Finally!

4 posts / 0 new
Last post
CrysRee31's picture
Offline
Last seen: 2 years 9 months ago
Joined: 06/01/11
Posts: 1473
Finally!

Because DD1 was born with a heart defect called pulmonary valve stenosis (which was undetected in her 20w u/s), and my risk of another child being born with a heart defect is now increased slightly, her pediatric cardiologist has told me we'd need a fetal echo done to really check any future baby's heart well. It's possible that another child could be born with a more severe defect which would require delivering at the children's hospital about 7 hours away, that's the worst case scenario and only a very slim possibility, however they'd rather be prepared in that instance. Better safe than sorry right?

Well my doctors here, although they were informed and indicated to us that they were sending a request for a fetal Echo - didn't bother sending one. Dr 'dismissive' said that nothing was found on the 20 w u/s so they figured it was fine because DD1's was found then right? NO and for the millionth time (one of the down falls of not having ONE specific doctor assigned to me) we didn't find out until AFTER birth, and we had to spend extra time in the hospital because she was born on a holiday and the children's hospital that needed to do a web-based consult was at minimum staffing. I spent the first 2 days of her life terrified it was something severe and I'd lose her. She couldn't regulate her body temp (despite her large size) or nurse (she couldn't stay awake long enough and it was to much work for her to get at the fats she needed so she burned more calories than she consumed). Grrr.

After my last appointment where I PUSHED and argued they finally faxed the form and we got our appointment! We'll be 10 weeks late (it should be done before 24 weeks according to the cardiologist) but better late than never! I can't wait to see our littlest princess again, I'm nervous too though, hope it's all good! DH has a minor heart defect as well but it's a common one and not an issue like DD1's. Now come on January 14th!!

Offline
Last seen: 1 year 7 months ago
Joined: 05/15/08
Posts: 413

That's wonderful that you finally got the appt! I hate it when docs won't pay attention to their chart.

Offline
Last seen: 3 years 6 months ago
Joined: 02/14/07
Posts: 108

Good for you for pushing to get that test. It is important to know that stuff ahead of time if possible so that everyone is prepared & there are not so many suprises at delivery. I also have the fetal echos done because my brother ws born with tritology of the fallot (whidh is a hole in part of the heart) & my Mom had an infant sister who died of possibly same defect. They say the chances are slim But I like knowing that a specialist really looked at the heart. Sometimes those defect don't get noticed at birth & it takes a long time to figure out why a kid is behaving a certain way. I think shame on that Dr for being so passive......even if they had seen your daughters heart defect on the 20 week, IMO since the technolgy is there you should have it done for any pregnancy you have if you want. Well again Good for you.

CrysRee31's picture
Offline
Last seen: 2 years 9 months ago
Joined: 06/01/11
Posts: 1473

Being in Canada, especially here in NB we don't have the option of anything specialist unless it's been directed by a doctor, for example we can't even see a pediatrician unless a GP sends a referral for a specific reason. And depending on that reason (severity) it can mean a very long wait list, years for some specialists. I was on the 'urgent' wait list for an OBGYN for fertility testing for nearly year before my appointment came up. (I got lucky and spontaneously o'd on CD 60somthing and got pg after a year and a half of TTC and only 1 other ovulation). We get what we pay for for our healthcare.... although our tax dollars DO pay for our healthcare..... hmmm