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Thread: Vasa Praevia - Are You At Risk?

  1. #21
    Posting Addict Uropachild's Avatar
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    Quote Originally Posted by faeriecurls View Post
    *lurker*

    Thanks for all of this information! I was just told I had a marginal placenta previa at my 20 week scan this morning. I have a mid-wife appointment tomorrow - I will definitely talk with her about this.

    I am so sorry you had to go through this, but thank you so much for educating people about this.
    Hi, did you speak to your midwife? What did she say?
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

  2. #22
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    Quote Originally Posted by SaucyVidel View Post
    I am always surprised when you mention you weren't routinely scanned for it - I've had ultrasounds of varying levels at different places for three pregnancies now and they ALWAYS scan for the blood vessel distribution and cord insertion on both sides. I asked my ultrasound tech about it at my NT scan and he says that in the US, at least, it is a routine screening in both the NT scan and the 20 week biophysical profile.

    Either way, it is great you pass on the information another this condition, as it is so tragic, but fortunately the obstetrical community seems to be erring more and more on the side of caution with placental issues in this country, at the very least.
    Yeah, i think the US is a bit more forthcoming with the screening for this. In the UK we have the NHS of course and because money is sooooooo tight, if they can't make the ££ stack up then they don't do it. They basically say that it doesn't happen enough to bother routinely scanning - so basically the deaths are at an acceptable level. BUT, the data they look at to get this infomration from is flawed. They look at death certificates only, when a lot of Vasa Praevia babies are stillborn. Plus, a Vasa Praevia diagnosis is rarely given in time for making out the death certificate. Zane's certificate lists 4 things, none of which is Vasa Praevia, so it's like he didn't die of that as far as statistics are concerned when in fact he did - the brief we received 3 months later told us he did. It's exasperating to say the least!!!
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

  3. #23
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    Quote Originally Posted by mommieleah View Post
    I have to say that with my 3 boys I don't remember them scanning for this. I can tell you that last week at my First Screening, they did check for it and showed the blood flow. It was neat to see that.
    Sarah, I followed your story back around the time you started posting about them and literally had no words. You are such a strong woman and I'm sure that all the information you are posting is helping many other women. You are such an inspiration and I totally admire you. You rock Mama!
    I'm so glad they checked you for Vasa Praevia this time, that's fab! xxx
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

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    Quote Originally Posted by BuckeyeK View Post
    That is good info - thanks for sharing!

    So sorry for the loss of your son I can't even imagine, especially knowing that it would have been entirely preventable.
    Thanks hun. xxx
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

  5. #25
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    Quote Originally Posted by KatieWantsABaby View Post
    Sarah, thank you so so much for posting this information. My heart goes out to you for the loss of your son, especially knowing it was entirely preventable. It's amazing that you are able to take such a tragedy and use the opportunity to educate those around you about this truly terrible condition.

    I seem to remember the tech turning on the color blood flow monitor during my 20-week scan with Ethan, so maybe that's why?

    I know that they used the color monitor to check for any kind of heartbeat during my m/c in December (just to be absolutely sure that there wasn't one).
    Yeah, it could have been for the cord insertion. They also use the blood flow check to look at the heart etc., as you sadly know.
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

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    Quote Originally Posted by rubber_da_glove View Post
    Your so lovely Sarah
    ::bigwetsnog::
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

  7. #27
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    Quote Originally Posted by Newlywed630 View Post
    Sarah, your such a amazing person to take this and help others. Thank you so much.

    Am I at risk? I have had 1 c/s and 1 d and c. At my 20 week scan with Trevor the u/s tech turned on color and looked things for a very long time. Would this be one of the things she was looking for?
    Yeah, you are in a risk group because of the surgeries. Definitely make sure they properly examine your placenta at your 20 week scan to look for cord insertion, placement etc. Like i said above.
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

  8. #28
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    Quote Originally Posted by TyrantOfTheWeek View Post



    Since when are you prego again!!! I quit stalking and look what happens...

    Awesome news!!
    YEAHIAM!!!!!

    Thanks chick!
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

  9. #29
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    I just want to echo what everyone else has said, that you are SO amazing! I honestly do not know how you do it, you deserve an award.

    My sister suffered a loss in 2001, baby was late and since meeting you I wonder now if VP had anything to do with it as there has never been an actual explanation as to why the baby died.

    How exactly if it hasn't been detected due pregnancy would they know the cause once baby is born?

    Keep up the fantabulous work you're dong lovely

    xx
    Me - Kristi, 30
    DD - Leia, July 5 2008

    I luurrrrrve to lurk!

  10. #30
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    Quote Originally Posted by Minx_Kristi View Post
    I just want to echo what everyone else has said, that you are SO amazing! I honestly do not know how you do it, you deserve an award.

    My sister suffered a loss in 2001, baby was late and since meeting you I wonder now if VP had anything to do with it as there has never been an actual explanation as to why the baby died.

    How exactly if it hasn't been detected due pregnancy would they know the cause once baby is born?

    Keep up the fantabulous work you're dong lovely

    xx
    Hey, i know you!

    I'm really sorry about your sisters loss. They only discovered that my loss was due to Vasa Praevia when they examined the placenta after delivery. They could see from that how the blood vessels were running through the membranes, instead of being inserted directly into the placenta.

    Did your sister have a post mortem or anything? Or a debriefing meeting at the hospital?
    Sarah
    Korben, 12 months
    Lyric, 34 months
    Ada, born sleeping, Sept 2007
    Zane, one day on earth, October 2006

    http://family-nelson.blogspot.com

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