Blood clotting disorders (PG ment)

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paetonangel07's picture
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Blood clotting disorders (PG ment)

I recently found out that I have two hereditary blood clotting disorders. They are called Factor V Lieden Mutation and Prothombin 20210A mutation. Both of these disorders can be the cause of recurrent miscarriages.

I have been told that if I had one of them, it would really be no problem but since I have both I will be considered extremely high risk when I get pregnant again. I will have to take Lovenox or Heparin during pg which is shots in the tummy.

I wondered if there was anyone out there that has BOTH of these mutations and if so have you or have you heard of sucessful pregnancies.

Michelle

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I don't know about either of those. I just wish you the best of luck in the future.
shelly

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So sorry you are going through this. Can I ask you how does a person find out they have a blood clotting disorder. To my knowledge I have never been tested but I'd really like to know.

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You may want to pm ryubaby, she posts on Sept 07 and PAL, I know she had to have injections for clotting disorders, not sure which ones though,
Best Wishes
Sarah

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I have APA/ACA, they are all somehow related. It is an autoimmune disease and yohur body attacks the fetus. It causes blood clots to form between the placenta and the uterus.
l/c ment

I was on Lovenox with Alex until 33 weeks, I was having preterm labor and needed a c-section, so they switched my to twice daily heparin. Lovenox is a longer acting form of heparin that prevents blood clots from forming. My BF had the same condition and she has two healthy boys. Just a tip, the injections hurt less in the tummy. I was not willing to belive it until I tried it. I had tostop and start giving tghem in my leg once I could not pinch any more skin.

paetonangel07's picture
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Newbie,
I lost a baby when I was 20 weeks along back in March and then in July I had a m/c at about 4-5 weeks. My Dr classified me with having multiple m/c's and suggested the tests. We did them and found out I have the hereditary blood disorders. My Dr actually tested me for a lot of things and this was the only thing that showed up. They took about 8-9 vials of blood from me and did a full blood work up. You might check with your Dr about getting these tests done. Take care.

Michelle

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I'm sorry i dont have any advice to give hun. I just wanted to wish you all the very best for the future. I'll be rooting for you. :giveflower:

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Hey hun! I have two different inherited clotting disorders also but they are different from yours. I have hetero MTHFR and 2 copies of the PAI-1 genes. I am also considered extremely high risk.

***Preg ment***

I am currently 8 weeks along (farthest I've ever gotten). I am on metformin (for both PCOS and the PAI-1 genes apparently), baby aspirin, Lovenox (pre-filled injections) and metanex (the MTHFR gene means I also don't convert folic acid so this is a special form of it that I take every day).

The injections aren't what I'd call a party but they are not what I feared they would be. I inject them in my tummy every morning and I have found (thanks to the adice from the high risk board http://www.pregnancy.org/bulletinboards/showthread.php?t=18084) that ice really helps! It helps you not feel the needle at all and also helps with the serum. The Lovenox serum can burn a teeny bit and the ice really helps that a lot! Honestly I find swallowing all of my other pills far more annoying that the injection.

I am also on pelvic rest and have been told not to exercise.

I hope this helps! Lots of luck hun!!!

P.S. My mom probably had these disorders as well (she had many, many m/c's) and she had 2 kids without any of the above mentioned help, so I hope you find that encouraging!

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I have Protein C deficiency and have had multiple blood clots (I have had both a pulmonary embolism and a DVT). My husband is heterozygous for Factor V Leiden. My angel baby, Jasmine, died of a blood clot likely due to the combination of mine and DH’s blood clotting genes. During pregnancy I will be taking therapeutic doses of Lovenox and they will be monitoring the baby closely for any problems although they thing the chance that our next baby will have a blood clot is very low.