Isaiah has surgery on 1/23 - Page 2
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Thread: Isaiah has surgery on 1/23

  1. #11
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    My thoughts and prayers are with you and your family. I would be a nervous wreck!
    ~Janae
    Chase-13, Trey-11, Layton-9, Zander-5, McKay-3, Declan-1, Keely born 9/6/2012

    2/25/10

  2. #12
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    Thanks. The antibiotics are helping, and he has slept through the night 3 of the last 4 nights, which is better than he has slept in months. I'm trying not to think about the surgery, because I need to be able to function as a mom right now. I can't believe it's barely a week away.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  3. #13
    Posting Addict Starryblue702's Avatar
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    Sending T&P your way! I hope everything goes well!
    Krystal & Donovan - 12/2/06
    Reagan - 10/2/02
    Maximus - 3/10/05
    Liberty - 12/11/08
    Trystan- 11/22/11
    My angel in Heaven 1/7/13

  4. #14
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    How is everything going?
    ~Janae
    Chase-13, Trey-11, Layton-9, Zander-5, McKay-3, Declan-1, Keely born 9/6/2012

    2/25/10

  5. #15
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    Quote Originally Posted by Lots-o-Tots View Post
    Thinking of you. I don't know the back story . . . can you fill me in?
    Sorry, I missed responding to this earlier. Isaiah has a neurological condition called dopa-responsive dystonia. Kids that have it often move like kids with cerebral palsy, but chemically, they are closer to Parkinson's patients. Back in December of 2010, the pharmacy gave him the wrong medications, and it sent his disorder into hyper-drive. Ever since then, he's been needing more and more medication to keep his movement under control, causing him to be on well over the recommended maximum dose for a child his age and size. This is why he needed the DBS.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  6. #16
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    -XP- Surgery went very smoothly. We have had a few bumps along the way. For instance, he pulled out his catheter and hurt himself, so every time he pees now, it's a painful ordeal. And he's having trouble swallowing, so we had him on tube feeds, but he threw up, so now he's back on IV fluids. The good news in all this is that they turned on his unit, and he's actually doing well. He hasn't needed an extra dose of medicine all day, even though before we went into the hospital he was getting 4-5 extra doses per day. If he continues on this trajectory, we will be doing very, very well. We won't be able to go home, though, until he is able to tolerate feeding and is able to pee without needing morphine.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  7. #17
    Posting Addict ashamom27's Avatar
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    Thank you for updating us Deb!! I am glad to hear that the surgery has worked!!! That's wonderful! Poor sweetie , he has to use morphine to pee- that sounds so painful!! Hopefully the site heals fast for him.

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  8. #18
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    I know. But, that sort of injury supposedly heals fast. We've moved him off of morphine onto percocet, and I hope to have him off that by tomorrow. He's not in as much pain now. If we can get him to keep down some food, we should be able to bring him home (maybe tomorrow).

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  9. #19
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    Im soo happy for you!! I am so glad that surgery went well and the extra medication looks to be able to be stopped!! Im sorry about the other trouble along the way...but it sounds like his injury is healing....I really hope he will be able to eat for you soon and you can get home!!! Thanks for the update!! Ill keep you in my t&p until you are home and this ordeal is behind you!!!!
    Lilypie Pregnancy tickers

  10. #20
    Posting Addict Mommyin0406080912's Avatar
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    I am glad the surgery went well and I hope the recovery goes smooth. Your a strong mom! Sending prayers and thoughts!
    DD1-Maddy-8yrs
    DD2-Lucille-6yrs

    DS1-Wade-4yrs
    DS2-LeLand-3yrs

    DD3-Carolina Jan 13th 2012
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