Posts: 84

Oh wow I had no idea. I'm so thankful that he is ok. That does sound very scary and I'm so glad they did not release him but would be perturbed they let him go the first time. At this time its more important that he is doing well. I'll keep him in my prayers.