UPDATE-Been so MIA.. can I still ask for prayers? (OT)

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thinkinpositive's picture
Joined: 06/18/05
Posts: 18
UPDATE-Been so MIA.. can I still ask for prayers? (OT)

UPDATE Aug. 7: Thank-you so much everyone. I wanted to update that I have been officially diagnosed with optic neuritis and have presented with what seems to be an acute attack of MS. It got very scary at its worst a couple days ago with tingling/numbness all over the place, even my face and lips. I am in the middle of a strong treatment of steroids (IV then oral) and our plan is to force this beast into remission - FOR GOOD! I'll keep you posted.

Original post:

Hi gals. I am so sorry I've been away from here so much. T.J.'s pretty high maintenance with all of his dietary needs (multiple food protein intolerances). But I'm in the midst of a health scare and need all of the positive vibes I can gather going forward.

I had a sudden decrease in the vision of my right eye on July 5th and the suspected cause is either a stroke in the optic nerve or an inflammation of the nerve called optic neuritis. I've had an MRI of my brain to rule out brain tumor (most frightening time of my life waiting for that one) and passed from specialty to specialty (optometrist - retina specialist - neurologist - internist - ophthalmologist) and I'm completely uninsured. So this is a nightmare (financially, physically and emotionally) and I need a happy ending very soon!

Of course I'm not mentioning how tough it is to care for a busy toddler and keep doing everything that I do for him (I'm a SAHM and sometimes WAHM), making all of his foods, etc., dealing with food trials and watching for reactions with this worry and diminished sight.

I'm waiting for an appointment with a neuro-ophthalmologist (the top in the field for diagnosing and treating visual problems relating to the nervous system). The amazing ophthalmologist I found (the first doctor with a fantastic bedside manner I've dealt with) is helping me source one.

So if you're still reading, thank-you and please keep us in your thoughts and prayers.

Big Hugs,

H n' T.J.

isisgoddess_1's picture
Joined: 03/29/08
Posts: 1220

Welcome back. I am so happy to see you back here. I am sorry you have all that going on. I hope you find the source of the problem soon and it is eaisily fixable. I will keep you in my prayers.

AimeeLynne's picture
Joined: 09/29/08
Posts: 572

I'm sorry you have to go through all of this! I'm sure they will find a reason soon. I love TJ's picture in your siggy btw...such a handsome boy!

Joined: 03/16/15
Posts: 53852

What a scary thing to be going through on top of taking care of a high-needs toddler. My thoughts and prayers are with you. Please KUP when you can. :bigarmhug:

ekcanada's picture
Joined: 05/06/09
Posts: 1707

Thinking of you and your family!

Erin Elizabeth's picture
Joined: 10/18/08
Posts: 472

Oh Heather, I am so sorry for all that you are going through! I hope you get the answers you are looking for and a quick return to 100% health!

woelfelyojo6's picture
Joined: 01/15/09
Posts: 52

many positive thought, prayers, finger and toe crossing coming your way! I hope you and TJ and the Hubs get through this quickly!! Hugs!!

LittleMama07's picture
Joined: 03/09/08
Posts: 165

They say when it rains, it pours. Wish I had an 'umbrella' to give you! P & PT for you during this time. KUP when you can!!!

Coconut2's picture
Joined: 01/10/07
Posts: 443

I'm so sorry to hear you are going through this scary situation. Lot's of positive thoughts and prayers for you and your family. I hope you get through this quickly and with 100% health very soon. Please KUP on everything.

thinkinpositive's picture
Joined: 06/18/05
Posts: 18

bumping for my update at top

ekcanada's picture
Joined: 05/06/09
Posts: 1707

I was wondering if you would get an MS diagnosis.

My family is plagued with it. DH was diagnosed over 10 years ago, optical Neuritis being his main symptom (and double vision). His ON actually manifests physically as well (his one eye droops a little compared to the other). He has been on the drug Copaxone for the entire time and has had very few attacks since.

His Mom, His sister and his grandmother also have/had it.

My Mother has had it for almost 40 years and despite the occasional attack does not treat it.

I really think once the inital attack is over, you can really manage it providing it is the recurring/remitting type.

If you have any questions, please feel free to PM me!

I am glad they found a diagnosis and they are actively trying to make you feel better!

Erin Elizabeth's picture
Joined: 10/18/08
Posts: 472

Glad to hear they figured out what it is and that you are on meds for it now!! Hopefully it simmers down for you now!

Joined: 03/16/15
Posts: 53852

I'm glad you know what you are dealing with now, and my prayers are with you as you fight it into submission.

isisgoddess_1's picture
Joined: 03/29/08
Posts: 1220

I hope it heads into remission for you quickly and you dont have to deal with this again. Thought are with you.

bassicmama's picture
Joined: 06/05/06
Posts: 230

Thinking of you and praying for you, Heather! So scary, but I'm glad you know what you're fighting so you can throw all you have at it. I hope remission happens quickly and stays a loooong time!

**tess**'s picture
Joined: 10/13/08
Posts: 114

My prayers are with you and I'm glad to hear it's something that's probably treatable.

It must be especially stressful not having insurance.

harmonybear's picture
Joined: 06/06/07
Posts: 639

Oh, dear. MS is a scary diagnosis. I hope it's easily beaten into submission for you!

Joined: 05/03/06
Posts: 84

Heather I am so sorry to hear but glad you now know what it is and can kick its butt!!!! My thoughts & prayers are with you.