what we wish we knew about pregnancy loss

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Joined: 09/18/07
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what we wish we knew about pregnancy loss

I found this from another site and thought I'd share it...

What we wish you knew about pregnancy loss:
A letter from women to their friends and family
by Elizabeth Soutter Schwarzer

When women experience the loss of a child, one of the first things they discover they have in common is a list of things they wish no one had ever said to them. The lists tend to be remarkably similar. The comments are rarely malicious - just misguided attempts to soothe.

This list was compiled as a way of helping other people understand pregnancy loss. While generated by mothers for mothers, it may also apply similarly to the fathers who have endured this loss.
When trying to help a woman who has lost a baby, the best rule of thumb is a matter of manners: don't offer your personal opinion of her life, her choices, her prospects for children. No woman is looking to poll her acquaintances for their opinions on why it happened or how she should cope.

-Don't say, "It's God's Will." Even if we are members of the same congregation, unless you are a cleric and I am seeking your spiritual counseling, please don't presume to tell me what God wants for me. Besides, many terrible things are God's Will, that doesn't make them less terrible.

-Don't say, "It was for the best - there was probably something wrong with your baby." The fact that something was wrong with the baby is what is making me so sad. My poor baby never had a chance. Please don't try to comfort me by pointing that out.

-Don't say, "You can always have another one." This baby was never disposable. If had been given the choice between loosing this child or stabbing my eye out with a fork, I would have said, "Where's the fork?" I would have died for this baby, just as you would die for your children.

-Don't say, "Be grateful for the children you have." If your mother died in a terrible wreck and you grieved, would that make you less grateful to have your father?

-Don't say, "Thank God you lost the baby before you really loved it." I loved my son or daughter. Whether I lost the baby after two weeks of pregnancy or just after birth, I loved him or her.

-Don't say, "Isn't it time you got over this and moved on?" It's not something I enjoy, being grief-stricken. I wish it had never happened. But it did and it's a part of me forever. The grief will ease on its own timeline, not mine - or yours.

-Don't say, "Now you have an angel watching over you." I didn't want her to be my angel. I wanted her to bury me in my old age.

-Don't say, "I understand how you feel." Unless you've lost a child, you really don't understand how I feel. And even if you have lost a child, everyone experiences grief differently.

-Don't tell me horror stories of your neighbor or cousin or mother who had it worse. The last thing I need to hear right now is that it is possible to have this happen six times, or that I could carry until two days before my due-date and labor 20 hours for a dead baby. These stories frighten and horrify me and leave me up at night weeping in despair. Even if they have a happy ending, do not share these stories with me.

-Don't pretend it didn't happen and don't change the subject when I bring it up. If I say, "Before the baby died..." or "when I was pregnant..." don't get scared. If I'm talking about it, it means I want to. Let me. Pretending it didn't happen will only make me feel utterly alone.

- Don't say, "It's not your fault." It may not have been my fault, but it was my responsibility and I failed. The fact that I never stood a chance of succeeding only makes me feel worse. This tiny little being depended upon me to bring him safely into the world and I couldn't do it. I was supposed to care for him for a lifetime, but I couldn't even give him a childhood. I am so angry at my body you just can't imagine.

-Don't say, "Well, you weren't too sure about this baby, anyway." I already feel so guilty about ever having complained about morning sickness, or a child I wasn't prepared for, or another mouth to feed that we couldn't afford. I already fear that this baby died because I didn't take the vitamins, or drank too much coffee, or had alcohol in the first few weeks when I didn't know I was pregnant. I hate myself for any minute that I had reservations about this baby. Being unsure of my pregnancy isn't the same as wanting my child to die - I never would have chosen for this to happen.

-Do say, "I am so sorry." That's enough. You don't need to be eloquent. Say it and mean it and it will matter.

-Do say, "You're going to be wonderful parents some day," or "You're wonderful parents and that baby was lucky to have you." We both need to hear that.

-Do say, "I have lighted a candle for your baby," or "I have said a prayer for your baby." Do send flowers or a kind note - every one I receive makes me feel as though my baby was loved. Don't resent it if I don't respond. Don't call more than once and don't be angry if the machine is on and I don't return your call. If we're close friends and I am not responding to your attempts to help me, please don't resent that, either. Help me by not needing anything from me for a while. If you're my boss or my co-worker:

-Do recognize that I have suffered a death in my family - not a medical condition.

-Do recognize that in addition to the physical aftereffects I may experience, I'm going to be grieving for quite some time. Please treat me as you would any person who has endured the tragic death of a loved one - I need time and space.

DO understand if I do not attend baby showers/christening/birthday parties etc. And DON'T ask why I can't come.

Please don't bring your baby or toddler into the workplace. If your niece is pregnant, or your daughter just had a baby, please don't share that with me right now. It's not that I can't be happy for anyone else, it's that every smiling, cooing baby, every glowing new mother makes me ache so deep in my heart I can barely stand it. I may look okay to you, but there's a good chance that I'm still crying every day. It may be weeks before I can go a whole hour without thinking about it. You'll know when I'm ready - I'll be the one to say, "Did your daughter have her baby?" or, "How is that precious little boy of yours? I haven't seen him around the office in a while."
Above all, please remember that this is the worst thing that ever happened to me. The word "miscarriage" is small and easy. But my baby's death is monolithic and awful. It's going to take me a while to figure out how to live with it. Bear with me.

Joined: 03/16/15
Posts: 53852

OMG that said it all.

Thanks for sharing.
Robin

troynicole's picture
Joined: 12/06/07
Posts: 151

SO perfect! Thanks for sharing.

Joined: 03/16/15
Posts: 53852

Thank you for sharing.

Joined: 06/01/06
Posts: 174

That is it. Everything. Thanks for sharing that.

-Stacy

lost love: m/c 6/21/06 @ 9wks

shellyhudson's picture
Joined: 01/13/07
Posts: 814

If anything can or needs to be added I cannot think of it. TFS.

Shelly

Joined: 02/26/08
Posts: 4

That really hits home for me today. Thanks for sharing it.

Joined: 01/09/08
Posts: 19

I wish I could have handed that out yesterday (my first day back to work).

I think I have heard every single one of those already.

Thanks for sharing!

vbear's picture
Joined: 01/22/05
Posts: 83

that was perfect,I want a copy to hang on my office dooor,thank you for sharing it

Joined: 11/13/06
Posts: 161

Thanks for sharing!

Joined: 11/30/07
Posts: 117

TFS that says it all. I too have had about everyone of those comments said to me, just wish I knew the responses at the time!!!

Michelleey's picture
Joined: 06/05/06
Posts: 113

well said, thanks for sharing

KaellyNicole's picture
Joined: 12/27/07
Posts: 219

I wish I would have seen this last year after I lost my son. I was talking to my sister not too long ago and half of the "what not to say"... she still says and it still gets to me! This is so going on my MySpace page!

msichana's picture
Joined: 02/03/07
Posts: 17

thanks so much for sharing this.

StephanieJune's picture
Joined: 01/19/08
Posts: 103

Thank you so much for sharing this. I am going to print it and tack it up on my cubicle at work.

sweetpetunia's picture
Joined: 08/31/06
Posts: 76

Oh that was perfect! I've seen some that are similar, but Ithink this one covered everything. The only thing I would tweak would be to add stillbirth and infant death at the bottom where it says 'miscarriage'. I'm going to put this up on my 360 page, Peter's Caring Bridge site and I really need to send one out to all my ILs.

Thank you,

Julie

Joined: 06/03/07
Posts: 623

Thanks for sharing. That was perfect.

Shelly