MY HSG HORROR STORY! (CD9, Cycle 42)
Why? Infertility for nearly 5 years, but didn't start charting until January 2008. Worried about a blockage and Endo.
I had my first HSG today at 7:30am. It was physical and mental torture (AKA HELL) for me, and I want to tell the story of what happened, and what's going to happen. I have read others HSG horror stories and also stories of how it went perfectly well. Well, this is definitely a negative one!
First, you must be aware that I have Interstitial Cystitis and Pelvic Floor Dysfunction. IC causes chronic pain in the bladder along with frequency and PFD causes all of my pelvic floor muscles to be EXTREMELY TENSE AND TIGHT. (This includes all abdominal muscles and the vagina, cervix, uterus, urethra, bladder, rectum, and anything else like that in the abdomen.) Because of this, I decided to get smart and take meds beforehand.
I was up ALL night long, worried about this and was expecting the worst just so I could go in and be like, "Oh, that was nothing compared to what I thought it would be." (...if I had only known...) So, an hour before my HSG (6:30am) I took a 10mg Lortab, 1.5mg of Xanax, and a 10mg Flexeril. I knew for sure they'd be needed. I had no idea they wouldn't do a darn thing for me.
I got to the hospital. Was only slightly loopy. I take at the very least 31 pills a day due to my conditions. Therefore, it was going to take a lot to chill me out and relax all of my muscles. At this point, things were just barely kicking in. [NOTE TO SELF] I need to take my meds a good hour and a half or even two hours before a procedure where meds are needed for me.
My husband was not allowed back with me, which I was very upset about. There was no reason that he couldn't have come back with me to hold my hand and be there for support. A nurse took me back into the procedure room where I reminded her I would need to pee just before the procedure due to my Interstitial Cystitis which also causes frequency. There was a bathroom attached to the room. I had to undress in it from the waist down, but I kept on my socks (bad idea), then put on a hospital gown. I urinated, washed my hands, then waited sitting on the table for the doctor to get there. I was manic and still had anxiety. I voiced my worries and was listened to by the nurse, but was assured it wasn't that bad. (ha ha ha...)
The doctor came in. He's my OB, and I really like him a lot. He's a tall, African-American man who is a great patient to doctor type of guy which I like. (I can go to an appt and he will talk to me for over 30 minutes if need be. Once, he was in with me over an hour!) I reminded him of my conditions and admitted to taking meds for it, which he thought was a good idea. We laughed a bit as they finished up preparing things over the seat he was sitting in because it was crooked so the nurse brought him a new one. I asked where the stirrups were. They didn't have them on the table. This is where I failed in wearing wearing socks. Had I known what was about to happen, I would have needed the grip my feet could have used against that metal table I was on.
I scooted down to the edge of the table, and he said he was going to be easy yet work fast. He put the speculum in which felt uncomfortable, and yes, there was a little pain with it. It made me wonder if it was a special one because I didn't remember a speculum ever hurting quite like that before. Next, he swabbed my cervix then had to clamp it open... or something like that.
It was at this point that I lost it due to pain. I'm not sure exactly what all went on down there, but I know they clamped the cervix, I was crying HARD. He was like, "Okay, I'm going to do this real fast (was talking about the dye I think) but first I want you to cough really hard," so I did. Something else took place when he told me to cough. It felt like he cut straight into my cervix (felt like it would if they were going to take a biopsy of the cervix), and I still don't know what happened, but once the swab was over, I literally just lost it. I sobbed, shook, couldn't get grip with my feet to relax... I was sobbing so hard I could feel the speculum and clamp(s) bouncing along with me as I cried. TORTURE! AND NOT JUST PHYSICAL BUT MENTAL TOO AT THAT POINT JUST THINKING ABOUT WHAT ALL WAS GOING ON. Then he mentioned putting the dye in quickly, or at least I assume that's what he was still talking about, but I was still crying and sobbing and cursing, etc... It was natural body response. I literally had no control over anything that happened. I remember yelling out that I desperately needed something for pain!
Being the good doctor he is, he did not go any further with the procedure. I was so tense that he could not even get the dye to go in, and when he tried it came right back out. (That's if he got any in there at all. I'm not even sure they made it to that point.) It was at this point he stopped and told me I would need to go into surgery to do this, and he was very nice about it. He removed everything. The two nurses and doctor apologized for the pain I was in over what they had to do, and he immediately said he was going to call me in something. Between sobs I remember saying, "Call me in something good, Doc!" He reminded me that I may spot for a few days and to keep my appt with him so we can set up surgery to get this done. I'm going to have to go completely under for my HSG... The one nurse (who I think was actually an x-ray tech) that brought me back to the room to begin with was the one that stayed when the other nurse and OB left.
I laid crying on the table for a good ten more minutes. She told me not to get up until I needed to. I felt bad. She kept saying she was so sorry, and she didn't know it was going to be like that for me, and I hated it because it was not her fault, and I made sure to let her know that. She kept saying she thought the Flexeril should have helped. This shows that nurses and doctors should pick up a book or look online or even talk to someone knowledgeable if they don't know what a condition is. I hope she went home that night and looked it all up...
I finally set up, but I couldn't see a thing with my eyes filled with so many tears. There was a thing I could hold onto to step down off the table, but my legs started shaking really bad and started to buckle underneath me. (I only have one good hand right now because my left thumb has been in a splint for over two months, and I've got more months ahead of me with that.) The nurse came over and held me up as I walked over to a chair. She was still saying she was so sorry, but I was hurting so bad at that point that I was light headed and felt like I was going to pass out, so I told her. She got me two cold rags for the back of my neck and forehead. She asked if I was nauseous, and I told her I was so she brought me a puke bucket. THAT was when my husband was FINALLY allowed to come back with me while I waited to make sure I wasn't going to pass out. I couldn't stand! Finally, they called for a wheelchair for me, and DH was off to get the car. I was wheeled to the entrance and got help getting in it.
The car ride was hell even though the pharmacy was close, and I was looped up beyond belief by this point. We got there just before they opened, and DH went in right at 9am. He went to check. NOTHING HAD BEEN CALLED IN. I called my OB and got their answering service at 7 after 9. They said they should start answering phones at 9:15am. So, I called, reminded them, and he called me in 10 Lortab 5mg immediately. THANK GOD. At this point, the nausea got extreme, but I never did throw up. We stopped by McDonald's on the way home so I could put something in my stomach since I'd taken so many meds. I got an orange juice and only two hash browns. The food did end up helping the nausea go away though. We made it home. I took more meds, was still crying, took my Seroquel, and knocked myself out while trying to watch an episode of Criminal Minds online to take my mind off of it all.
I just woke up earlier at around 8pm or so. Woke up in the same pain, just not as extreme, but this is still the same day it happened. Hopefully tomorrow I feel better. I just need to call my OB's office to ask when my next appt is because I can't find the appt card anywhere. I know it's soon though.
So there ya have it. That's my HSG horror story. I just wanted to document it and let others know what it was like for me, because it's different for us all.
I've also been diagnosed with Fibro and they are now searching for Endo. OB is trying to set me up with Lupron. Waiting to hear back from them about that because of cost, but there are ways to get it cheaper. It's what their office is working on for me. Fingers crossed for Lupron and an easy HSG "surgery" coming up!!!
Okay so disregard my questions in your hello thread.
This made my cry.
What a total nightmare...i thought my hsg was bad enough with a medical student not being able to get the suckage cap on my cervix...but then even then it was a day atbthe beach in comparison.
You poor thing.
Wow....oi am so glad you have suchna nice ob.
Other than that...well words are at a koss.
Do you know when you will be scheduled to have it when put out?
How are you doing now?
Hows dh baring up?
It must have been traumatic for him to see you like that.
Huge hugs to both of you.
It's an awful test, I remember tears streaming down from the pain as well. They say it hurts the most if your tubes are blocked and mine were, they freed one tube and now I only have the one tube (Lap surgery). If I was to do it all over again, I'd ask to be put under.
Kyle 11/10/05, Connor 09/10/07
Faelynn & Finnley 09/24/12
Lizbet - I should find out something at my next appt. Can't call about finding out when it is until monday then will have to schedule it. Maybe next cycle just after AF? Also depends on if I get my Lupron soon or not. I'm going into day 3 of this HSG, and it STILL hurts. Still taking the pain pills! Hoping this pain goes away soon. DH hated letting me go in there alone since he watches me suffer on a daily basis. He felt awful, but he was so supportive. I truly have the most amazing husband ever! I'm so blessed! In a way, I'm glad he wasn't allowed to go back with me. He sees me in pain all the time, so seeing me in even more pain is worse. He left work early yesterday because I was hurting so bad that I desperately needed him home with me. Thanks for the concern!!! =] *hugz*
Jennifer - Oh, I hate to know you hurt so bad during your HSG too. I truly was hyping myself to think it was bad just so I could go in and it be nothing, but I was soooo mistaken! They didn't even get to inject the dye in! lol So I dunno if mine or blocked yet or not. Hope not!!
Marisol - I'm sorry you had to read this at such a bad time but I just HAD to tell my story. Just remember we are all different and hopefully it's no where close to bad as it was for me. Good luck with it!!
I'm still in pain. I never want to have an HSG again. I'm so glad I get to go under for my next one since this one went so terrible. I also hope none of you EVER have to go through what I did. Just re-reading what I wrote here brought me to tears. *hugz to all!*
I am sorry it hurt so bad. When I had mine done, I felt just a little pressure but it wasn't bad at all. I never knew people had bad experiences! I hope you start to feel better soon
I am may be totally wrong but i get the impression through all this you are still so upbeat.
I know you can read the tone of threads wrong..but you seem so positive even though you are in so much pain.
I salute you.
Hugs to you and maybe we can all learn a little from you and each other.
Oh girl!!!! I am so sorry you had to experience this. Mine was painful as well, but not like that.
Let me know how things go
Yup, HSGs are painful indeed. Your procedure sounds a lot like mine except I think I had sturrups. DH wasn't allowed in either (this is standard around here) and it freakin' hurt when they clamped my cervix. Ouch! The dye part wasn't very fun either...your uterus pressurizes before the dye goes out your Fallopian tubes. Ouch. I seem to remember me making very unhappy noises. LOL
I'm wondering if the meds you took made you more irritated and irrational? You said you were loopy...so perhaps you were less able to control yourself because of the meds? I know mine hurt and I was freaking out and shaking like you said you were...but I had only taken Advil and Tylenol so I was better able to control my breathing and get my mind in a space that allowed me to not completely go crazy. I kept telling myself if I was going to give birth one day I should probably figure out how to get through this short procedure. LOL. I also had a super nice nurse who held my hand, spoke calmly and reassured me. I honestly think she helped keep me grounded.
I hope you're able to get an HSG while being 'out'. I think it really helped me get pg.