I know some have seen on FB, and I thank u for all ur thoughts. Typing this from my phone so pardon the abbreviations.
Took Em to pedi yesterday morn bc her reflux was still a mess and she had stopped eating. Also has green goop in eyes n pouring out of nose. Pedi didn't like that she was having blue episodes n times of stopped breathing during reflux episodes and said we were past their care. Sent us to be admitted to children's hospital almost two hrs away for full work up and apnea monitoring. Spent 9 hrs in er before brought upstairs to be admitted. She was a mess in er and we were informed we would be here till at least Monday night bc not all tests could be done on wknd.
So far she has had tons of monitoring...leads all over her.....poo testing for blood (she's had diarrhea for over a month) and basic blood work. I was told by half the docs to switch her to hypoallergenic formula, other half to eliminate dairy n soy and continue pumping so all feeds can b thickened w cereal. I choose to keep going w bfing. It's going so well I don't want to give up. Unfortunately the 400+oz I have frozen already will likely be of mo use to us if its a milk protein allergy in addition to the severe reflux.
Other then that we don't know much. The hospital is great, but not restful at all. Em slept great last night however we didn't bc of the preemie we r sharing a room w. He has no family here n cries constantly so I was up all night w him trying to get nurses in to comfort him. I personally cannot imagine not being w my child, but I think he may have been taken from her over drugs. He is on morphine which is the only time he sleeps.a.little.
Will update u guys or Suzie when we know more. Love u ladies for the support I k.ow u will offer. Any knowledge on cutting out milk protein feel free to offer advice!!