You can find an update

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mujul79's picture
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Last seen: 1 year 9 months ago
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You can find an update

On how Heath is doing by using the link in my sig and reading his blog.

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:bighug:

WOW I have no idea how to respond.. first off I can't believe the nurse would tell you to wait 3 months and that YOU don't know his medical history when she didn't read his chart :eek: And they ruptured his ear drum. Poor Heath. Sad

I'm glad your getting in faster then 3 months. Hopefully the next visit will bring more answers and less headaches and heartbreak for you both. :bighug:

thanks for the update.

AshnBill's picture
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Yikes. All sorts of stuff going on. Sad I hope the next visit brings lots of answers!

Jenn0113's picture
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How do you keep from going postal on that nurse and then the pedi that ruptured the ear drum? OMGosh I would have lost my cool.

I hope your appt in two weeks gives you great answers and something to work with. Thanks for the update.

mujul79's picture
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OMG I don't know if I will be able to look at that nurse when we go in the am! I forgot to put in the blog that when I called from the pedi's office she said to me "Oh I was going to return your call within the month" I was like WTF (I may have even said that to her) I said I talked to Dr Adamo and he said he wanted to see him in 2 weeks and that was a week ago already so I need him seen this week or at the longest next week!!" She was like well thats close. Well yea that's why she should have called me back last week, GURRRR. So I was like now it is not just him that wants the baby seen I am sitting in the pedi's office and they are telling me he needs to be seen NOW. She then had the nerve to say "Oh why, has something changed?" No jerk I took him to the pedi for fun, is what I wanted to say! I said "yes the pedi thinks he is having headaches and his balance and reflexes are all off" TO that she was like Oh I'll get him in let me look at what the Dr has open. Then she was like I have a 10:15 on friday if you want it. Why would I not want it???

Thanks for letting me vent. The Dr is awesome but having to deal with his nurse sucks!! I was told she is lots prego and a little scattred by a few other parents, when they have had to deal with her this month also. Ok I have prego brain also but come on if you can't do your job and kids lives are in your hands, your a Nero S's nurse then go on leave early!!!

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I really hope you complain to the dr about her and tell him everything that happened. If she is that scattered maybe he/she (the dr) can straighten her out.

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WOW, I don't even know what to say. I've had experience with bad medical professions with Josh as well and it is horrible. I feel your pain. I sure hope you get answers soon. Hang in there AND do complain!

KUP

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Thanks for sharing. I saw the ruptured ear drum issue on FB. I do not understand how they could let that happen! Poor baby! and Poor mommy!

Hope you get some good answers soon. The apnea would be so scary!

:bigarmhug:

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That is just crazy. I cant believe they didnt want to see him earlier or at least put him on cpap until they could see you!

mujul79's picture
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My FB update yesterday was: Still on the fence on if the surgery is worth the risks. So I asked him if we did more testing would that give us any more info. Heath's last MRI was in Nov and was to rule out a twisted neck. Now that we know he has Chiari I asked him to do the CSF MRI, and a full spine to look for a syrinx or teathered cord. He said that yes we should do that ASAP and I should hear in the next two weeks when that is going to be.