some news on brookelyn...

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Joined: 05/16/06
Posts: 193
some news on brookelyn...

hey i hope everyone is doing great! i just thought i would update you all on how we are doing...

brookelyn has had some unusual behaviors and at first i thought nothing of it, but bc i have child protection in my life just till next month i took their advice and saw my family dr about her. well she also saw a hearing and speech therapist. hearing was fine, her speech on the other hand is delayed and at the level of a 12-15 month old's if that. she was also screened for austism which came back as her being at the higher level of having it. we saw a ped and she spent almost 3 hours with brookelyn and then told me she was 95.9% positive brookelyn is austic, but it could take up to 6 months for her proper diagnoses. things have been pretty rough with her she doesnt like change, she screams when someone besides me and a couple ppl touch her, her sister cant even touch her without her losing her mind. i most def have my hair pulling moments. her daycare told me i need to find some where else for her to go bc thats not the place for her. the ped is trying to get the funding so that brookelyn can have a special needs worker with at all times with her at daycare. her dad and i met with a different daycare the other day, and as long as she gets this worker then they have an opening for ger to go there, also wgen i go back to work(hopefully very soon) christopher can also go there as well.
alexis is doing great in grade 1 so far and loving school. she is having a hard time dealing with what is going on with her sister, and i dont even know how to help her understand.

christopher is doing fine growing like crazy and its hard to believe he is almost 7 months old. he loves trying all kinds of new foods, but now i have a question for anyone who can help me... at night time chrisopher will roll over on his belly and wake up freaking out and i will get up, roll him over, put his blanket back on him, and i will do this about 10 tomes a night which isnt much fun. i hope you guys can help me!!

cactuswren's picture
Joined: 10/19/09
Posts: 4658

Hi Rebekah

I know you don't really know me that well since I joined this group after my June 2010 BB got closed down but I wanted to say about the rolling over--my little brother used to do that, and I remember we would stuff a soft little pillow inside his onesie to give him a fat tummy so he couldn't roll over. It looked funny, but it worked! That might be an easy fix for you?? HTH!

Really sorry to hear you're dealing with a probable autism diagnosis for Brookelyn. I know from family members dealing with special needs (including autism) that services like aides and respite workers make ALL the difference in the world, so I really hope you're able to get the help you need.

TiggersMommy's picture
Joined: 02/14/10
Posts: 6043

I'm sorry to hear about Brookelyn's diagnosis. I know that it's difficult to diagnose before the child is closer to 2.5 but its best to get on therapy right away. Hopefully, your pediatrician can help get you an aide for her at daycare. My younger (much younger - 5 years old) cousin has fairly severe autism and his special school has made a huge difference for him.

What is Christopher sleeping in? If he's wrapped up then maybe he's freaking out because he can't push back over with his arms. It perfectly OK for him to sleep on his belly if he get's himself there and can get himself back over.

BuckeyeK's picture
Joined: 10/23/06
Posts: 3087

Sorry to hear about your daughter's diagnosis. I don't know if there is Help Me Grow in Canada, you may want to look around and see if you can find some programs that provide therapy for kids with delays. Sometimes early intervention can help a lot! Best wishes and (((hugs)))

AnnaRO's picture
Joined: 07/06/08
Posts: 7033

I'm sorry to hear about your daughter's diagnosis. Fortunately we live in a time where there are specialists to help with that and she can live a fairly normal life. KUP on how she's doing once she gets a specialist to help her.

I would swaddle him and see if that helps. We had to restart with swaddling DD when she was around 6 or 7 months old just to get her to go so sleep.

RonanTheBarbarian's picture
Joined: 05/10/10
Posts: 1084

I'm sorry to hear about Brookelyn, but agree with pp that thank goodness for the research that's been done over the years to provide ideas for therapy/ tools to make everything as easy for you both as possible!

stacymh's picture
Joined: 03/16/10
Posts: 1807

So sorry to hear about Brookelyn's diagnosis, that can't be easy to deal with. Hopefully you can get in to see a specialist who can offer/help you locate some programs that can help her. KUP please.

It's nice to hear from you again.

alwayssmile's picture
Joined: 08/26/07
Posts: 14483

Good to "see" you! Early intervention is key and hopefully you can get her started on that soon. ((hugs))

tink9702's picture
Joined: 09/28/08
Posts: 2977

I'm sorry to hear about your daughter's diagnosis. My cousin's son is autistic. He started therapy around 2.5 and it made a HUGE difference for him. He wouldn't let anyone touch him, wouldn't look people in the eye, hummed to himself all the time, wouldn't eat all but 3 foods because of texture issues, had major issues with any sort of change and I'm sure even more symptoms. Anyway, he can now handle touch, looks everyone in the eye when talking, no longer hums, will eat more food (though still has issues with this), and is working on being better with change. It will be a life long process but I'm sure with help your daughter will improve.

As far as explaining to your older daughter - try saying that DD2 is special and we need to do this or that for her to make her comfortable.

Good luck and KUP!

rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527

I don't have anything to add that hadn't already been said, so here's a hug Smile

:bighug:

Cherrychip's picture
Joined: 01/31/09
Posts: 1134

I am sorry to hear about Brookelyn's diagnosis, I am sure that is challenging to deal with. I hope you can get her started soon on therapy. :bigarmhug:

Marcsgirl's picture
Joined: 07/29/04
Posts: 44

"Rebekah_21" wrote:

brookelyn has had some unusual behaviors and at first i thought nothing of it, but bc i have child protection in my life just till next month i took their advice and saw my family dr about her. well she also saw a hearing and speech therapist. hearing was fine, her speech on the other hand is delayed and at the level of a 12-15 month old's if that. she was also screened for austism which came back as her being at the higher level of having it. we saw a ped and she spent almost 3 hours with brookelyn and then told me she was 95.9% positive brookelyn is austic, but it could take up to 6 months for her proper diagnoses. things have been pretty rough with her she doesnt like change, she screams when someone besides me and a couple ppl touch her, her sister cant even touch her without her losing her mind. i most def have my hair pulling moments. her daycare told me i need to find some where else for her to go bc thats not the place for her. the ped is trying to get the funding so that brookelyn can have a special needs worker with at all times with her at daycare. her dad and i met with a different daycare the other day, and as long as she gets this worker then they have an opening for ger to go there, also wgen i go back to work(hopefully very soon) christopher can also go there as well.
alexis is doing great in grade 1 so far and loving school. she is having a hard time dealing with what is going on with her sister, and i dont even know how to help her understand.

christopher is doing fine growing like crazy and its hard to believe he is almost 7 months old. he loves trying all kinds of new foods, but now i have a question for anyone who can help me... at night time chrisopher will roll over on his belly and wake up freaking out and i will get up, roll him over, put his blanket back on him, and i will do this about 10 tomes a night which isnt much fun. i hope you guys can help me!!

Found this thread through the "Today's Posts" link at the top of the page.

I'm sorry to hear of her potential diagnosis but hope that she can get the proper help in a timely manner. My mother-in-law is in Sussex so I know how hard it can be to get the services required there. Is she in a daycare center or at someone's home? As for Alexis, I would talk to her teacher at school and see if there's anything the school can help with - or ask CPS if they have any ideas. I know a couple of teachers in Moncton and might be able to give an idea of services that you could ask for.

I'll definitely have to look you up next year when we're out there - we are out there at least once a year (I'm in Ontario - though one day will live on the east coast).