Low tone

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Joined: 12/11/02
Posts: 485
Low tone

Just wondering if anyone has experience with low tone. I was told Sam has low tone in the NICU follow up clinic. We have a PT Eval tomorrow

AlyssaEimers's picture
Joined: 08/22/06
Posts: 6560

I have never heard of it. Best of luck!

Danifo's picture
Joined: 09/07/10
Posts: 1377

Keep ups posted. I know that low tone is linked to lots of conditions but the actual impact on life varies depending on the cause of the low tone.

Joined: 12/11/02
Posts: 485

Right now they are thinking it is due to really low endurance as he tired quickly. He is going to have PT once week for 6 months (but they scheduled him out till the end of the year) and additional early intervention/ooccuptation therapy to see if those therapies will help.

They think some of it is due to the long NICU stay and his reflux. I really had no idea reflux could affect someone so much

NYMommy04's picture
Joined: 09/19/03
Posts: 281

We have the opposite problem. Jay is as stiff as a board. We have EI coming over to eval for ot and pt on wed.. Good luck with yours!!

AlyssaEimers's picture
Joined: 08/22/06
Posts: 6560

Best of Luck to both of you.