MY POOR TYSON :( need advice UPDATE ON TODAY POST 10

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tialee's picture
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MY POOR TYSON :( need advice UPDATE ON TODAY POST 10

Well Tyson's second day was not as good as his first. When I picked him up he said he loved school and was better but listen what happened.
Tyson's meds make him get very hot at times. They also make him have to pee very often. These are all things I told his teacher and asked her if she could pass the info along to his other teachers like art, music and gym. Well, I guess Tyson got really hot in art class and asked if he could walk in the hall to cool down but the teacher said no. Tyson also asked if he could go to the bathroom but the teacher also said no cause he already went at the beginning of class. Tyson ended up getting upset and layed on the floor crying. I asked him why he layed on the floor and he said cause the floor was cool Sad I guess he asked again to go pee and when the teacher said no he ran out of the room. hey had to chase him and call his reg. teacher. I guess Tyson was crying and said I want to call my mom (THAT JUST KILLS ME) but they said no. I guess his teacher did not get around to telling the other ones about Tyson yet and all I could think of was what if he had a seizure! Jasmin's friend ran outside and told Jazz and she ran in and made him better. I guess once the art teacher found out it was medication related he felt bad and made Tyson a fan to use and let him be the special helper. I decided to tell them all myself with this letter. Tell me what you all think. Be honest

To Tyson’s Teachers:

I wanted to make everyone aware that Tyson has epilepsy. Due to his condition, Tyson has not been in playgroups or daycares, because we tried wherever possible to lessen the chance of exposure to a virus. This is Tyson’s first time in a controlled atmosphere, interacting with other children.

Tyson is currently on medication, and while it doesn’t entirely eliminate the chance of a seizure, it does considerably lessen the chance. Some of the side effects of Tyson’s medication are severe mood swings, getting over emotional, feeling too hot, and having to go to the bathroom very often.

If you could please take these side effects into consideration, and allow Tyson more bathroom breaks, a chance to cool down if he feels too hot, and a little leniency with the mood swings, I would greatly appreciate it. We have another appointment with Tyson’s doctors next month, where we can see if there are any alternatives to the medication he is currently on. I will keep you all updated. If you have any questions or concerns, please feel free to call us at (262)

I really hope today went better. This is so hard having a stranger care for your child who does not know everything about them. I am glad he was still excited to go back today but so worried that this could happen again Sad I thought about buying those little fans that you wear around your neck or something? Any idea's on what I can do to keep my little man cool?
Also would you be mad or say anything to the art teacher or just let it go? I know he did not know and I told Tyson today if he is hot to say I take medication for seizures and it makes me really hot. We practiced where I played the teacher so I think he has it down. I hope any teacher would take that more serious than just a kid saying they are hot. My poor baby Sad I wish he never had epilepsy.

Thank you,

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I am so sorry he had such a rough second day, I hope that he never has to experience that again! I think your letter sounds fine.

Breen31806's picture
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I'm sorry that Tyson had such a rough second day. Have you gotten him a medical alert braclet or necklace? As someone who has been a substitute teacher teachers don't always leave notes about the children with special needs. So if he does have the medical alert and he does what you said and the teacher doesn't believe him he can show the bracelet.

I hope it gets better now the teachers know.

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I think your letter is to the point without being b*tchy like my letter to them would have been. I know teachers get busy, but not telling the other teachers about a condition as serious as Tyson's is a little serious. I hope they give him a break considering his condition!!!

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My heart goes out to you Tia..I can't even imagine how bad you felt hearing this story. So sweet that he was excited to go back today...what a dear little boy. I think your letter is perfect and that it was a GREAT idea to practice with him. I hope it works out for him. I'm just curious though, have you ever thought about homeschooling him? It's definitely a lot easier than most think, and has lots of advantages too. JC

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The letter is a great idea!! Could you put a couple extra copies in his backpack? That way if he is sent to a new teacher or a substitute is there he can hand them a copy, just so everyone knows and he has the ability to show them what is going on? It may make him feel more "in control" of the situation if it were to ever come up again.

I would also make sure that you send one to the principal as well, just to make sure all of your bases are covered.

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Hugs! I've been praying for both of you.

No, I wouldn't say anything to the art teacher specifically. He obviously felt bad and did what he could to make up for it afterwards.

Your letter looks good, I would definately send it to them.

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I wouldn't say anything specifically. The first few days are always hectic and there are those students who will do anything to get out of following directions. The letters are a good idea. I also HIGHLY second the recommendation to get him a med alert bracelet. Those are WONDERFUL.

Hugs Tia. It will get easier and this will help him in the long run with how to handle society as a whole. I went to school with a couple epileptic students and I was so glad to know them. I'm sure Tyson's class will be too. The first year of school always takes some time.

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That's a very good letter to the teachers. Very informative and those requests you asked for are very legitimate. Have you spoken with the school nurse? (So she is aware).

I'm sure the teachers will comply with your requests, but if they don't, you could look into alternative things such as a health care plan or a 504 plan. I don't know much about a health care plan, but with a 504 plan, it's a written document that HAS to be followed (it's a civil rights thing)....

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Thanks everyone, those are all great idea's. I never thought about the medical bracelet but now I will do that for sure. I also forgot all about subsitutes. I did consider home schooling but I don't want Tyson to feel any different from my other kids. If they were all home schooled then I would not have a problem with it but since they are not, I choose to go this route. I ended up sending 8 copies lol to the school and did give one to the principal. I also spoke with the health aid before Tyson even started there. I will see how it goes there for now but anything serious and I will look into a health plan.
Today was good Smile

Tyson told me '' mom, I was so hot so I said in my loudest voice I TAKE MEDICATION FOR MY SEIZURES AND IT MAKES ME HOT I NEED SOME AIR'' He said mom, I said it just right cause the teacher said go right ahead Tyson. I started crying and he said mommy, I did good why are you crying??? I said yes Tyson, you did great and I am happy crying! My baby is getting so old. Just to think of him in class feeling hot and thinking okay, now what did mom tell me to say??? I am so proud of him. He never has asked me why he has this when nobody else does. He never thinks he is any different than anyone else. Okay this calls for a layout!
I know this is a scrapbooking board but I think of you all as my friends. It is nice to know that support is there 24/7 without waiting for someone to get home to talk to or someone to pick up the other end of the phone. Thank you all of you, you girls are me therapy!

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Poor Tyson!! I'm sorry the teacher didn't spread the word. Your letter is PERFECT. I'm glad you already brought it to the school. Your little man is a smart kid, lying on the floor to cool off and telling his teacher about his meds. He'll be okay, I know it. He has you for a great mom. Smile

:bigarmhug:

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Tia, you did great with your letter. I think it's perfect.

I did a quick search for kids medical id bracelets and there are lots of options -- even sports bands with lots of different designs (kid friendly and in kid sizes). I bet Tyson would love to help pick one out!

I hope things go smoothly for you both over the next couple of weeks as you get into a routine and see how awesome Tyson does with the other kids. Smile

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"tialee" wrote:

I know this is a scrapbooking board but I think of you all as my friends. It is nice to know that support is there 24/7 without waiting for someone to get home to talk to or someone to pick up the other end of the phone. Thank you all of you, you girls are me therapy!

I feel exactly the same way!

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Oh hun your update made me bawl what Tyson said...you have such terrific kids, you really do. :bigarmhug: You did a brilliant job with the letter . I know you are finding it hard feeling on top of things when you've always taken care of it yourself. :bigarmhug: I will pray everyone at his school gets it together, and quick, and you and Tyson can relax and have some peace of mind Smile Love you girl

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Big hugs to you Tia. I'm glad that he was able to stand up for himself and I hope he doesn't have any more issues with teachers.

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He sure sounds like an awesome kid Tia, with a REALLY big heart! :bigarmhug:

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"coolmama72" wrote:

Poor Tyson!! I'm sorry the teacher didn't spread the word. Your letter is PERFECT. I'm glad you already brought it to the school. Your little man is a smart kid, lying on the floor to cool off and telling his teacher about his meds. He'll be okay, I know it. He has you for a great mom. Smile

:bigarmhug:

Couldn't have said it better myself! Especially the bolded!

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Tia,

I don't know if you will remember me as I hardly ever post here any more, but I still lurk from time to time and I always follow your threads about Tyson. I too grew up with severe epilepsy and my mom and I feel the pain you are going through right now.

I don't have a lot of advice - you've already gotten great ideas and are doing a great job. I am so glad you sent the letter. I highly recommend the medic alert bracelet or the necklaces (they have a dog-tag style that boys don't seem to mind wearing). When it comes to substitutes, most teachers I've worked with have a folder they leave for subs - I would ask that your letter be included in that folder so that no one comes in unprepared.

you are doing a FANTASTIC job. I love that you practiced with Tyson so he would know what to say and how to get people to respond to his very real needs.

(((((HUGS))))) to you, Tyson, and the rest of the family.

Oh ... and I am so happy that someone went and got Jazz to help out. What a blessing to have family in school with him!

Best,
GiGi

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"acarbo99" wrote:

Tia,

I don't know if you will remember me as I hardly ever post here any more, but I still lurk from time to time and I always follow your threads about Tyson. I too grew up with severe epilepsy and my mom and I feel the pain you are going through right now.

I don't have a lot of advice - you've already gotten great ideas and are doing a great job. I am so glad you sent the letter. I highly recommend the medic alert bracelet or the necklaces (they have a dog-tag style that boys don't seem to mind wearing). When it comes to substitutes, most teachers I've worked with have a folder they leave for subs - I would ask that your letter be included in that folder so that no one comes in unprepared.

you are doing a FANTASTIC job. I love that you practiced with Tyson so he would know what to say and how to get people to respond to his very real needs.

(((((HUGS))))) to you, Tyson, and the rest of the family.

Oh ... and I am so happy that someone went and got Jazz to help out. What a blessing to have family in school with him!

Best,
GiGi

I remember you. I was asking you what it felt like right? Thanks for thinking of us. I was just online trying to find Tyson a bracelet or dog tag. I think the sheet in a sub folder is a great idea. Everyday I walk Tyson to his locker and then to his room so if there is a sub before I tell the teacher I will know. Today Tyson said he was not going to school if he had gym or art cause those rooms are both too hot. Lucky for me today was just sharing day so he was happy. All I can say is thank god it's Friday!! Oh, and give your mom a hug for me.

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Awww, you made me cry too. What a big boy!

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Tia you are doing an amazing job with getting tyson ready and then sending him off to school. It takes a lot to make sure that all of your bases are covered but you have them all covered. And i know you are very proud of how he did so well. That just shows how well you got him ready.