Cursed Croup

[Alana*sMommy]

Madi has croup.....once again. She's on day 4 of it right now and so far she hasn't needed any medicine. During the day she is fine for the most part, but at night and first thing in the morning she is just pitiful. I'm keeping a notebook to show the GI doctor at her follow-up appointment because I'm convinced it is related to the reflux. Stupid reflux.

[wishing4agirl]

When do you get the results from her last test?

[Alana*sMommy]

We'll get the results on the 11th at her follow-up appointment. I'm going to call the pediatrician this morning to see if I can give her a dose of Orapred. Poor baby sounded terrible last night, crowing and whistling in her sleep.

[scrapangel]

Oh poor thing. She really does need a break from this crap. She is one strong little girl.

[Alana*sMommy]

Pediatrician said to give her 1 1/2 tsp. of Orapred before bed for 5 days. If she hasn't recovered completely after 3 days she wants to see her. Someone needs to pray for me because when Madi is on Orapred she is a total beast, lol.

She fell asleep on my Mom's lap today and my Mom could actually hear her reflux 6 times in 45 minutes. With each time Madi would cough and become very restless. Then the stridor started and my Mom said she was scared to death. It really is an awful sound.

[wishing4agirl]

I hope the 11th comes soon for you. Remind me has she had a sleep study? I know a friend of mines daughter has sleep issues because of her reflux.

[Alana*sMommy]

No sleep study yet but the GI doctor has mentioned having a ph study done. She would have to be hospitalized for it which is why it wasn't first on his agenda of things to do. Apparently they put a tube down her nose to measure the levels of acid in a 24 hour period. I know she is refluxing, it is obvious when you watch it happen. I don't know what benefits she would get from having the test done. I'm not sure I will agree to the ph test but I just want them to pinpoint whatever is causing this and fix it!

Could you tell me more about your friend's daughter please? I'm dying to hear of another child similar to Madison and what is being done.

[wishing4agirl]

http://www.massingalefamily.blogspot.com/ Here is her blog. The one that has the reflux issues is Faith (ironically). You can sort through her older posts for the ones on Faith and her GI issues. I just know the reflux she has goes into her lungs and because she was a micro-preemie and has "sick lungs" anyway it makes it worse. They (the drs) have been thinking about giving her a G Tube because it is that bad. But have put it on hold. I know she had a sleep study done and the results were quite bad. I would really suggest you get one for Madi. With what you mentioned about how she is sleeping it sounds like she really needs a study to help the drs know further what is going on and what to do to get her better. HTH

[Alana*sMommy]

Thank you for sharing the blog link. Those are two of the most precious little girls! Poor Faith seems to have serious health issues and I'm thankful Madison hasn't reached that point and hopefully won't. I hope they are able to avoid the G tube and any other surgeries for that matter.

I was thinking about the sleep study as I watched her toss and turn in bed all night last night. I think I will definitely ask for one to be done, and since she was diagnosed with obstructive sleep apnea I don't think I'm being too demanding. Thank you for the advice!

[wishing4agirl]

Originally Posted by Alana*sMommy

Thank you for sharing the blog link. Those are two of the most precious little girls! Poor Faith seems to have serious health issues and I'm thankful Madison hasn't reached that point and hopefully won't. I hope they are able to avoid the G tube and any other surgeries for that matter.

I was thinking about the sleep study as I watched her toss and turn in bed all night last night. I think I will definitely ask for one to be done, and since she was diagnosed with obstructive sleep apnea I don't think I'm being too demanding. Thank you for the advice!

The thing about Faith is at one point they were going to do cochlear implants because she was profoundly deaf and qualified. Days before the surgery the dr went ahead at the parents request for one more hearing test. Which she ended up NOT qualifying because although still profoundly deaf not on a level to qualify for implants. Today she hears better than Eli with her hearing aids and without them she is hearing almost within the bell curve. They are actually doing a study on her because of the improvement in hearing which has never happened.