Thread: Full diagnosis in :( :)

So we are on the train home from the follow up to my hsg and blood tests.
The scarring is more extensive than the lady let on.. Covering half of my uterus. So no trying til surgery.
In regards to that I am expecting a letter any day from mr h and hoping he will have a date in the near future. Then it should be a month or so after that we can start trying.
I said we wanted to try ASAP and if there was another miscarriage... Mr r said no!!!
Wait!! Each miscarriage will get harder. M agreed and said it is really hard on him too so let's do it right.

In regards to the blood tests... (kristi your suggestion was on the nose!!) I do have mthfr ...homozygous where both my genes or certain genes or something are abnormal.
This explains the last miscarriage in particular as it is apparently linked to downs.
It means my body doesn't convert the folic acid into what it's supposed to convert into to. Can't remember the name.
Luckily it can be sorted by a high dose of folic acid.
Mr r is writing a letter so that I can u derstand it all clearer.

I was convinced all the tests would come back normal and that it was the scarring and hyperfertility that was causing the majority of my losses.
I should be relieved I have a proper answer, but somehow I feel broken.
I know it's easily remedied... But I just feel... Angry maybe... That noone else in my family has this problem... I am also angry that it wasn't diagnosed 1 year ago ...
I guess I am thankful to that we will succeed soon..(I hope) but... I am sure you guts get me!!

Anyway... That's the coo!!

Xxxxxxx

Hugs sweetie. Answers are always good.

I understand about being frustrated with fertility issues. I have 6 sisters and none of them have had problems. So far 10 of my nieces have been pregnant with no issues. If just sucks!

We are strong women and we will get through this! Did the doctor say how high of folic acid you need to take? I was on 5mg in the past but now I am just taking 1mg.

Liz, I'm sorry the scarring is worse than what they told you. I hope the surgery is scheduled soon. I'm sorry it took so long to be diagnosed. Sometimes I wonder if the doctors even realize the heart ache infertility causes us and just over look things accidentally. Good luck

Thanks ladies!!
Guess I just feel sorry for myself.
Doesn't happen that often though.
Margaret it's going to be 5 mg I believe.
I so wish I had asked at Cambridge to be tested for this whe
N a couple of girls here raised it.. But oh no... I knew best!!! Not!!!
Xxxx

Liz, I'm sorry there is more scarring than you were originally told. *Hugs* I'm glad you have your answers now. Try and focus on that. I know all too well how it feels to play the 'what-if' game. It's torture hun and it gets you nowhere. I am praying you get your surgery soon so you can jump back on the ttc wagon and move towards your dreams coming true! xo Stay positive!!

Liz im so glad that you got the answers!! Hopefully after your surgery you will be able to have a Christmas baby !!

The good news is that it's fixable, yes? Praying they get you in soon for the surgery.

I can imagine your head is reeling... but I am SO happy that the answers are FINALLY here for you Liz! I know that there are amazing things coming for you sweet girl!!!

So glad you have answers, as frustrating as they may be. I know EXACTLY how you are feeling and it just sucks, HUGS!!

What type of procedure will they do to remove the scarring? Laparoscopy?

Thanks ladies.
Feeling better today!!
Plus got the letter from addenbrooke!!
Mr h says no problem... He will do it and ge suspects my wait won't be long due to my history and he 'understands the urgency of my predicament very well!!!'

I have calked his secretary Mel and said book it Please!! So hopefully I will get a date very soon!!

Amanda it's a hysteroscopy.
Apparently the same as a d and c but with a camera and potentially a coil for a month. Can't remember what you guys call it... But its letters. Iud I think.

So watch this space!!!!
Xxxxxx