update on Emily...still here in hosptial

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AK2663's picture
Joined: 09/03/08
Posts: 710
update on Emily...still here in hosptial

Hi girls....we are still here. Were admitted Friday because our pedi felt like it was past their knowledge and skill base and really needed to be treated inpatient. She sent us to the children's hospital almost 2 hours away. Our 2 year old has been with my parent two nights then DH went home last night to be with her for the night. We got news this morning that her test yesterday showed significant constant reflux that wasn't clearing from her esophogus as well as prolonged emptying of her stomach into the bowel. She has been having times of choking and stopped breathing, as well as turning blue. She also is on an eating strike so she was quite dehydrated when we were admitted. They cathed her and she was completely dry. She also has had diarhea for more then a month now (I didn't even realize Sad ) as well as congestion from the milk and acid coming up into her respitory tract. So far the new plan is to have a gastric emptying scan tomorrow morning to see how slowly her belly is emptying and if it can be fixed with yet another medicine (shes already on three) or if surgery would be necessary. Apparently there is an issue in infants that peaks at this time that requires GI surgery and it is a concern for her. The earliest we are looking to leave is Wed/Thursday but unfortunately it's wishful thinking likely. THey also have me on a dairy free diet thinking she may also have a milk protein allergy.

Needless to say things are rough. My DH is bringing DD1 up today for me to see her for a little bit then my sister who lives 30 min away is keeping her overnight and my mom is picking her up to take her back home with her for the week. I'm not getting much sleep with all the nurses and doctors constantly coming in. Plus, we are sharing a room with a little crack baby with no family so basically I feel like I have twins Sad He is super irritable and cries a lot. Im always going out to get the nurse for him which is hard since Em is less then happy.

Ill keep you all posted when we hear the results for tomorrow's tests. THanks for all your thoughts and prayers.

VCoates's picture
Joined: 05/22/07
Posts: 1055

Oh my goodness. My thoughts and prayers are with you guys.

Joined: 12/21/10
Posts: 529

I am so sorry. My thoughts are with you!

squirrel27's picture
Joined: 05/13/08
Posts: 781

Oh Anne! :bighug: T&Ps for Em and you.

LauraMae78's picture
Joined: 01/10/11
Posts: 969

OH Anne, im so sorry you all are going through this. i am praying that she gets better soon!

joysiloo's picture
Joined: 09/04/06
Posts: 1054

Anne, that's awful. I hope they figure out what it is soon and she's on the mend quickly.