Zoey developed a rash 3-4 weeks ago in one armpit. I assumed it was irritation. A week later it was in both armpits. Again, logic suggested we didn't rinse the soap off well, or that she was damp when we dressed her, etc. So I've been keeping an eye on it, rinsing her better, drying her better, dressing her in looser clothing, and so forth. She isn't bothered at all by it.
Fast forward to this weekend. It spread to her chest, back and neck. So this morning I knew she needed to see the doc. We went in and the nurse practitioner said it's petechiae, which is indicative of blood accumulating beneath the surface of the skin. It can be a sign of something very serious, and she wants us to have a ton of blood work drawn to look for clues as to what is going on inside of her body. Once her doctor is back from vacation in 2 days she'll be calling me and ordering the blood work. The nurse practitioner did not want to order the tests until then because she isn't as familiar with Zoey's overall health issues, and feels the doctor will be more thorough. So we'll get the orders on Thursday and go to the hospital that day for the blood work. It will be a lot of blood so she said we'll be sent up to the pediatric floor where they're better at this sort of thing than the basic lab.
She also said that the doctor will most definitely be exploring the possibility that Zoey does not have vertigo, that she isn't fussy all the time from teething, and that her lack of sleeping isn't related to dizzy spells. The nurse practitioner said that our current course of action needs to be seeing how these all go together as one complete syndrome.
I prodded and prodded until she gave me worst case scenarios. We're talking blood clotting disorders, organ failure, leukemia. Major things. Don't get me wrong, the "best" scenarios are things like anemia or various non-life threatening blood issues. But she said at this point, seeing the petechiae rash and Zoey's overall health picture, something tells her that there's something big going on here.
I feel like my heart has been ripped out. 6 months and no real answers. 6 months of knowing something is wrong. What am I going to do if I come to find out that my baby girl has leukemia or something major like that? Google is evil in and of itself but if I Google "dizziness, irritability, sleeplessness, petechiae" and a few other things, I'm coming up with tons of cancer websites. I'm smart enough not to diagnose her myself and freak out about this unnecessarily but really, I'm just at a point where I don't know how much more of this not knowing I can take.
I know she's not right. My gut tells me something is wrong. It's been telling me this for months. Little things about her just don't add up. I'm just so afraid. And mad. But more afraid than anything.:(