Delia, or any other food allergy mama -

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MichiGal23's picture
Joined: 09/19/07
Posts: 152
Delia, or any other food allergy mama -

So we switched to soy formula and it really seemed to help the exczema a ton! However, Max is now spitting up more (he projected his entire bottle across the laundry room last night!) And seems to be coughing a lot (sounds almost congested). I'm thinking he might be allergic to soy as well now, but can he react in different ways like this? You had mentioned that Jeena was allergic to both. Did you have to go to one of the really expensive formulas like alimentum or nutrimagen? I'm calling the dr today (when they open), but just wanted to hear from your experience too. Oh, and if he is allergic to both, what would this mean as far as starting solids, what kind of stuff would we have to avoid?

Thanks!

harmonybear's picture
Joined: 06/06/07
Posts: 639

Projectile vomiting definitely sounds like a food allergy to me, though you should rule out a stomach bug first, I'd think.

I don't know too much about formula, but I believe the next step after soy formula is the expensive ones. And, unfortunately, babies with one food allergy are more likely to have others. This becomes really important when you're introducing solids, because you're going to have to evaluate each new food you put in his mouth to make sure you don't miss an allergy. You'll have to become good at reading labels, and in the end (especially if he has multiple allergies), you'll probably have to learn to make a lot of the foods yourself.

But hopefully it's just a dairy allergy and you won't really have to worry about it much! Smile

thinkinpositive's picture
Joined: 06/18/05
Posts: 18

Oh sweetie, I'm so sorry about your concerns and what happened when you introduced soy. Of course it's important not to over-react and jump to conclusions, so please don't think I'm trying to tell you that my story is yours, but here's where we are:

We deal with multiple food protein intolerances with T.J. that were first discovered by us through BFing. His first three months were miserable as I unknowingly ate a ton of his triggers (dairy and soy being the worst offenders through me). Once I dropped dairy and soy for two weeks we saw a whole new baby - and I continued a strict elimination diet while nursing him until he was nearly 16 months. It was really difficult and if this ends up to be what you're dealing with, I'll help in any way I can.

If we had gone the formula route immediately, T.J. would have been in very poor health, as it's believed he has FPIES (Food Protein Induced Enterocolitis Syndrome) Think of it as a delayed food allergy of the gut, where the body sees the food protein as a foreign invader and tries to expel it. Vomiting 2 hours after ingestion is a key sign, although not all children are sick like that and sometimes it takes longer. T.J. has extreme GI pain 6 hours after ingestion, for instance. Many shades of gray.

Anyway, we self-diagnosed MSPI (Milk and Soy Protein Intolerance) and forged ahead introducing solids at 6 months as per those guidelines, but soon learned the problem ran much deeper and he responded the same way when fed various foods directly. Today, at nearly 24 months, T.J.'s diet consists of 4 proteins, 5 veggies, 12 fruits and two 2 gluten-free grains.

We ended up supplementing with Neocate Jr. at 13 months and are nearly weaned off it, as it caused him severe constipation as he got older. Now I make all of his foods including a homemade coconut-based drink as a calorie/fat boost (not appropriate for infant formula).

I would start taking very detailed notes of what is going into and coming out of Max, even what time for a few days and see if any patterns develop. There are hydrolyzed formulas that are a step down from regular formulas but not the uber expensive amino acid based ones and many infants can tolerate them. Doctors usually recommend trying those before going to the Neocates or Elecares of the world - the "complete medical foods".

Keep us posted, hon and feel free to PM me if you have any further questions. I'm a very busy, stressed out Mama these days (which is why I'm AWOL here) but I care!

kristycoulter1's picture
Joined: 05/20/08
Posts: 625

"harmonybear" wrote:

Projectile vomiting definitely sounds like a food allergy to me, though you should rule out a stomach bug first, I'd think.

I agree with this totally.

Not sure what your situation is but my cousin was able to get Neocate covered by insurance so it's worth looking into.

As far as introducing new foods, it's just like any other baby where you do one at a time although allergists recomend waiting 5 days before introducing new foods to draw clearer lines if you see reactons. We were to impatient with that though. But we did stick to adding just one food at a time for a very long time. So nothing specific to avoid.... just being extra cautious/observant.

Good luck - hope he's not allergic to both!

babyJtime's picture
Joined: 05/23/05
Posts: 682

You've got great responses so far!

With Jeena, she was 6 months old when I went through the dairy/soy formula stuff and she was breastfed until then. I was told the allergist appt would be in 4-6 months so she could go on the really expensive formula or I could try to breastfeed again. Since I had only stopped breastfeeding 3 days before, she went right back to it. I cut out dairy/soy out of my diet.

You're right that allergies can show up in different ways. Rashes/hives is one way and vomiting/diarrhea is the other way. Even now, Maria reacts to dairy with eczema and reacts to soy with a bleeding bum rash.

What did the doctor say?

MichiGal23's picture
Joined: 09/19/07
Posts: 152

Thank you so much for all the info ladies!!

The nurse I talked to on the phone said that it sounds more like a cold and to give it a few days. Then yesterday afternoon, he had blood in his poopy diaper from straining or tearing and so I called again and they said to give him a tsp of prune juice in one bottle a day. However, this morning the exczema patches were back on his face even though I've been using the eucerin and cetaphil like crazy. So now I don't know what to do. If I'm not working tomorrow I will take him in.

babyJtime's picture
Joined: 05/23/05
Posts: 682

Ugg poor little guy!!! It sounding more and more like an allergy. Sad

Hope he can be seen soon and you can be on your way to a baby that's feeling better!

Hugs Mama!