Hi girls. Sorry I've been MIA for a bit. This week has been so hectic with going back to work, making a trip to Michigan to begin the peanut desensitization for Sean, etc.
I called up my family doctor on Monday and talked him into letting me do a trial of antibiotics that would treat Lyme. I'm trying not to get my hopes up, but within a day, I was feeling more human than I have felt in months. I had felt like I was walking around in a fog, like I can't even describe it... My head feels clear now. I have not had any weird muscle pain/cramp sensations, and those were pretty much a constant. The pain in my hands has been a constant... It is gone. I still have some weird nerve sensations... Buzzing, tingling, and random muscle twitches... But I've only taken 2.5 days worth of meds, and I really hope that the things that seem better are not coincidental. I feel more like myself than I have felt in months, and I just really hope it continues to get better.
In other news, Sean's peanut thing was crazy. They fed him tiny doses of peanut flour in liquid every 15 minutes. We started with like 1 microgram of peanut protein. Each dose repeated once, then roughly doubled each time they increased. He worked his way up to 1 milligram over the course of the day. I was nervous, watching him like a hawk the whole day. My nerves were SHOT. I felt like I was having a full-on panic attack after they gave him the first dose. My feet went cold, I broke into cold sweat, my heart rate and breathing sped up... omg. The room felt small and I just wanted to go run laps around the building outside to burn off the nervous energy, hahaha. He did great, though. He was happy and playing, and considering we were in the office like 7 hours, he was really well-behaved. He made it through 20 doses (up to about 1mg of peanut protein, like I mentioned). On the 21st dose (the day 1 protocol went to a max of 25 doses and most people react somewhere in the middle) he went from happy and playing to acting withdrawn and cranky. He didn't want to talk to anyone, he just wanted to sit on my lap with his arms around me and hide his face in my neck. Of course, I began to freak... We asked him what was wrong (not supposed to ask him any leading questions) and he just said, "I think they gave me too much." DH, trying not to lead him, said "too much water?" Sean said, "No, too much of that purple stuff" (they had flavored it grape). We eventually got out of him that it was hurting his belly.. The doctor said that is a common presenting symptom. In this treatment, they don't try to push through mild symptoms because a study of 10,000 patients showed a 15% rate of anaphylaxis if they try to push through. So with the tummy ache, we were done for the day and had to observe him for an hour, then we were sent home. They gave him applesauce, which they say really helps their bellies, and a few little toys.. He was back to his playful self in maybe 15 minutes. We now give him the last dose that he was able to take without reacting at home twice daily. He's not allowed to "exercise" for two hours after his dose or sleep for one hour after. So far, so good... But I'm still a nervous wreck.
ETA: Of course as soon as I posted some optimism about the antibiotics, I started getting the weird numb sensations in one of my fingers again. I know neuropathy won't resolve itself in 2 days, but I just wish I had more certainty as to whether or not this is working. I do seem to feel a bit better... I just hope it isn't placebo effect or coincidence.