Totally crappy day

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ClairesMommy's picture
Joined: 08/15/06
Posts: 2299
Totally crappy day

Both kids had dr's appts this morning - DD for her urinary reflux issues and Ben had a pedi checkup. Claire has to have another sting procedure because she has had several UTIs since having her surgery a year ago. The urologist gave us the option of doing the voiding cystourethrogram again first, but it's an awful procedure done while she's fully awake. We did that last year - it's what gave us the diagnosis - so I see no need to put her through that again and the dr agreed. The scope under anaesthesia is much easier on her (though I don't really like the thought of her being put under again) and not only will it identify if the reflux is back but they can do the repair again at the same time.

Ben saw the pedi for a checkup. He's been going there since last fall because of his slow growth. The good news is that his growth is good and he's really jumped up quite a bit on the chart. Yay! However, the doctor read over the reports from when Ben had those bouts with pneumonia in March and May and he listened to his chest today (Ben is well right now - no cold or cough). Based on his past chest infections and breathing issues, coupled with the fact that it's never just a cold that he gets and it always turns into something worse, and with the fact that when the pedi listened to his chest today, the doctor has officially diagnosed Ben with asthma. It is triggered by viral infections and environmental stuff - like smoke from the fire when we go camping or pollen floating around in the air (and right now there is a TON of crap floating around - Erin and Ingrid can probably attest to all the white fluffy crap off the trees that's flying around right now). He is still waiting to get in to see an allergist, so we will have more answers as to what he's exactly allergic to once we have that testing done. So Ben is back on Singulair, which he took to control his nasal symptoms prior to having his adenoids out, and he has to take the steroid puffer twice a day. Ventolin we're supposed to use as needed if he gets really 'chesty' during a cold.

I feel like utter $hit right now. Blah. I can't say that I'm all that surprised by the diagnosis of asthma. I guess I kind of knew for some time that it was a real possibility. Just sucks to actually hear it. Sad

ekcanada's picture
Joined: 05/06/09
Posts: 1707

"Claire'sMommy" wrote:

The scope under anaesthesia is much easier on her (though I don't really like the thought of her being put under again) and not only will it identify if the reflux is back but they can do the repair again at the same time.:(

If it is not reflux, what could it be? Why would the surgery not work the first time?

"Claire'sMommy" wrote:

...the doctor has officially diagnosed Ben with asthma. It is triggered by viral infections and environmental stuff - like smoke from the fire when we go camping or pollen floating around in the air (and right now there is a TON of crap floating around - Erin and Ingrid can probably attest to all the white fluffy crap off the trees that's flying around right now). He is still waiting to get in to see an allergist, so we will have more answers as to what he's exactly allergic to once we have that testing done. So Ben is back on Singulair, which he took to control his nasal symptoms prior to having his adenoids out, and he has to take the steroid puffer twice a day. Ventolin we're supposed to use as needed if he gets really 'chesty' during a cold.

I feel like utter $hit right now. Blah. I can't say that I'm all that surprised by the diagnosis of asthma. I guess I kind of knew for some time that it was a real possibility. Just sucks to actually hear it. Sad

Did they say anything about him growing out of it or it getting worse?

I am so sorry the news today was so crappy!

Joined: 03/16/15
Posts: 53852

:bigarmhug: It is so upsetting to get not so good news about your kids' health, and you just got hit with a double whammy!
I hope Claire's scope and Ben's allergy tests will at least shed better light so that you know what you are dealing with.

MichiGal23's picture
Joined: 09/19/07
Posts: 152

I'm so sorry you had such a bummer of a day. I hope that Claire's reflux issues can be resolved this time. Poor girl with all of those UTI's. And I was wondering the same thing as PP, is there any chance of Ben's asthma going away? Good luck with getting some answers!

ClairesMommy's picture
Joined: 08/15/06
Posts: 2299

Erin, Claire definitely has reflux. It was plain as day in the VCUG last year. I asked today why she's still having UTIs and he said that the procedure is about 80% effective. He said that he occasionally will see kids whose first procedure doesn't quite work well enough because the gel they implant actually shrinks a bit, allowing holes to open to the ureters for the infected urine to travel up. I didn't realize how short the urethra is, either. He held up his fingers to show its length and it's probably less than 2 inches. I found that surprising. I don't know why. I guess the big answer about the surgery not working the first time is that it's kind of stop-gap measure instead of a permanent surgical procedure. They used to actually cut the ureters and reimplant them deeper into the bladder, but that's really invasive and has much more recovery time.

As far as Ben goes, I did ask about the prognosis - whether he'd have a chance of growing out of the asthma - and the pedi said that yes, as he gets bigger and his bronchioles grow that his airways will likely not be nearly as constricted as they get right now. He said he sees many kids grow out of their asthma around the age of 8 or so. I feel like I've been so blind to all of this, you know. I think that even today I was kind of like "Wha?????" Everything adds up though - starting as an infant he always sounded 'wet' in his chest and I could feel the rattling/gurgling in his lungs by just placing my hand on his back; all the coughs that ended up really terrible; the episodes of scary wheezing; his low oxygen levels when he did get a chest infection; the patches of eczema, etc. Well, at least we know, right?

isisgoddess_1's picture
Joined: 03/29/08
Posts: 1220

Sorry about all that is going on. I hope this procedure helps Claire out more. Josh is on the nebulizer twice a day for Asthma too. It really stinks, but I look forward to the day when he out grows it.