Its been a really stressful week and its not over yet

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Jenn0113's picture
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Its been a really stressful week and its not over yet

On Tuesday Justin had surgery to remove his thyroid. During surgery they found cancer in his thyroid as well as in the lymph nodes on the left side of his neck. They removed everything and he is now cancer free. Even though we had been told a few months go that cancer was highly suspected, we honestly didn't believe it. We truly believed they would get in there and say there was nothing to be found and they would remove his thyroid and that's it. I was shocked to say the least when the surgeon came out to talk to me while Jus was still in the OR. He originally went in because he has some large nodules in his neck that needed to be removed and one was in the center of his thyroid, so we knew going in that he would have a complete thyroidectomy - we just didn't expect the lymph nodes or the diagnoses.

Anyhow, we stayed overnight at the hospital Tuesday and were discharged Wednesday around noon. However, Thursday he took a turn for the worse and landed us back in the ER for about 12 hours. MIL and SIL met us there and MIL stayed with us the whole time and even came home with us to stay the night.

Yesterday he seemed so much better all day but now today he is sick again and already back in bed even though he just woke up. We have no idea what to do for him to make him better right now. We are going in for more labs Monday and for a follow up Wednesday. I feel so bad taking off all this time from work but at the same time, obviously, he is way more important to me than my job.

Here are some questions I have been getting and the answers, in case any of you were wondering:

How long has he been dealing with all of this? How did he find it?

He noticed the first nodule while I was in the hospital with Deacon 3 years ago. It was just a lump in his neck and before we were discharged to go home one of my nurses even asked him about it. She wanted to know if he had ever had it looked at by his GP. So within a few weeks he was at the dr getting an ultrasound and biopsy where everything came back normal. He has been having u/s and biopsies every 6-12 months for the last three years and up until August of this year we have always been told it was nothing to worry about.

What made him have it removed?

The last biopsy in Aug showed up as "suspicious". He had changed doctors and was getting a 3rd opinion when they came back with this new finding. At that point I was beyond tired of him having to deal with it and he was starting to get more concerned, so we went to a surgeon who recommended taking it out soon.

Will he take chemo or radiation?
No. Thyroid cancer is treated with surgery and no follow up treatments are needed. However, they may recommend a radioactive iodine treatment - we will know in about 6 weeks. We have discussed it with both of his specialists and they both have varying opinions of it. So far he (and I) are leaning towards him not doing it.

What about Deacon?
Deacon has been passed around like a hot potato all week. He has been with different grandparents all week and is loving it! When he first saw Jus' neck he was scared but he is over that now. However, he keeps complaining of neck pain for himself :rolleyes:

Thank you so much to those of you that called, text, FB messaged me, and PM'd me this week. You have no idea how much it meant to know that you guys were supporting us. A lot of our friends and family IRL don't even know that Justin had surgery or has been going through anything at all. He has kept it all quiet and is just now even considering telling people.

I go back to work on Monday after I go to the OB and I takehim back for more labs. Since its already a short week with Thanksgiving I will only be there for a day and a half next week. I'm not sure how much I will be on the boards until Thanksgiving is over and life is semi-back to normal. However, since he is sleeping now and no family is here (and I've finally started catching up on some housework) I wanted to come update.

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Yikes, Jenn, that is so scary!! I'm glad that the surgery is all that's needed to take care of that type of cancer. It must be so hard to see Justin feeling so sick right now and not being able to do anything for him. I hope that he starts to feel better really soon. :bighug:

I'm sure it's hard, but try not to worry about work right now. Hopefully they'll be understanding in this type of situation, and thank goodness next week is a short week anyways!

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:lurk:

Jen I had NO Idea you were going through all of this. I am SO sorry. So many prayers coming your way!

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"girlisrad" wrote:

:lurk:

Jen I had NO Idea you were going through all of this. I am SO sorry. So many prayers coming your way!

Thanks. Not many people knew...Jus was wanting to be really private about it.

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:bighug: What a road you guys have been down. Keep us posted when you can and feel like it. How sweet that Deacon was having the "same" pain as his Daddy. I can't imagine all you've been through this week especially while growing a baby, too. I'll be thinking of you guys. How reassuring to read that it's been checked every 6mths or so since Deacon was born just knowing that the cancer couldn't have been there longer than that time frame. I'm sure it's hard not to think about the amount of time away from work but try not to. I hope Justin is feeling 100% soon.

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HI Jenn

I had a feeling this was this week but couldn't remember and I was searching FB and the boards for clue but didn't want to ask if I was wrong.

I'm so sorry it's been so bad and scary I hope it gets better and quickly. Hang in there, lots of prayers coming your way from us!

XOXO

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I've been praying daily for your strength and Justins health. Please call, text or email whenever you need an ear! :bigarmhug: I hope Justin starts feeling better.

I couln't help to notice your siggy. Is Kara's arrival pushed back with all this?

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My boss has been really nice about the whole thing. He told me that now that I need off some days next week too that I can't be off for maternity leave ROFL Yeah....right! But I do feel a little guilty taking off a week and then the week when we only work 3 days I need 1.5 days off now. Oh well. I have the vacation time left, I just didn't want to use it until for some reason I just couldn't go to work because of the pregnancy.

Amber - Last week sometime I just had a...I don't even know what to call it...urge(?) to go for a VBAC. So Monday when I go to the OB I am going to let him know. The csection is already scheduled but he said he will let me go until Jan 9th before he schedules a repeat csection. He is very wishy washy about it...one day he acts like I can do it and the next he doesn't know if I can do it. One appt he will say that I'd have to go into labor own my own and the next he says that he has read studies that low and slow doses of pit are helpful for VBAC patients. Hopefully on Mnday I get the pro-VBAC doc, lol, but if I don't I'll just talk to him about it again at the next appt. I'm slightly worried that I haven't done any research or reading up on VBACS so I'm not really prepared. But after taking care of a post-surgery patient all week I REALLY want to try to avoid surgery at all costs. Even though its two different types of surgery I still don't want the side effects of the epidural/spinal, the pain meds, the recovery - etc.

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OH NO so sorry I had "miss" this Sad

hang in there and I sure hope he recovers fast!!

and I sure hope you get a VBAC

hugs

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:bighug: Jenn. I'm so sorry this has happened to your family. I hope Justin starts to feel better and things can start to go back to normal for you guys. I'm sure it probably feels like the worst timing in the world. But, although best bet would have been it not happening at all, of course, I think the good thing is at least it's hopefully over before your new LO arrives. I can't imagine how scary it must be to have your DH going through this. My prayers and thoughts are that this is over for you guys and that it will only go up from here. Praying for the delivery you want and that LO arrives safe & your recovery is not the same. :bighug: KUP please.

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So sorry you guys are going thru this Jenn! I just can't imagine! Hope Justin starts to feel better soon. Thought and prayers are with you and your family! :bigarmhug:

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:bighug: :bighug: :bighug:

you know I'm here for you, for whatever you need!

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"mama22Girls" wrote:

:bighug: :bighug: :bighug:

you know I'm here for you, for whatever you need!

Ditto for me as well! I'm so glad your family has been supportive and helpful with Deacon.

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Wow Jenn,

So sorry about all this. I have been completely out of the loop. I lurk every once in awhile and still think about everyone. Hope Jus feels better soon.

Lauri

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Oh no! What a scary week for you guys. I'm glad Deacon liked being passed around so much. I hope Justin get better and you guys get a little break before Kara comes. :bigarmhug:

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Thanks everyone. None of you were really late to reply or out of the loop - I haven't really shared this. When we first were going through it I would tell people but once they said the C word Justin didn't want me to talk about it anymore. It was hard for me not to share since I tend to be more of an open book.

Kristen - I agree, at least the timing is before we have a NB. I don't know how we would have managed with a baby. When I had to take him to the ER Thursday I just kept thinking how impossible it would be if I was nursing at the same time. It was hard enough being at the hospital for that long while pg! The hospital really doesn't prefer kids there so I had no option but to leave Deacon with someone every time we went. Since its a hospital that specializes in cancer the patients there have very low immune systems and can't be around kids.

Today has been off and on. There are times he takes a hue gasp for air before a cough and I think he is dying. It sucks to be so scared about every breathe he takes. I've called the nurse once - Thursday - and never got a call back, UGH! Then today I called the doctor on call at the hospital and again, no call back. I'm ready to get back up there Wednesday for our follow up so I can tell the nurse what I think about her never calling me and I can ask the surgeon and doctor if going to the ER is the only way to get some medical assistance.

I appreciate all of your replies.

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Jenn, can I bring you a meal??? ROFL

(sorry, inside joke)

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I know how hard this week has been on you, its the last thing you need right now, you need to be relaxing and getting ready for baby. Hopefully this chapter is now over, Jus will recover just intime for the roller-coaster ride of a newborn daughter Wink And you wont have this hanging over you head and can enjoy every moment of little reeces pieces.

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I'm so sorry to hear about this. I hope this takes care of everything for Jus & that you guys can move fwd. You guys are in my thoughts &prayers. I'm thankful that you guys pursued the surgery & so were able to remove the cancer before it spread worse.

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Oh no Jenn so sorry you guys are going through this! I'm so glad they were able to remove all the cancer, hope he gets well quick and doesn't have any setbacks. You guys are in my T&P's :bigarmhug:

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Wow! So sorry y'all are having to go through this. I hope he recovers quickly and easily. :grouphug:

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Carrie - I really wanted to take you up on that meal...I still may - this isn't over yet.

Yesterday Jus was having trouble breathing and tomorrow I go back to work. I'm scared to leave him alone so I am trying to get the nerve to call my boss and ask to work from home on Monday and Tuesday. *fingers crossed*

You guys are really encouraging to me. All of you.

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"Jenn0113" wrote:

Carrie - I really wanted to take you up on that meal...I still may - this isn't over yet.

Yesterday Jus was having trouble breathing and tomorrow I go back to work. I'm scared to leave him alone so I am trying to get the nerve to call my boss and ask to work from home on Monday and Tuesday. *fingers crossed*

You guys are really encouraging to me. All of you.

call your boss, you wont get any work done if your worried about him. How close are you to work? could you maybe tell him you'll drop Deacon of at daycare and pick up a few things that way he knows you don't have D at home to distract you?

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:bigarmhug: Thinking about you and your family, Jenn.

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Jenn, I am like Kim I would ask for "sick leave" !!!!!!

YOU DON'T NEED STRESS !!! (or more)

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oh jenn, my heart hurts for you right now! i saw this the other day but coudn't login. you have been in my prayers. and seriously as far as time off, you need to do what you need to do for your family. it really sounds like your boss is understanding. I would have such a hard time leaving too with him having breathing problems. I wish we all lived close where we could do something more. {{{hugs}}} keep us posted as you can and know how much we care!

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"ourfirstblessing" wrote:

oh jenn, my heart hurts for you right now! i saw this the other day but coudn't login. you have been in my prayers. and seriously as far as time off, you need to do what you need to do for your family. it really sounds like your boss is understanding. I would have such a hard time leaving too with him having breathing problems. I wish we all lived close where we could do something more. {{{hugs}}} keep us posted as you can and know how much we care!

My thoughts exactly! I read this the other day, but haven't had a chance to respond. You and your family have been in my thoughts and prayers. How is Justin today? I hope he has a speedy recovery. xoxoxox

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Thanks guys.

I'm back at work now. I just played the cancer card - is it too soon? Joking. Basically some coworkers stopped by to say hi and how I am and welcome me back and my boss was right there. I said "well, I'm only back temporarily, I'm hoping J (boss) will have some compassion towards me and let me go home to be with my husband" He laughed and made some joke about him never having a compassionate side. :rolleyes: I'm sure if I ask later he will let me leave. I just want to get through most of the day and text Jus later to see how he is. He is with my mom now getting blood work done.

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Whoa! So sorry to hear what you've been going through! I guess if you have to be at work, phone Justin often to ease your mind. Can his mom stay with him while you're at work? Terrible that the nurses aren't phoning back!! I would totally have something to say to them! Wish I was nearby and could help out! Hang in there!!

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How did the rest of the day go Jenn?

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Today is ok. I am at work and he is at home. My mom ended up taking him to his appt today for labs. The nurse called me and said that one of the things they are monitoring is normal now so he can stop one of his meds - yay! He didn't act like that mattered and I had to remind him that it just proves that his body is starting to work properly again. His "appt" for Wednesday was apparently never scheduled since the surgeon is off all week so now we go back Monday for a follow up.

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Oh, Jen. I'm so sorry you are going through all of this. I really am. It must have been awful hearing the C word when you you were both so confident that was not the case. I'm glad to hear you have such a great support system and that Deacon doesn't mind all the action. Smile It seems that maybe Justin is finally on the road to recovery?
It sounds like you need to put the smack down on these surgeons/admins. Communication is a major part of medical care. They need to be reminded of that.

Wow. I'm SO out of the loop! This is what I get for only checking in a couple times a month!

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Jenn -- Huge hugs and prayers coming your way. How are things going now? I hope things have settled down somewhat.

I think I've mentioned to you before that several years ago DSD Age was diagnosed with melanoma -- she came to tell us when she got the diagnosis -- I was in tears for days. It wasn't serious-- a few surgeries and several years of follow up -- but just hearing the "C" word attached to one of my kids was devastating. I am sure it is a million times worse when you heard that with Jus.

Glad its treatable and will not require chemo though -- that has to be brutal.