Josiah had his Mayo appointments yesterday.
First the good news. In the month of June, he's gained 10oz, making him 12lbs 8oz. Also, mentally, his development is spot on, if not advanced.
The bad news?
-He's not pooping. He'll go anywhere from 2-3 weeks between bowel movements. They are questioning if maybe non-painful constipation is causing the reflux. Josiah will be started on a prescription and a home remedy for this with a goal of getting bowel movements every other day.
-He's behind physically, though he is rolling.
-He's not gaining enough despite the growth this month. He's still below the growth chart and not working in proportion to his height.
-His spitting has not reduced at all, despite the weight gain and fortified breastmilk.
So what this all means is that this week I have to feed Josiah only fortified Neocate. Between that and the constipation remedies, if it is further food proteins that he's reacting to then he will improve on the Neocate without breastmilk. Because he does have a slight eczema rash, they are strongly suspecting that his stomach is just super sensitive right now. Talking to the dietician, I am eating correctly, and to take any more products out of my diet would compromise my health.
I am still pumping this week, but moving to every 6 hours instead of 4. I am still holding to the very slim hope that I will be able to and least pump and fortify milk for Josiah. I want to breastfeed very badly. I failed with Caleb due to lack of knowledge and his pyloric stenosis. By the time he was diagnosed, my supply tanked and never recovered. With Anna, I failed due to undiagnosed PPD. Both of them were on formula by 4 months. Katie never once received a single drop of formula. We had a successful breastfeeding relationship until she self-weaned at 9.5 months. I wished I could have fed her longer, but she refused everything, even formula. She was eating as much as her siblings by then though. Now this with Josiah. It's like I'm doomed to not be able to breastfeed. I do rejoice that I was able to give them as much as I have. I know I'm not a bad mommy because I have to stop breastfeeding. I am reassured that it's not me and what I ate that is making Josiah have troubles. And still my heart is VERY heavy and I mourn the likely loss of breastfeeding.
To make matters more frustrating, my insurance is saying Neocate is not a medical neccessity because he hasn't failed on at least 4 other formulas. They won't except that breastfeeding, eliminating dairy, gluten and soy from my diet brought major improvements. We're appealing the system now, but until then... I had to go through the beginnings to get Josiah on WIC. WIC is dismayed that I don't want to put myself or Katie on it too. Well, we didn't have financial need until Neocate. Plus, I can't eat 3/4 of the foods allowable on WIC.
So, that's what is up with me and Josiah.