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Heath's journey 1/27/11Heath had a wonderful Christmas. He was into his gifts this year but still needed some help with the paper. Heath is still seeing his PT and ST once a week and TOD every other week.
Heath's Journey 12/10/10I'm not sure how to start. Ok so heres the news. We saw the NS today.
Heath's Journey 11/29/10So Heath's MIR went ok. He was hungery but not upset to bad before it. We where the first appt. He ate at 10pm and I could have nursed him at 2am but he did not wake up. By 6 we where at the hospital and 6:30 all checked in, he had fun playing with the toys and hand foam in the wating room. The Dr arived at 7 and brought us back to start all the questions and talk about what to expect.
May you have a healthyMay you have a healthy journey of pregnancy. And please observe your child's health for him/her not be one of our autistic angels and a victim of viruses. In a research paper due to be published next year, an Israeli research team has related children strep throat to obsessive-compulsive disorder. Strep throat may be linked to OCD, autism-spectrum disorders. There is an estimate that up to 2 percent of kids who get strep throat get Obsessive Compulsive Disorder as a complication. This disorder is known as PANDAS. Tic-spectrum disorders, for instance turret’s syndrome, may also be connected to strep throat infections.
Heath's Journey 11/9/10Heath had his 2 year well visit yesterday and the pedi said as soon as she gets the results from the MRI she will call me so I should know before Thanksgiving (MRI is set for Nov 17th)!!! He is up in size from the 5th% on the charts at 18 months to the 12% now. He is not doing any of the 2 year milestones yet but is making progress and can do most of the 18 month ones, now.
Heath's Journey 10/6/10Hi everyone. Wow I don't even know where to start. After our move in June life has been fast pace. Peter is in school and Tessa, Heath and I get to hang out all day.
Heath's Journey 4/26/10Today Heath was seen by the Airo-digestive team. Basically that means we went to the clinic and ENT, GI and Airway saw him all in the same visit. The Sleep Dr. had reported to them about his study and that was bases of this visit. Results: they did not need to use his O2 that night. His Co2 levels are still to high and considered abnormal. They have been getting higher/worse as he gets older. So we have to rule out why that would be. Blood was drawn today and we are waiting on the results. But get this
Heath's JourneyIt has been a long time since I last checked in. Heath is now in a full day KG class and 13 months post spinal cord surgery. He is doing well and looks so cute with his glasses on his head.
Heath's Journey 12/10/11Where to start today marks the year of finding out that Heath has Chiari Malformation.
Heath's Journey 10/6/11I endded the last blog by telling everyone how Heath got into the Hearing impaired program. Well school has started and he LOVES it. Every day we pull up to the driveway and he says "we here" :)
Heath's Journey 7/11/11Plan Update: April 28th Pulmonologist vist (this well and no med changes)
Heath's Journey 4/6/2011ENT visit today:
Heath's Journey 3/25/11Still on the fence on if the surgery is worth the risks. So I asked him if we did more testing would that give us any more info. Heath's last MRI was in Nov and was to rule out a twisted neck. Now that we know he has Chiari I asked him to do the CSF MRI, and a full spine to look for a syrinx or teathered cord.
Heath's Journey 3/23/11Ok how to start. I'm going to have to go back a few weeks so this may get long. On March 11th I got a phone call from the Nero S nurse and she read me the Apnea results and they are not good. His sleep study was 6 weeks ago, so after that wait you think the news of what we are doing next would be better then "come back for a visit in 3 months"!!!!
Heath's Journey 2/9/2011We just had Heaths IFSP 6 month visit. Communication Development: Communication 17 months, receptive skills 20-22 months, expressive skills at 18-20 months. Congnitive Development: 23 months Social-Emotional Development: 16 months Adaptive Skills: 14 months Gross motor skills: 19 months
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