She's Behind

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wishing4agirl's picture
Joined: 09/11/03
Posts: 917
She's Behind

in speech. The study Faith participated in for siblings of children with autism had our last meeting almost 2 weeks ago and we got the report. They basically do a lot of tests including the ADOS ect. She is exactly where she is suppose to be in everything except speech. Specifically expressive language. I'm NOT surprised at all really. And I actually expressed the concern before they started the last round. They didn't recommend therapy yet, but suggested we watch it and if she doesn't improve then to call for a referral. I think I really need to get the boys to stop talking for her and focus on practicing words with her. They also said it's actually quite common for younger siblings to be delayed like she is because they talk for her. That is so Faith and her brothers. Now to get working so I don't have to do speech therapy with her too.

nursechicrn's picture
Joined: 09/07/08
Posts: 3

That is a lot to chew over. I am glad you had an inkling, anyway, so the findings weren't such a surprise. I agree that a lot of it is by virtue of her birth order, more than a true deficit, but it is great that it is actually on your radar and that of others so if it does develop into a problem, you can have a plan in place.

Lily is much the same, she doesn't speak nearly as much as her older sister did. There is another little girl in daycare that is just a few weeks older than Lily and speaks in very clear, complete sentences. Lily can make her needs known, but is still in just one or two word sentences.

Thanks for the update and keep us posted!

Joined: 11/14/08
Posts: 49

Cam's also behind in his speech somewhat. We haven't had a formal evaluation done. The pedi said we should wait until 2.5 to see if he catches up a bit more, but my sister is a speech language pathologist and she confirmed that she agrees with what I think - that he may have a mild case of apraxia. She works with him a bit casually (we see her usually at least once a week) but said there isn't much you can do formally with him for this issue until he is a little older and can understand rewards/consequences, so I'm comfortable waiting it out for a bit.

It's hard in our case because he has no one to talk for him and he is trying very hard to communicate, but some words just escape him. His vocab is great! He has at least 300 words or so. I lost count after 200 Blum 3 and he copies new words every day and is even starting to speak in a few 3 word sentences now and then. The other day he said "My talk phone!" ('My' is what he calls himself always.) He has been picking up new sounds still every couple of weeks, so I'm hopeful that as we work with him he can continue to pick up a lot of it and he may only need a bit of therapy for a couple sounds in a little bit.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

"nursechicrn" wrote:

That is a lot to chew over. I am glad you had an inkling, anyway, so the findings weren't such a surprise. I agree that a lot of it is by virtue of her birth order, more than a true deficit, but it is great that it is actually on your radar and that of others so if it does develop into a problem, you can have a plan in place.

Lily is much the same, she doesn't speak nearly as much as her older sister did. There is another little girl in daycare that is just a few weeks older than Lily and speaks in very clear, complete sentences. Lily can make her needs known, but is still in just one or two word sentences.

Thanks for the update and keep us posted!

I am glad I know and can work with her in the mean time. I just don't want to have to go through speech again with yet another child.

"capricity" wrote:

Cam's also behind in his speech somewhat. We haven't had a formal evaluation done. The pedi said we should wait until 2.5 to see if he catches up a bit more, but my sister is a speech language pathologist and she confirmed that she agrees with what I think - that he may have a mild case of apraxia. She works with him a bit casually (we see her usually at least once a week) but said there isn't much you can do formally with him for this issue until he is a little older and can understand rewards/consequences, so I'm comfortable waiting it out for a bit.

It's hard in our case because he has no one to talk for him and he is trying very hard to communicate, but some words just escape him. His vocab is great! He has at least 300 words or so. I lost count after 200 Blum 3 and he copies new words every day and is even starting to speak in a few 3 word sentences now and then. The other day he said "My talk phone!" ('My' is what he calls himself always.) He has been picking up new sounds still every couple of weeks, so I'm hopeful that as we work with him he can continue to pick up a lot of it and he may only need a bit of therapy for a couple sounds in a little bit.

That is awesome your sister is a SLP. How would you know if they have apraxia of speech? Just wondering. Some of what she says is COMPLETE gibberish. But if I ask her to say kitty she can or other words. Then we hear her say phrases (usually 2 but some 3 as well). I think sometimes she just tries to go too fast in her talking.

I think she'll eventually get it without therapy, but the wondering if a third child will need speech will drive me slowly mad.

Melissas_crew's picture
Joined: 08/30/10
Posts: 68

Allysons expressive language is that of a 12 to 15 month old. She can say maybe 15 words/animal noises. Her receptive language is a bit advanced. She started speech therapy last week through a private place, still waiting to have her evaluated by the state. Our goal right now is to get her to communicate through sign language. It is not going well, she is very stubborn and gets upset when we sign stuff to her. I decided not to wait because she really isnt even trying to say more. She won't mimic or anything.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

"Melissas_crew" wrote:

Allysons expressive language is that of a 12 to 15 month old. She can say maybe 15 words/animal noises. Her receptive language is a bit advanced. She started speech therapy last week through a private place, still waiting to have her evaluated by the state. Our goal right now is to get her to communicate through sign language. It is not going well, she is very stubborn and gets upset when we sign stuff to her. I decided not to wait because she really isnt even trying to say more. She won't mimic or anything.

Does she have hearing issue? Just wondering. We do sign too. Unfortunately Faith will rely on the sign and not say the word. Totally the opposite of my boys. And I want her to learn sign because I have a few friends at church with deaf/hard of hearing children and I want her to be able to communicate with them. I think that because she does attempt and because she will repeat what I say is why they didn't recommend therapy yet. They said Faith is at an 18 month level.

Joined: 11/14/08
Posts: 49

"wishing4agirl" wrote:

That is awesome your sister is a SLP. How would you know if they have apraxia of speech? Just wondering. Some of what she says is COMPLETE gibberish. But if I ask her to say kitty she can or other words. Then we hear her say phrases (usually 2 but some 3 as well). I think sometimes she just tries to go too fast in her talking.

Here is a link that has some common signs of speech apraxia.

In particular our main signs for DS were that he never cooed and rarely babbled. As an infant he didn't get his first consonant sound "ba" until 8 months old, where most babies are babbling a few sounds well before that. Up until 13/14 months he only had "ba" and "da" and had not even started with the "ma" sound, so he was definitely missing letter sounds early on. Around 14 months he *did* start saying 'ma' and can now say that one clearly.

Right now he has about 10 words that could probably be understood by an outsider: mommy, daddy, ball, juice, two, do, mess, Mimi (which technicaly started out as grammy, but that is how he says it, so I'm not sure that one even counts), and a few more.

Some of his errors are normal age appropriate errors. Tree is pronounced 'tee', borrow is pronounced 'bow-ow'. But simply the amount of sounds he is missing, the lack of most two syllable words, and and the reversals of pronunciation I think are the worst offenders?

For banana he says "ma," but says it consistently and signs it, too. For up, he says "buh" which is backwards, sleep sounds more like "peash" also backwards. And he started adding an 's' onto the end of words only a month ago. Mess used to be "mah," and now it's "mahhs." Sorry is "dawwy," and that's one of his fairly clear words.

He is picking sounds up consistently, even though he's picking them up slowly and when my sister has worked with him using visual cues for the sounds he's able to repeat most of the sounds on their own, so that is why we are hopeful that he'll be able to learn a lot of it on his own as he gets older. It just will have to be a much more conscious process with him (which will be so much easier as he gets older and can take time to think words through), when leaning sounds and speech is usually not something kids have to think about.

Sorry for the novel. We're still sorting everything out, so I don't have too clear of an answer right now. Smile

ETA: Oh and I forgot one of the biggest things my sister is concerned about is his omission of sounds. Like when he says reach he says it 'each.' I guess they should almost never omit a sound. It's developmentally appropriate to replace it and say "weech" or "yeech" if the LO can't pronounce an 'r' sound, but leaving it out entirely is a lot more likely that there is an issue.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

I'm glad you have your sister then to watch his progression.

Andy1784's picture
Joined: 09/18/08
Posts: 1372

Sorry you are having to deal with yet another stressful thing Angela. Hopefully working with her more will help a lot and you can avoid speech therapy.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Andrea - I'm not overly concerned, but I don't want to have to do it. I talked to the evaluator today. I told her we were making her say things even if the boys try to talk for her and asking her to say things more and being consistant and she said that was a good plan. She thinks by just doing that she should actually catch up. She said it's VERY common for younger siblings to not talk as much because of them speaking for them.

Kittydakat's picture
Joined: 11/19/08
Posts: 53

I also remember being told that the older siblings often talk for them and then one day they come out with everything they have been absorbing. I hope thats the case for Faith, I wish I could remember everything I learned. Hopefully you wont need to do any work with her, I have my fingers crossed for you xox