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Thread: ~*~ Our Stories~*~ (High Risk Pregnancies)

  1. #11
    cocoblount
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    Hi Ladies,

    I am so glad this board was created.

    Here is my story:

    1st pregnancy when I was 18 yrs. old was wonderful until I hit 35 wks. I was diagnosed with preeclampsia and she was delivered that same day with no problems.

    I got married Oct. 2 2004 and in June 2005...

    2nd pregnancy - we were not really trying but we were so happy as my husband has no kids of his own. Everything was going great and then at 19wks I started bleeding. I went to the doctor and he told me I was 3 cm. dialated. I was rushed to the hospital where they wanted to do an emergency cerclage but then my water broke and I had to deliver my son, Christopher who died 1 hr. after being born on Sept. 28, 2005. We were devestated but still had faith and hope that we could try again.

    3rd pregnancy - we waited the 3 full cycles and in Jan 06 we started trying and in Feb 06 I got that positive and was elated b/c my doctor had set up a very good plan. I was set to get a cerclage at 14wks and see my doctor every 3 wks to check my cervix b/c we thought I had incompetent cervix. I got my cerclage at 14wks and everything was great and then at 20 wks here we go again bleeding so I go to the doctor and he says he can se the bag of waters so off to the hospital again and then my doctor examines me and notices that I am having contractions and I said that's what that is I have been having those for 2 weeks and I had them with the last pregnancy. So now we realize that my problem is that I am going into preterm labor but we don't know why. On June 9, 2006 my son, Ralph was born stillborn at 20wks after 12 hours of labor.

    I am totally hopeful that one day I will be able to have another baby. My doctor has referred me to one of the top high risk specialists in NY and I will be making an appt with him in Oct. for a pre-conception appointment as I want to try to find out why I am going into preterm labor and what we can do to sustain another pregnancy before I get pregnant. We do hope to start trying to conceive in the Spring of 2007.

  2. #12
    Posting Addict SparkleMomma's Avatar
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    My name is Diane & I am 29 years old. Although I am not PG, I will always be considered high risk. I have 2 beautiful Ds's. Liam will be 6 in October & Mikey will be 3 in December. I have had 3 MC's, the loss of 4 baby's {2 PG was with Heterotopic twins}.

    I found out while I was PG the first time in 98 that I have basically 2 uterus'. Sometimes it is considered Bicornuate, but my septum comes so low, that it is basically split in tow. My right side is the bigger side.

    All 3 of my MC have been carried in my right side & my boys were in my left!

    Because of this, I have PPH {very severe with Liam, not so severe with Mikey, although both needed sugery to stop}. I also have a higher chance of PTL, as there is basically only half the room for the baby to grow. I have been warned of 28 weekers and such. BUT!!! Liam was a bit early~34 weeks & Mikey, although he had PROM at 20 weeks, he was born at 38 weeks!!!

    I currently have a Mirena IUD, but recently found out it is in my right uterus, so have been warned that yes, I can still get PG in my left uterus

    I have also been advised that it probably isn't the best idea to get PG past 30, but I am not sure. I still feel like I want/need one more, KWIM? This baby itch is fierce!!!

    Thanks for reading this far!

  3. #13
    Posting Addict mommytime's Avatar
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    hey guys my names Dusti i'm 26 i have 4 children shaila is 6 the twins kiyah an mataiah are 3 an my son EQuaic is 1 an i am currently preg with #5. i had toxemia with my first pregnancy an pre-e with every pregnancy since. i had prom with the twins at 16 weeks an there placenta started to peel around 26 weeks. then i have always been induced one vaginal an 2 c-sec due to it. my baby due on x-mas day but i'll have a scheduled c-sec around 2 weeks early. i have allready been put on methadopa for my bp, i've been leaking fluid since 13-15 weeks and bleeding since 15 all u/s show everything is fine with placenta. Dr says u can only c 20% of peels on u/s but at 21 week u/s they were able to see the amniotic fluid outside of the sac, so its a only time will tell type thing, i love to chat an am pretty smart when it comes to this preg type thing an have delt with the pre-e in every preg so i am a good resorse an love to help, but i have those times where i to need reasurance so i am eager to meet you guys

    ~Dusti~

    "When you judge another, you do not define them, you define yourself."
    -- Wayne Dyer (Psychotherapist, Author and Speaker)


    Learn from the mistakes of others. You can't live long enough to make them all yourself.
    --Eleanor Roosevelt

  4. #14
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    I just found this board and wish that I came here during my pregnancy. I'm not currently pregnant but I went through problems conceiving and a high risk pregnancy. I will always be high risk.

    My DH and I started to TTC in Spring '04 and were not having any luck conceiving and my periods completely stopped after going off BCP. So I started going to my gyno and he ran a series of tests on me before starting me on Clomid. During a routine u/s he saw a problem with my uterus. I had to then have an HSG, where it was discovered that I have an unicornuate uterus. From there, I had to have an u/s to see if I had 2 kidneys (common to have 1 with unicornuate uterus), luckily I have 2! Then I started on Clomid and was able to conceive on the third round. I then started seeing a perintologist every two weeks and had many u/s. I was able to carry my son to term (39 wks), which is the major concern with an unicoruate uterus.

    Manuelita - You and I both have unicornuate uteruses. I know it is a very scary diagnosis. I too started reading many things on the internet that made me so nervous. On the other hand, I also found info that was reassuring. If you have any questions or just wanted to talk, feel free to PM me. GL
    Rachel
    DH Brian
    DS Matthew 6/13/06
    m/c 8/09 & 7/10

  5. #15
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    Hi my name is Becky and I just discovered this board. I am glad I found it though! Here is our story....

    I was diagnosed with PCOS at 19. At 21 I had to have a cervical cone done due to precancerous cervical cells. I was told then that I would be high risk in any pg b/c of the risk of incompetent cervix. With the PCOS I had a lot of difficulty concieving but I finally did when I switched dr's and found one that would actually listen to me.

    We were put on the Prochieve cycle (clomid, estradiol, and progesterone suppositories through 12 wks if confirmed pg) in May of 2004. On June 3 we found out we were pg. At 8 wks I was diagnosed with subchronic hemorrage. It resolved itself at 18 wks. I was checked for incompetent cervix and everything looked good so they decided not to do cerclage. Everything seemed textbook throughout the 2ns trimester and we found out we were having a little boy. We were thrilled. I was then diagnosed with GD but able to control it with diet. Then at 11 pm on November 29 I had a huge gush of blood. I was 29 wks 6 days. I was rushed to the ER and less than 2 hrs later I was airlifted to a special high risk unit about an hour and a half from our home. I was on Terbut and Mag sul to help stop the contrax. They got those under control and I was kept monitored. On my 11th day of hospitalization, I started having a ton of contrax, but no one would believe I was in labor. I was 31 wks 1day. I finally got the nurse to call the dr in so I could talk to him. My DH came at 11:30 and the dr walked in right behind him. They decided to transfer me to l&d for monitoring. They let me eat lunch and finally checked me around 1 that afternoon. (I had been telling them I was in labor since about 9 am.) I was 5 cm. The dr stopped the mag and trasferred me to a birthing room. Our DS came into this world hollering up a storm at 4:52 pm. He was 3 lbs 14 oz. After 24 days in the hospital we were able to bring him home. 2 wks after he was born they finally told us I had an abruption and that I was at a high risk for a second more than most, b/c the risk increases with how early you have one. I was told not to get pg without monitoring from an OB.

    Fast forward to Jan of 06. I decided I would love to try to have another baby and so I scheduled an OB appt to talk to the dr and see what his recommendation was as to how we should proceed and what precautions we would need to take from the beginning. We did everything we were instructed to do including me losing a few lbs. I was put through some blood work and they decided it was safe to start the prochieve cycle again since that had worked the first time. We started that in April. No luck. May came and on May 31 we found out we were expecting our 2nd. I went in for an early u/s at 7 wks and was told everything looked great. I was put on reg visits until 16 wks. At 16 wks were checked again for incompetent cervix and referred to Maternal fetal medicine dept. I was watched until 24 weeks and then they started testing. My reg OB thought I showed signs of a clotting disorder based on my history, so he decided to test for it. He was right. They diagnosed MTHRF and a Protein-S deficiency. I was diagnosed GD at the same time so they had me keep track of my numbers for a week. They statred me on Lovenox and the next day I started insulin as well. I have been going in for weekly checks since 26 wks. I have been having BPP's and NST's since 28wks. So far so good. I started 2x a wk appts at 30wks. I am now in the home stretch. I am scheduled for an amnio on 1/15/07 to see if our little boy's lungs are developed. If they are they will induce me that day. If not I will be sent home and then we will go to plan B.

    I am so glad I found this board. I look forwards to getting to know everyone.
    Becky


  6. #16
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    Hey everyone. Here is my story.
    I am 30, my dh is 36. We have our dd, Emily who just turned 11.
    When I had my emergency c-section with Emily I was just about 4 weeks over-due. I developed a severe infection that resulted in a long term autoimmune illness that would eventually develop into end stage renal disease.
    In 2003 I started dialysis. In July of 2004 I got the phone call that I had a kidney that was a perfect match being flown to Nashville and to get to the hospital straight away.
    Now, 2.5 years later dh and I have finally been told it is okay to try to have another child. We are currently doing in-vitro because in 2000 I had a tubal after a miscarriage due to my kidney disease.
    The risk to the kidney during pregnancy is very slight, it will actually perform better during a pregnancy because pregnancy is an immune suppressed state. We will chance one of my anit-rejection medications, cellcept, to imuran before an embryo transfer as cellcept is fatal to fetal development but after that the nephrologist feels I should do fine. I will be high risk because my chance for miscarriage with just one baby in the first trimester will be 35%, twins will increase that slightly. After the first trimester my risk for miscarriage will drop to 15%. I will be at high risk for infection, especially uti and kidney. I also have a 50% chance of developing pre-eclampsia and will certainly develop hypertension. If at any point in the pregnancy my health is at risk they will deliver the baby.

    I know that it is very risky and we have considered the odds. But we feel confident that if we are lucky enough to achieve a pregnancy that certainly with all of the doctors and knowledge we have things will turn out okay. We feel we have to try or we will regret never giving it a chance for the rest of our lives.
    I hope to join you guys soon! My first cycle is right around the corner.

  7. #17
    jencalsi
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    Default My Story

    DH and I were married almost 3 years ago. About 2 weeks before our wedding I was in severe pain on my left side. I have an auto immune liver disease and terrible kidney stones. I thought it was just another kidney stone. DH took me to the ER where the nurse confirmed that I was pregnant. I was totally shocked. IN the matter of 10 minutes I learned I was pregnent, going in for emergency surgery and I was losing the baby. I had an ectopic pregnancy. The following day my Ob and liver MDs came to see me and discussed my options for pregnancy in the future. I did lose my left tube so I only have the right one left. After 2 years of saying if it happens then it happens, I told both my gyno and liver MDs that we were ready to try and needed help. I had an HSG which showed the right tube was all clear. Gyno put me on Clomid and it worked on the 4th cycle! DH and I are so excited. I am 27 weeks right now, I'm considered High Risk because of my liver disease but so far everything has been perfect! I see my OB and high risk MD every 4 weeks and I get to see my little guy on ultrasound once a month!!! This is our little miracle baby!!!

  8. #18
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    Hi - I'm Tabitha, and I just found this board.. wish I knew about it my last pregnancy it would have been such a great resource! Here's my story...

    I'll start with a little back ground leading up to some discoveries... I started taking Ortho Evra when I was 17 - had my first boyfriend, wanted to have sex so I talked to my mom and thought I was smart, so that's the route we chose. About 5 or 6 months into the patch I noticed some redness/tenderness on my right ankle/calf, thought nothing of it but it was persistent and didn't go away. I worked retail at the time, so I was constantly on my feet. Luckily one day a paramedic came into the store and we made small talk, I asked her to look at my leg and she thought it was a possible DVT. I made an appointment with my pedi at the time, and it was confirmed by Echo that it was a DVT. By that time it was already in my popliteal area (behind my knee) and was moving on up into my femoral area. I started Lovenox that day through home-health and was put on Coumadin for a year (joy). That event was over, and not much more was said.

    Move forward to 2006 - I had issues with my ovaries, constant pain. Went in for an US at my OB and found I had an almost 9cm cyst on my right ovary. They scheduled surgery (June 30, 06), and thought I was going to lose the ovary and tube because the risk of twisting and loss of blood supply. They told me it was a possiblity, but it may not happen. I also had my cervix lasered (was diagnosed with Highrisk HPV) and they also did a hystero. just to check if I was even able to get preggo. After surgery I was fine, for about a month and a half... until the pain came back. Thought I was going to have surgery again, went in for an US - they found nothing. Said they wanted me to go to the ER for a abd/pelvis CT to check my pancreas and spleen, but before they did they wanted to give me a pregnancy test. I took it, not even thinking there was a chance in hell, and low and behold it was positive. That day my world changed - I thought for the worse, but SO much for the better.

    I saw my OB regularly, and mentioned the DVT I had previously. She thought I needed to be on Heparin ASAP, gave me a prescription and set me up with Maternal/Fetal Medicine. Come to find out I have Homozygous MTHFR (2 abnormal genes). I was on Heparin 2x a day, which moved to 3x once I hit my 3rd trimester. I continued to see the OB regularly, as well as the highrisk OB. Once I hit 34 weeks, the appointments changed to 2x a week. One day I'd have a color flow doppler, the next I'd have a NST. Everything looked good, and an induction date was set for May 2nd, 07. They told me that I'd stop the Heparin 48hrs before the date, that way it was able to clear my system. I went in for induction - total breeze, Cole came out screaming at 4:20pm 5.2.07 after 6 minutes of pushing. I had an episiotomy, and that was rough - still have issues 13 months later.

    Fast forward to today 6.15.08 - I'm currently going on 19wks with a little girl (Kelsey), and see same OB/Highrisk. This time I'm on Lovenox 2x a day because of the recent recall of Heparin. I've had my NT scan done, and all looks well (DH's nephew has Down's pretty severly). I also have a placenta previa - it started out as a marginal, but the scans I've had at work (I'm an x-ray tech, my close gf is a sonographer ) shows that it's a complete. I had a feeling this time around I'd be have a c-section, but I should find out more on 6.27 when I have another US and blood work checkup. This is my final pregnancy - Dh and I are done, we're ready to stop with the shots, the stress and my female issues. I'm having a hysterectomy ASAP after Kelsey is born, they'll leave in the left tube since it hasn't given me much trouble. DH is also thinking of a vasectomy in the mean time so we don't wind up preggo again *haha*.

    I'd just like to say that so many of you ladies on here have gone through SO much more, and I am just grateful I have healthy children. I have no right to complain - and you deserve MAJOR kudo's for all you've endoured. I wish you all the VERY best!
    Tabitha... proud wife to Jimmy 7.18.08
    Mama to C & K

  9. #19
    Posting Addict yipeeladybug's Avatar
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    I'm so happy I found this board. I just found out I'm preggo, I had a BFP on Father's Day. So it was a long journey to get to this point, and here's my story:

    I was diagnosed with kidney disease when I was 19, but as the drs couldn't do anything for me (I had 100% function at the time), I just kept on my life. Then in '99, I was found to have only 50% function. At that time, I had just met my DH, and wasn't thinking of preg. We just started dating. In 2003, we got married and thought maybe we could wait 2 yrs before TTC. But when I asked my nephrologist some questions about it, I was shocked to find that - at 30% function, it was already too late, I had lost most of my ferility!!

    Despite managing my kidney disease, I still kept losing kidney function. I was scheduled Apr 26, 2006 for a kidney transplant, thanks to my DH, who turned out to be a suitable kidney match for me. However, 2 wks before the transplant operation, I ended up in ER with a creatinine of over 1000 and feeling so horrible in so many ways. I had to go on dialysis for 2 wks before the transplant operation.

    Luckily the transplant operation went really well. For the 1st 6 months, everything was perfect. Then I was diagnosed with a BK virus, which can scar and wreck your kidney transplant in a matter of weeks. Fortunately, they had just started routine BK virus screening, caught it early, and then had just put together a drug protocol which they weren't sure would work, but were guessing it should, based on the various drug properties.

    I was sooooooo fortunate, in that I was the first one who was successfully treated for BK virus on that drug protocol and then the first one who was taken off that drug protocol and declared "BK-virus-free".

    At first, that neph wanted me to wait another 18-24 mths before TTC, which devastated me, as I was already 36 at that point. But a few weeks later on, she decided that it was ok and as of last Nov, gave the green light to TTC.

    I had a routine biopsy in April and it was discovered in May that I had some low level rejection (so low, you couldn't see it in the bloodwork). Altho the neph was concerned and would have preferred I switched drugs and stop TTC, the neph knew how much we wanted kids and recommended staying the course instead. That was in early June.

    Then I discovered on Father's Day that I was preggo. I confirmed it yesterday with my GP. I was so excited but also very scared. I am willing to risk it, but I hope that my baby will be ok.

    ~Sophia
    Sophia 41, DH 36


  10. #20
    Prolific Poster kimlambert's Avatar
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    Red face Older pregnacy

    I am 43 years old and 9 weeks, 3 days pregnant. We were not trying, it just happened and I couldn't be happier. I guess, because of my age, this puts me at high risk (well, I also have high blood pressure that my dr is watching closely, as well)
    There are women in their 40's in the Jan 2010 board but I have them all beat by 2 yrs. I keep getting the same from everyone,"A lot of women are waiting until "later in life" to have babies" I don't mind this comment, I just think it's funny because we weren't trying!
    Good luck to all of you!! I hope to get to know you better in these next few months!

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