Got the mri results
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  1. #1
    Mega Poster tialee's Avatar
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    Default Got the mri results

    So the nurse calls to tell me the results... Well they found nothing. Most people might be happy that all looks okay but I am not cause I really wanted an answer. Also my poor Tyson had 2 seizures last night. We were doing so good. 10 days without one and then we get 2 in one night. So I am back to not sleeping again so I can watch Tyson. I am still waiting on a call from Tyson's personal nuse so I can tell her what happened last night. The thing is on the outside Tyson looks so normal and is quite advanced for a 4 year old. To a stranger you would have no clue he has epilepsy. As much frustration as I feel I just keep remembering the other kids we seen at the hospital on Monday. Kids who were confined to wheelchairs fron epilepsy and I guess I have to be thankfull that Tyson is not like that. I just keep wondering will he have this now for life? What if he can't get his DL? What is going to happen next year when school starts? I guess I just have to take it one day at a time. Thanks girls for all of your support.
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    So sorry you didn't get any answers. Poor Tyson and poor mommy and daddy to have to watch and worry. I hope you guys figure something out.
    ~Ashley

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    Posting Addict crazy j's Avatar
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    two more last night! that is so dissapointing. of course it is good and bad that they didn't find anything. it is so hard to get a diagnosis on things like this. the doctor's never see it happen. this might sound crazy, but do you think it might help to videotape an episode and show the doctor? i hope you don't think that's a terrible suggestion, my intentions are pure.
    Joan
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    Just remember that although there are really bad examples, there are also plenty of good examples. I have a good friend now who has to take meds all the time, but she functions pretty normal overall. Hang in there! Hopefully the answers will come soon.
    Stephanie & Dave - Andrea 10/22/06, Natalie 6/24/11
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    I'm sorry you are struggling so with this. (((((BIG HUGS))))) to you, Tyson, and the whole family. Taking it one day at a time is all you can do ... let the rest come in its own time.

    As an aside ... I have epilepsy and you'd never know it. I'm active and have a family. I work and drive and all that jazz. Like everything in life (it seems) there are variations. And so much depends on age - my seizures today are very different from the gran mal seizures I had as a kid.

    Hang in there and feel free to drop me a line (my email is acarbo99@hotmail.com) if ever you need to chat. I won't claim to be an expert, but chances are, I've at least been there, done that.

    Best,
    GiGi

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    Posting Addict scrapangel's Avatar
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    How frustrating. I swear having no answers is worse than answers in so many ways. I wish they had some answers for you.

    Like I have said to you before, hang in there and be strong. I can not imagine how this must be to live through.
    Missy



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    Posting Addict coolmama72's Avatar
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    That stinks that they didn't find anything ... but it's good at the same time. Anyhow, I know that epilepsy can be controlled to some degree with meds, so I hope you're able to get good help from your doctor with that. And poor Tyson with two seizures last night!

    Gwen, Mommy to Andrew, Jordan, Natalie & Jack




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  8. #8
    Mega Poster tialee's Avatar
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    Quote Originally Posted by acarbo99 View Post
    I'm sorry you are struggling so with this. (((((BIG HUGS))))) to you, Tyson, and the whole family. Taking it one day at a time is all you can do ... let the rest come in its own time.

    As an aside ... I have epilepsy and you'd never know it. I'm active and have a family. I work and drive and all that jazz. Like everything in life (it seems) there are variations. And so much depends on age - my seizures today are very different from the gran mal seizures I had as a kid.

    Hang in there and feel free to drop me a line (my email is acarbo99@hotmail.com) if ever you need to chat. I won't claim to be an expert, but chances are, I've at least been there, done that.

    Best,
    GiGi
    Thankyou so much for responding. My biggest question and maybe I should not ask this but dose it hurt when your in a seizure? Can you hear people talking to you during it or not? I will deff. email you thanks

    Oh and Joan that is a great idea. I am going to charge my camera. This will be hard to do and I might not make it through doing it but I sure am going to try. I guess for now my only option is more meds so I hope that works.
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    Posting Addict K9Trainer's Avatar
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    So sorry Tia. Bless his little heart.
    Carrie
    Married to my best friend 10-16-1993
    DS #1 08-16-1999
    DS#2 10-31-2006
    DD#1 11-14-2007

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    Tia,

    I can only answer for myself on the pain part (I have only known one other person w/ epilepsy - my great grandfather and he passed away many years ago) ... but the answer is no, I do not feel pain from the seizures (unless I hit something in the process or fall into something). What I do feel afterwards is muscle fatigue - like I had a big workout at the gym.

    HTH.

    Again (((BIG HUGS))). I know this is scary. But I'm walking, talking proof that the meds can make a huge difference.

    Hang in there mommy.

    Best,
    GiGi

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