Isaiah's in the hospital (xp)

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Joined: 12/01/05
Posts: 1000
Isaiah's in the hospital (xp)

He went into the hospital on Saturday night because his dystonia got so bad that he was having trouble breathing. This is the 4th time this year that the poor kid has been in the hospital. He had a deep brain stimulator implanted to help with his dystonia, but then he had some complications and an infection and had to have one side removed. Now the remaining stimulator (on the other side) is apparently not working. Additionally, his bowels have not been moving, so his medicine, which is absorbed in the intestine, is not working either. The only way to control his symptoms right now is through IV sedatives. Tomorrow will be spent trying to figure out what is wrong with the stimulator and trying to get it fixed. I am really hoping it's a software problem so that they will not have to open him up to fix it.

Joined: 07/27/06
Posts: 722

oh I am so sorry!! THis is awful!! Sending prayers for your family and your sweet son that things are better soon!!

Four4us's picture
Joined: 01/13/06
Posts: 324

Oh no!! I hope it is a software issue too, and not something that requires surgery!! Poor little guy!

Joined: 12/01/05
Posts: 1000

Apparently there's nothing wrong with the device, so now we don't know what's causing all the trouble.

-Asha-'s picture
Joined: 02/08/12
Posts: 173

I am so sorry Deb, this must be both sad and frustrating. My thoughts are with you and Isaiah.

Joined: 09/02/05
Posts: 994

I am so sorry to hear this. I hope they are able to figure out what is going on. *hugs*

brennahsmom's picture
Joined: 08/26/06
Posts: 20

Awww. Hugs & Praying for some answers and a sppedy recovery!

pico83's picture
Joined: 09/06/06
Posts: 3015

I'm so sorry. My thoughts will be with all of you. I hope they figure it out quickly.

Joined: 01/25/02
Posts: 2023

I'm sorry. I hope you have some answers soon. Hugs and prayers!

Joined: 07/21/02
Posts: 1007

I'm so sorry. I hope you have some answers very quickly! Praying for you all!