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Heath's Journey 12/1/08 part 2
I am a CLC myself so this makes it dubbing frustrating for me. The hospital LC has me doing tongue exercises with him and it is helping some, we have been doing them for about aweek now. She also has him sleeping skin to skin with me at night on my chest or in a sling during the day. He just learned to sleep in the swing so I am getting some rest but have to watch him as he gets breathing hard when in it. DH was home from work with me the first 2 weeks and then my Aunt came to town. Today it is just me and I am exhausted with 2 others.
I am a CLC myself so this
I am a CLC myself so this makes it doubly frustrating for me. The hospital LC has me doing tongue exercises with him and it is helping some, we have been doing them for about a week now. She also has him sleeping skin to skin with me at night on my chest or in a sling during the day. He just learned to sleep in the swing so I am getting some rest but have to watch him as he gets breathing hard when in it. DH was home from work with me the first 2 weeks and then my Aunt came to town. Today it is just me and I am exhausted with 2 others. Wed we go back to the LC, Thursday we go to my PP visit and Fri we go to his pedi visit. At 2 weeks he was up 10oz from birth wight. At first we thought his bad latch and issues latching on where related to the length of his tongue, and thrusting me out. But now at week 4 he has nursing down not many issues latching but is still coming off and I am starting to think it is so he can take a better breath then it is because he is thrusting me out. Although even that everyday he gets better like the combo exercises and just growth/age he is learning what to do with him tongue during a feed. The pedi knows about his issues and they have improved since our last visit but I feel like a first time mom and still worry. Especially in the car seat when I can't see him or if he gets crying hard and holds his breath. My brother is a paramedic and said not to worry if he holds his breath all that will happen is he will pass out and then start to breath regularly when he comes to, like he will reset himself. I am not as relaxed about this as everyone else. This may sound random but how early can they diagnose SP? I know he is rolling over and that is early but something just seems off about him to me. He was blue for a long time after the birth and the placenta came out with him and then I hemorrhaged 3.5 hours after myself. Thinking maybe a possibility the placenta detached before he was born. His hart never stopped and his apgar was 8.
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Heath's Journey 12/1/08
Peter and Tessa both loved my boob and after a feed would go right to sleep. Heath has a abnormally long tongue so the way he sucks he gets gulps of air that he takes in through his nose. (seen many LC's it is not his latch) Anyway this gives him gas pains. I am not sore at all but my question is. How do you get your NB to sleep?

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Heath's Journey
I am going to be putting here all my post entry's about Heaths first 2 months of life before I get to blogging anything up to date.
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Heath's journey 1/27/11
Heath had a wonderful Christmas. He was into his gifts this year but still needed some help with the paper. Heath is still seeing his PT and ST once a week and TOD every other week.
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Heath's Journey 12/10/10
I'm not sure how to start. Ok so heres the news. We saw the NS today.
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Heath's Journey 11/29/10
So Heath's MIR went ok. He was hungery but not upset to bad before it. We where the first appt. He ate at 10pm and I could have nursed him at 2am but he did not wake up. By 6 we where at the hospital and 6:30 all checked in, he had fun playing with the toys and hand foam in the wating room. The Dr arived at 7 and brought us back to start all the questions and talk about what to expect.
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Heath's Journey 11/9/10
Heath had his 2 year well visit yesterday and the pedi said as soon as she gets the results from the MRI she will call me so I should know before Thanksgiving (MRI is set for Nov 17th)!!! He is up in size from the 5th% on the charts at 18 months to the 12% now. He is not doing any of the 2 year milestones yet but is making progress and can do most of the 18 month ones, now.

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Heath's Journey 10/6/10
Hi everyone. Wow I don't even know where to start. After our move in June life has been fast pace. Peter is in school and Tessa, Heath and I get to hang out all day.
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Heath's Journey 4/26/10
Today Heath was seen by the Airo-digestive team. Basically that means we went to the clinic and ENT, GI and Airway saw him all in the same visit. The Sleep Dr. had reported to them about his study and that was bases of this visit. Results: they did not need to use his O2 that night. His Co2 levels are still to high and considered abnormal. They have been getting higher/worse as he gets older. So we have to rule out why that would be. Blood was drawn today and we are waiting on the results. But get this

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Heath's Journey 4/21/10
Where to Start? I think I am going to do this blog in categories. Post op visit: It went well. He was all healed and no more need for pain meds. He was also taken off the every 4 hour treatments and now we will only use then as needed. The fear is if we do them to often and he has a real attack the meds won't work for him. Only advice ENT could give me was wait and see what the sleep study says, before changing anything. Speech/ASL/Hearing:
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Heath's Journey 3/3/10
Wow I can't believe it has taken me this long to sit here and type all this out. Firs off sorry for worrying anyone after the surgery. Life has been crazy with us packing for the move and add in his recovery and I just don't seem to have the time I used to. I just had to send the kids to play for a min so I could even take the time to write now. As most of you know Heath had his surgery on Feb 16th. It was slightly delayed because the ENT had an emergency operation come in before us but lucky for us Heath fell asleep on a wagon ride and did not notice.
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